Hi All:
I had my coiling of an unruptured annie in Sept. of 2013. It is nearly two years later and I'm having multiple dizzy (fuzzy, 'off', floaty, giddy, woozy, wooly headed) - all words apply) episodes every day. They last 5 - 30 minutes each and I usually have to lie down until they pass because I feel off balance and like I'm going to faint. It is not vertigo - I've had that too & it's better now. I haven't been able to return to work. My disability insurance is reassessing my claim in March of 2016. I've had physiotherapy by a vestibular practitioner, seen a neurosurgeon, and ENT specialist, a family doctor, anyone they've asked me to see. They all don't know why I'm having these episodes so they can't fix them. They were not present before the surgery and now they are. Follow up MRI's show nothing conclusive and no leaks. The surgery took 2 hours longer than expected with no explanation. I don't know what went wrong, if anything, or if this is just my bad luck to have a bad recovery. My focus & concentration are also affected and if I look at the computer for more than an hour or so, I sometimes see black/white waves of distortion on the screen. My next doctor is a binocular vision specialist. The physio exercises provided small, temporary improvements, but nothing lasting. I am tired from all the appointments and the expense and having such unpredictable days. I am tired of fighting with the insurance company to believe me (even though all my physicians have been very supportive and seem to know what I'm going through). Is anyone in the same boat and have you been helped in ANY way? I am thankful to be alive and surviving, but I'd sure like to feel better. I would like to hear stories of recovery and also of commiseration and support. Thanks so much.
Hi - I’m 10 years post an aneuyrism clipping and to this day I have strange u explained symptoms… Pain, tingling , dizziness , fatigue , headaches, . All my follow up scans were clear too. I’ve been to several specialists like you and no one can explain why I’m having these symptoms. I think the unknown is more annoying to me than the symptoms itself! I’ve tried all types of meds and nothing has worked so I’m trying to tell myself this is my new normal. It’s so hard. Although my symptoms are different than yours I have a very similar experience !
Thanks for your reply - it makes me feel not so alone/weird. Yes, it is very frustrating, not knowing why it's happening or how to fix it. I keep looking for answers, but I'm getting weary.
Hi,
You mentioned that you do not know why your surgery took as long as it did. You can go to the hospital where the procedure was done and ask for the operating report, which will let you know what the surgeon did. It may not provide insight into your current problem, but at least you will know why the procedure took as long as it did.
I hope you find answers you are looking for.
Regards,
Michele
Hi Donna, I must tell you that Edwardo's response is right on the mark.
Thanks all.
Donna, I realize this sounds dumb… But I started having odd sensations on the right side of my brain. I ruptured on the left Nov 2013. The new PA thinks it’s fluid build up and suggested a course of treatment for a week to dry it up,and then to see the PCP if it doesn’t. I share this because we all think jeesh, another brain issue, when it could be something unrelated.
Another thought - when you’re having these episodes, are you taking your pulse and blood pressure?
And this might be my mantra - stay hydrated and get enough protein. Keep us posted on how it goes, hope it improves.
Brain Fatigue. I have the same issue's when what I now know happen's when i'm overwelmned by doing too much or having to remember so many things that need to get done. Can be very debilitating to say the least. I explain this to my Primary Dr. often.
I am on meds for high blood pressure and get checked frequently. My doctor is very supportive - just frustrating that there are no solutions or understanding of why this is happening.
Donna..,
I have done a lot of research...I was coiled and am not a believer in it..tho it is each individual's selection/decision based on what has been explained to them by the docs for their decision...
Recently, I have found a website...TeachMeAnatomy by an Oliver Jones in the UK...He has the disclaimer, his copyright, and privacy pages...
Anatomically...it is fantastic...any member may want to pursue anatomy...the ones so relating to our areas of treatment are: the Middle Cranial Fossa...(same/somewhat like...the medial temporal lobe aka limbic system)... and, then the Anterior Cranial Fossa and the Posterior Cranial Fossa...
Additionally, I learned so much more about the Cerebellum...that 'blob' of tissue at the base of our brain behind the brain stem...the other to research is the brain stem...and the cranial nerves...
For searching other anatomy sites...for comparison...(of easy to read/comprehend) put in:
human anatomy; Cranial fossa, human anatomy and physiology; anatomy sites - med students...
These diff search terms (and, likely much more) ...each has tremendous websites to view/review...
Another site is: The Worlds of David Darling...and pursue whichever parts of the brain..
So far for me... the easiest to read/comprehend is the TeachMeAnatomy...
I am a tremendously slow reader...my first neuropsych testing...90 days post-discharge...my reading ability ranged from 2 years to 13.8 years... after the two f/u angios/specifics...I had my SS Disability
extensive testing...placed on disability w/no further questions...However, he was specific about 'she could be angry...but watching her under the testing...dedicated...' etc etc...
Recently I talked to my psychologist about 'reading comprehension' in our parietal lobe...close proximity to both the temporal lobe and the occipital lobe...and, was told yes...and, they test for it..(but I have forgotten already if she told me which test)...the other more techie term for reading comprehension is "parieto-occipital"... (sp?)
I will stop my chapters...here...
Except...my recommendation to view the TeachMeAnatomy...after viewing the first parts...take on other terms/words...and or tell us about some of the other sites...
Wishing you best....and, for sharing any results for you...
Hi I have been having same thing and no one can figure it out and looking for the same answers I do have syncope from the surgery
Michele...and Donna and All...
You can request, via signing a request form (pull that up on the facility's website)...to secure your records...IF your request is for more than the 'story format' ethos...you likely/presumably, will need to request all the records for the backup support of the stories...aka the maintained written records... and your ability to rely on your state department/tax-salaried employees...and state records requirements...
Michele...you note that "you did not know why your surgery took as long as it did"...
My angio was stopped abpruptly...after several issues...2 hours later...a CT w/o contrast dye was done...then placed under coronary care...and two days later...back under "coil embolization" ...
Billing during the abrupt stoppage of the first angio...was by an MD-pathologist...who billed he time under ICD 799.9...morbidity and mortality...If nothing else...the team work is magnificently corporately profitable...and, the hellth insurance companies/audit "complications" codes...
Codes...are one 'subject' ....I want/plan to add to the "resources" section of this site...and, because a major one (diagnostics) was/has been planning to change from ICD 9 to ICD 10...this 10/01/15 date...
I am avoiding 3 chapters here...as each step...is a huge...and slow...step...
Warm regards to all...as each step is a long step for many of us...
Michele said:
Hi,
You mentioned that you do not know why your surgery took as long as it did. You can go to the hospital where the procedure was done and ask for the operating report, which will let you know what the surgeon did. It may not provide insight into your current problem, but at least you will know why the procedure took as long as it did.
I hope you find answers you are looking for.
Regards,
Michele