Don't know where to turn

i had an aneurysm in 2014. it was a bleed in the circle of willis communicator artery. after two brain surgeries i have a coil and permanent shunt now. it took a year to recover. the second year i was only able to work 3 days a week but still having to call in sick most of those days. i’ve always had headaches since but controlled with meds. about 5 months ago i got a bad cold, type B influenza and bronchitis all with in 2 weeks. the couch was so bad the left side of my larynx is now parallelized. during all of this my blood pressure started to rise and my head pain is off the charts non stop. i have nausea, dizziness, confusion, shaking, dripping cold sweats and it won’t go away and my meds hardly help. it will mellow out for a bit then it comes right back. i’ve been to the ER twice, i’ve had 3 mri/ct scans, seen my neurosurgeon, adjusted my shunt, seen my reg doc, my pain management lung, ear nose and throat specialist and will be seeing a neurologist/headache specialist on the 20th. and nobody can find anything physically wrong. the pain is so bad 75% of the time all i can do is sit with my head in my hands and rock back and forth.
i don’t know what to do or who to turn to for some answers. is this just the new me? or as they call it, “my new normal”? if so why did it all get so crazy 5 months ago after being so ill?
it’s effected my anxiety and panic attacks, my relationships, my ability to work, bathe, sleep and just live.
has anyone gone through this too?

I am so sorry to hear you are in so much pain. I cannot imagine what you are going thru. Im one year today from my annie accident and findings, but nothing like what you described. Im so sorry :pensive: