Questions & General Disscussion-Brain Aneurysms
Brain aneurysms are not easy to understand…so picture this:
a red balloon is like an aneurysm. A popped balloon is like a ruptured aneurysm.
Our goal at the Brain Aneurysm Foundation is to Stop the Pop !
For the Stop the Pop Campaign we need ambassadors like you in all fifty states to help us raise awareness and provide education on brain aneurysm.
The campaign has two goals:
- Make Stop the Pop go viral by sharing an image/video of a red balloon on social media and ask three friends to do the same.
- Have representation from all 50 states on Capitol Hill in March of 2020 at our Advocacy Day
Click here to join your state. Select your state team and join!
Start your awareness and fundraising journey now! And, remember, brain aneurysms are beatable and treatable!
If you are the top fundraiser in your state by 12/31/19, you will win a trip to our Advocacy Day on Capitol Hill in March, 2020*.
*you must raise a minimum of $1,500 to qualify
Questions & General Disscussion-Brain Aneurysms
Sep 2016
1 / 25
Sep 2016
Aug 2017
Dan
Sep '16
Has anyone else had issues a few years after rupture and coiling. Over the years have fought off depression and anxiety issues with medication but, lots of changes at work have caused these issues to creep back in. 4yrs after can’t continue at my job and don’t see how I could go anywhere else. My issues are have no patience with anybody or anything that slows down my process have yelled at coworkers when they interrupted my thinking process or got in the middle of me completing my work. I work with the public every day and couldn’t care less about their issues and drives me crazy.Have had to increase medication for depression and anxiety as well as insomnia. Couldn’t handle the extra stress and anxiety any more and walked off the job using sick leave and vacation hours to make it and filing for disability as my doctor feels these issues may not get better but infact may get worse as I get older.Have been off work a couple of weeks, and am able to decrease the amount of meds but still can get stressed out or have anxiety issues if get around any conflicts with people. Could be as simple as being around a few people that are disagreeing with each other and I have to get away from them quickly I have hyperacusis so any sudden loud noise sends me almost into a ball with my hands covering my ears.not really sure if I can do anything else to over come these in a work environment where I can’t get away from the triggers. Anything anyone can suggest to assist. If my disability is denied not sure what I will be able to do. Can’t throat punch everyone who causes my triggers and stay out of jail anyway
2
Reply
Sep '16
last reply
](Difficult coping with late effects of brain injury - #25 by Erica_Jensen)
Aug '17
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views
users
likes
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4
3
Jill_Max
Sep '16
Hey, Dan! Obviously i don’t know much of anything surrounding your medical history, prescriptions,etc.
who is your family? Does the frustration occur in any other setting? Rather than depression/anxiety, my guess is that you are suffering from a Post Traumatic Stress Disorder. Thing is,
the medicine would be exactly the same; treating the symptoms. Whether or not you stay with this job, I would suggest finding a very good psychologist/psychiatrist with whom you could talk and get counseling in addition to Meds.
You’ve been through a traumatic experience. You have “Lost” some of your foundation to stand on and cope with any continuing stressors.
Living a “normal, active life” is best as much as possible. While work is causing so much stress and frustration, not working now, will only give you temporary resolve. SSDI is generally nowhere near your current income. A difference in income may soon cause stress, also.
Reply
Rugel
Sep '16
Hi Dan, First off I want to say thanks for sharing with us. For me asking for help, especially help with my feelings or behaviour, can be the hardest part. I hope we can help in some way. From your posting I have two initial ideas.
Firstly, is it possible that it is a medication side effect or a side effect caused by two or more meds interacting… A lot of meds have medium and long term effects that are quite surprising when you look them up. My pharmacist has been more helpful with these kinds of questions than my Doctor, but researching meds on the internet my self has been the most effective approach.
Secondly, I think that Jill Max has a good idea. Some professional counselling might help. I had not thought of PTSD in relation to our kinds of brain injures, but why not? I know my brain bleed was traumatic for me and I am sure yours had to be too.
I hope you find some help, here or elsewhere. Good luck and please keep us updated, we all benefit when a fellow survivor will share openly with us.
Reply
G_and_K
Sep '16
Definitely get a psyche eval for disability it helps tremendously. If you do get denied reapply right away and just keep pushing for your rights, maybe talk to an outside advocate for disability. Good luck!
1
Reply
Dan
Sep '16
Thank you for all who replied. Some very good advice. I checked up on the meds and they are doing what we want them too do. None should be countering the others. I do have an appointment with a neursycologist in a week, my doctor is thinking Ptsd as well and after this appointment I will look into councilors. All stress is from work related issues, public and coworkers. Am worried about financial issues as well but hoping my work disability retirement and social security disability will get me to at least 80% of what my income is now. My wife works full time and we will be covered by insurance from her employer, plus my wife is 100% behind me in the choice to get out of my working and being wiped out after work. Thank you for your thoughts and ideas to deal with this. After almost 4 yrs since brain bleed thought that would be over these issues. But maybe I should have accepted that I needed help a few years ago instead of pushing on by myself and I wouldn’t be having these issues now. Have been working so much around the house getting caught up on home maintenance issues is exhausting but no stress. I will post again as I progress hopefully withgood results. And again thank you for the advice.
Reply
Linda_Perrin
Sep '16
Took me almost 6 years but finally got it , they keep denying you , I’ve changed so much also , keep up the fight not a easy road
Reply
shelly_sizemore
Sep '16
I’ve started suffer after 5 yrs w loss of balance and my eyesight on right side is awful I go thru dabilitating headaches my last was 17 days long ugh it’s not everyday but I go blank hang in there pray n pray
1 Reply
Reply
ronk
Sep '16
its ptsd and the effects, i like the ideas here of researching meds and possibly discontinuing, less is more! I disagree with your dr very strongly- you will not get worse as he suggested, i am 7 yrs post gr5 sah w a 6 day coma and had to re-learn walking talking and even eating! Improvement is slow tho. You seem like an upbeat positive person that recognizes his faults and deficits and has the love in his heart to reconcile- thats step one. I would just apologize to the people you snapped on(if they didnt deserve it) of course. And go from there one step at a time. Dont be hard on yourself, you are an innocent victum of a horrible affliction and you are doing your best to deal with idiots, morons and meanies-lol tc hey im glad you are sharing with us, it will help you and us, win win! oh sorry editting, i just read your last entry! did you research the side effects too? some anti depressants actually have very negative effects on certain individuals, tc oh btw im so happy your wife is with you and able to work- you will be
1 Reply
1
Reply
4 MONTHS LATER
Dan
Feb '17
Update I have officially retired. About 4 years earlier than anticipated but, after my neurophysiology evaluation had decided to not try and work anymore, with the support of the physiologist and my wife. Retired disability and have applied for social Security disability. Had 26 yrs in and qualified for disability and after 4 months was approved. Still waiting for social Security. Couldn’t be better family wise and health wise. Taking less meds for anxiety and spend more time with my son . working with dr talking thru difficulties, and don’t feel like I’m letting myself or my family down. Moving forward not looking back and focusing on my health and my family. Still have issues but very little stress to add to them. I hope others have good days working thru any affects they have as survivors and caregivers.
3 Replies
4
Reply
ModSupport
Feb '17
Thanks for the uplifting update Dan 
Reply
Moltroub
Feb '17
Dan, the BAF had a blog from a disability lawyer. She had put in great things for how to get disability I think she was from PA or one of the Northern states. It took me four years to get approved. I think he call to my Senator really helped because my case was reviewed and accepted two weeks later. They only went back to my 55th birthday, not 53rd when I ruptured. Lawyer said my age and educational level hurt me in receiving SS. 55 seems to be a magic age.
Good luck!
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Questions & General Disscussion-Brain Aneurysms
Brain aneurysms are not easy to understand…so picture this:
a red balloon is like an aneurysm. A popped balloon is like a ruptured aneurysm.
Our goal at the Brain Aneurysm Foundation is to Stop the Pop !
For the Stop the Pop Campaign we need ambassadors like you in all fifty states to help us raise awareness and provide education on brain aneurysm.
The campaign has two goals:
- Make Stop the Pop go viral by sharing an image/video of a red balloon on social media and ask three friends to do the same.
- Have representation from all 50 states on Capitol Hill in March of 2020 at our Advocacy Day
Click here to join your state. Select your state team and join!
Start your awareness and fundraising journey now! And, remember, brain aneurysms are beatable and treatable!
If you are the top fundraiser in your state by 12/31/19, you will win a trip to our Advocacy Day on Capitol Hill in March, 2020*.
*you must raise a minimum of $1,500 to qualify
Questions & General Disscussion-Brain Aneurysms
Sep 2016
1 / 25
Sep 2016
Aug 2017
Dan
Sep '16
Has anyone else had issues a few years after rupture and coiling. Over the years have fought off depression and anxiety issues with medication but, lots of changes at work have caused these issues to creep back in. 4yrs after can’t continue at my job and don’t see how I could go anywhere else. My issues are have no patience with anybody or anything that slows down my process have yelled at coworkers when they interrupted my thinking process or got in the middle of me completing my work. I work with the public every day and couldn’t care less about their issues and drives me crazy.Have had to increase medication for depression and anxiety as well as insomnia. Couldn’t handle the extra stress and anxiety any more and walked off the job using sick leave and vacation hours to make it and filing for disability as my doctor feels these issues may not get better but infact may get worse as I get older.Have been off work a couple of weeks, and am able to decrease the amount of meds but still can get stressed out or have anxiety issues if get around any conflicts with people. Could be as simple as being around a few people that are disagreeing with each other and I have to get away from them quickly I have hyperacusis so any sudden loud noise sends me almost into a ball with my hands covering my ears.not really sure if I can do anything else to over come these in a work environment where I can’t get away from the triggers. Anything anyone can suggest to assist. If my disability is denied not sure what I will be able to do. Can’t throat punch everyone who causes my triggers and stay out of jail anyway
2
Reply
Sep '16
last reply
](Difficult coping with late effects of brain injury - #25 by Erica_Jensen)
Aug '17
replies
views
users
likes
-
4
3
Jill_Max
Sep '16
Hey, Dan! Obviously i don’t know much of anything surrounding your medical history, prescriptions,etc.
who is your family? Does the frustration occur in any other setting? Rather than depression/anxiety, my guess is that you are suffering from a Post Traumatic Stress Disorder. Thing is,
the medicine would be exactly the same; treating the symptoms. Whether or not you stay with this job, I would suggest finding a very good psychologist/psychiatrist with whom you could talk and get counseling in addition to Meds.
You’ve been through a traumatic experience. You have “Lost” some of your foundation to stand on and cope with any continuing stressors.
Living a “normal, active life” is best as much as possible. While work is causing so much stress and frustration, not working now, will only give you temporary resolve. SSDI is generally nowhere near your current income. A difference in income may soon cause stress, also.
Reply
Rugel
Sep '16
Hi Dan, First off I want to say thanks for sharing with us. For me asking for help, especially help with my feelings or behaviour, can be the hardest part. I hope we can help in some way. From your posting I have two initial ideas.
Firstly, is it possible that it is a medication side effect or a side effect caused by two or more meds interacting… A lot of meds have medium and long term effects that are quite surprising when you look them up. My pharmacist has been more helpful with these kinds of questions than my Doctor, but researching meds on the internet my self has been the most effective approach.
Secondly, I think that Jill Max has a good idea. Some professional counselling might help. I had not thought of PTSD in relation to our kinds of brain injures, but why not? I know my brain bleed was traumatic for me and I am sure yours had to be too.
I hope you find some help, here or elsewhere. Good luck and please keep us updated, we all benefit when a fellow survivor will share openly with us.
Reply
G_and_K
Sep '16
Definitely get a psyche eval for disability it helps tremendously. If you do get denied reapply right away and just keep pushing for your rights, maybe talk to an outside advocate for disability. Good luck!
1
Reply
Dan
Sep '16
Thank you for all who replied. Some very good advice. I checked up on the meds and they are doing what we want them too do. None should be countering the others. I do have an appointment with a neursycologist in a week, my doctor is thinking Ptsd as well and after this appointment I will look into councilors. All stress is from work related issues, public and coworkers. Am worried about financial issues as well but hoping my work disability retirement and social security disability will get me to at least 80% of what my income is now. My wife works full time and we will be covered by insurance from her employer, plus my wife is 100% behind me in the choice to get out of my working and being wiped out after work. Thank you for your thoughts and ideas to deal with this. After almost 4 yrs since brain bleed thought that would be over these issues. But maybe I should have accepted that I needed help a few years ago instead of pushing on by myself and I wouldn’t be having these issues now. Have been working so much around the house getting caught up on home maintenance issues is exhausting but no stress. I will post again as I progress hopefully withgood results. And again thank you for the advice.
Reply
Linda_Perrin
Sep '16
Took me almost 6 years but finally got it , they keep denying you , I’ve changed so much also , keep up the fight not a easy road
Reply
shelly_sizemore
Sep '16
I’ve started suffer after 5 yrs w loss of balance and my eyesight on right side is awful I go thru dabilitating headaches my last was 17 days long ugh it’s not everyday but I go blank hang in there pray n pray
1 Reply
Reply
ronk
Sep '16
its ptsd and the effects, i like the ideas here of researching meds and possibly discontinuing, less is more! I disagree with your dr very strongly- you will not get worse as he suggested, i am 7 yrs post gr5 sah w a 6 day coma and had to re-learn walking talking and even eating! Improvement is slow tho. You seem like an upbeat positive person that recognizes his faults and deficits and has the love in his heart to reconcile- thats step one. I would just apologize to the people you snapped on(if they didnt deserve it) of course. And go from there one step at a time. Dont be hard on yourself, you are an innocent victum of a horrible affliction and you are doing your best to deal with idiots, morons and meanies-lol tc hey im glad you are sharing with us, it will help you and us, win win! oh sorry editting, i just read your last entry! did you research the side effects too? some anti depressants actually have very negative effects on certain individuals, tc oh btw im so happy your wife is with you and able to work- you will be
1 Reply
1
Reply
4 MONTHS LATER
Dan
Feb '17
Update I have officially retired. About 4 years earlier than anticipated but, after my neurophysiology evaluation had decided to not try and work anymore, with the support of the physiologist and my wife. Retired disability and have applied for social Security disability. Had 26 yrs in and qualified for disability and after 4 months was approved. Still waiting for social Security. Couldn’t be better family wise and health wise. Taking less meds for anxiety and spend more time with my son . working with dr talking thru difficulties, and don’t feel like I’m letting myself or my family down. Moving forward not looking back and focusing on my health and my family. Still have issues but very little stress to add to them. I hope others have good days working thru any affects they have as survivors and caregivers.
3 Replies
4
Reply
ModSupport
Feb '17
Thanks for the uplifting update Dan
Reply
Moltroub
Feb '17
Dan, the BAF had a blog from a disability lawyer. She had put in great things for how to get disability I think she was from PA or one of the Northern states. It took me four years to get approved. I think he call to my Senator really helped because my case was reviewed and accepted two weeks later. They only went back to my 55th birthday, not 53rd when I ruptured. Lawyer said my age and educational level hurt me in receiving SS. 55 seems to be a magic age.
Good luck!
3
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