This is my first post, so thank you for reading it! It’s 5 months since I had Bob (the blob) diagnosed and stented, and 5 weeks since I had a flow diverter and coils inserted. Bob was an unruptured giant, at 30mm, and was discovered after I started getting double vision and mild headaches. Since coiling I have ferocious, relentless headaches, which I hadn’t expected. It’s all very frightening and I’m becoming an emotional wreck.
The headaches vary. Sometimes it feels as though something is chewing the inside of my head; sometimes it’s as though that part of my brain is being wrung out like a cloth; other times I feel as though I’ve been kicked in the head; there are times I feel as though my head is in a vice; meanwhile, there is a permanent ache that simply doesn’t lift at all. The latest pain is behind my eye, which feels as though a sticking plaster is being repeatedly pulled off it. On top of this I feel fatigued, nauseous and lacking in energy (a bit like having an ongoing hangover) and I feel as though my health and well-being is declining rather than improving. Until my diagnosis I was very active, fit and healthy, but now I’m piling on the pounds and feeling very unwell.
I apologise for making this sound like one long complaint. I don’t mean it to be! I wasn’t expecting these symptoms and I really want to be able to manage my expectations. So if any of you lovely people can advise me about what I should be expecting as I recover I would be so grateful.