Can anyone share their recovery experience?

I find myself worrying so much about what it will be like after surgery. I keep envisioning what I'll look like, whether my eye will be open or shut, if I can see, what the incision will look like, how much pain and discomfort, on and on and on. Can anyone share their feelings?

we need a updated shot- I bet it looks great!! they did a fine job!

My annie was an emergency basis. I had no clue what was happeneing to me. My body was going through trama! Afterward I recovered and went through rehab to learn to walk again without dragging my left foot, I'm left without left prefrial vision in both eyes, so I no longer drive. I never had a seizure. I was on phenibarbitol. It made me think and do things very slowly. But after 8 months, I was taken off after a scan and test showed no seizure activity. It's been 10 years. I'll never be the same as I was, (a comment my oldest daughter made by my bedside in ICU), but I'm alive and thriving and I count my blessings every day! I'm much better off that another lady in my rehab group who had a regular stroke!

I never let anyone take pictures of my scar. it's straight from the center of my right side down to my ear. My long hair now covers it. The only people who notice, are the ladies who do my hair. I wore a hat one day while in Rehab and I got to visit my kids at home. I sat on the sofa with my little boy on my lap and took off my hat. He looked at my scar, and said "ooohhh Momma, put your hat back on!" It was scary for my babies! :(

What kind of sergery are you having? Coil, Clip, somthing else?

Here is a before/after (1 year). I’m an exception to the basic annie surgery but I have had no major side affects - o ky shirt term memory loss but that too is getting better & better. God Bless!

Hi Tony,

I am having 3 clipped.

Tony Perricone said:

What kind of sergery are you having? Coil, Clip, somthing else?

i agree surgeons are brilliant but there is always a risk my brother had second coiling and during this he suffered a stroke and went into status epileptus this continued for 2 weeks whilst on life support, along with the previous damage from subarachnoid hemorrhage 2 years previous he has been left with no speech , fed by a tube and an inflated Trachey and epilepsy needing specialist 24 hour care

those small risks can happen and decisions should be really thought out

After my major cerebral bleed...my operation went on for eight hours, and it removed my AVM the old fashioned way...

but how would I be Post-Operation?

At first I had amnesia and slowly came out of it the next two or three weeks in the hospital.

There were problems with speech and also walking, but my eyes were not effected hardly

at all. I was back home by two months post operation and back to work part time at about the

five month mark and back to full time by about the eight month mark. Back to driving my car

a year and a half after operation. Back to normal totally by about the five year mark.

There are good things that came out of all of this to me anyway. I am a person with more compassion

for the ill, more faith in the Deity, happier, and better adjusted than I used to be. Am glad in many

ways that I went through it.

It does get better, and I did survive it and so can you. This is it in a nutshell.

Mine was done 12 years ago, through the groin right the way to my brain. When I first woke up thought I’d had a stroke, my speech was all over the place, my sight blurred but within days started to think positive, picked on ‘The Lords Prayer’ to recite and day by day started to remember till I got to the end. So positive thinking, talking out loud and believing that you survived you’ll be fine. Hugs and love from UK xx