A Letter From Your Brain

Just a little something to help us remember where we've been and where we have yet to go. I read this letter many times a day. I wish I knew who authored it, I would give them a big hug for putting into this letter, what I feel.

God Bless us all in our journey.

Best Wishes,

Linda

Author Unknown:

A Letter From Your Brain

Hello,

I'm glad to see that you are awake! This is your brain talking. I had to find some way to communicate with you. I feel like I barely survived WWIII and am still not quite all in one piece. That's why I need you. I need you to take care of me.

As time passes and you and I feel better and better, people, even doctors, will tell you that we are fine, "it's time to get on with life." That sounds good to me and probably even better to you. But before you go rushing back out into that big wide world, I need you to listen to me, really listen. Don't shut me out. Don't tune me out. When I'm getting into trouble I'll need your help more than I ever have before.

I know that you want to believe that we are going to be the same. I'll do my best to make that happen. The problem is that too many people in our situation get impatient and try to rush the healing process; or when their brains can't fully recover they deny it and, instead of adapting, they force their brains to function in ways they are no longer able too. Some people even push their brains until they seize, and worse... I'm scared. I'm afraid that you will do that to me. If you don't accept me I am lost. We both will be lost.

How can I tell you how much I need you now? I need you to accept me as I am today... not for what I used to be, or what I might be in the future. So many people are so busy looking at what their brains used to do, as if past accomplishments were a magical yardstick to measure present success or failures, that they fail to see how far their brains have come. It's as if here is shame, or guilt, in being injured. Silly, huh?

Please don't be embarrassed or feel guilt, or shame, because of me. We are okay. We have made it this far. If you work with me we can make it even further. I can't say how far. I won't make any false promises. I can only promise you this, that I will do my best.

What I need you to do is this: because neither of us knows how badly I've been hurt (things are still a little foggy for me), or how much I will recover, or how quickly, please go s-l-o-w-l-y when you start back trying to resume your life. If I give you a headache, or make you sick to your stomach, or make you unusually irritable, or confused, or disoriented, or afraid, or make you feel that you are overdoing it, I'm trying to get your attention in the only way I can. Stop and listen to me.

I get exhausted easily since being hurt, and cannot succeed when overworked. I want to succeed as much as you do. I want to be as well as I can be, but I need to do it at a different pace than I could before I got hurt. Help me to help us by paying attention and heeding the messages I send to you.

I will do my part to do my very best to get us back on our feet. I am a little worried though that if I am not exactly the same... you will reject me and may even want to kill us. Other people have wanted to kill their brains, and some people have succeeded. I don't want to die, and I don't want you to die.

I want us to live, and breath and be, even if being is not the same as it was. Different may be better. It may be harder too, but I don't want you to give up. Don't give up on me. Don't give up on yourself. Our time here isn't through yet. There are things that I want to do and I want to try, even if trying has to be done in a different way. It isn't easy. I have to work very hard, much harder, and I know that you do too. I see people scoff, and misunderstand. I don't care. What I do care about is that you understand how hard I am working and how much I want to be as good as I can be, but I need you to take good care of us, as well as you can do that.

Don't be ashamed of me. We are alive. We are still here. I want the chance to try to show you what we are made of. I want to show you the things that are really important in life. We have been given another chance to be better, to learn what is really important. When it is finally time for our final exit I would like to look back and feel good about what we made of us and out of everything that made up our life, including this injury. I cannot do it without you. I cannot do it if you hate me for the way being injured has affected me and our life together. Please try not to be bitter in grief. That would crush me.

Please don't reject me. There is little I can do without you, without your determination to not give up. Take good care of us and of yourself. I need you very much, especially now.

Love,

your wounded brain

Linda...this is wonderful to read...Thank~you for sharing...

We are lucky to have you here at BAF...!

Have a beautiful evening friend...Colleen

Beautiful!!!

looovvveee it! thanks for sharing hunny

Linda, thank you for providing this; I have read it before and the reminder is excellent.

Pat

thanks for sharing, i have never read that before. gina

Hi Linda, thank you very much for this.
I feel every day with this, I’m a survivor …I have a direct line with my brain.
Take care of you.
Giovanni

I know it’s so good.

Colleen, you fill my heart friend... This letter has gotten me through many a tough day. We are luck to have each other, me, you, BAF and our entire family at BAF support.

Best wishes my dear friend,

Linda

Thanks!!

I love it too Michelle, you are quite welcome!!!

Yes Pat, it always helps me put my new life into perspective!!

GIna, Keep this close for times when you really need it... it helps!!

Linda

Hi Giovanni,

I feel this too, many times a day! I want to scream at the top of my voice, I am a survivor!!!

Best wishes,

Linda

It is Laurie, it's my life line on somedays!!

Thanks for the reminder Linda to post by my new desk at work..I shared this with many of my co-workers and it helps them understand how the recovery works.

Karen

Yes Karen you are so right!! If more people understood what a survivor of a brain annie goes through, maybe it would make our healing that much easier. I keep this letter close and read it when I need it. It has helped tremendously!

Linda

xxxxx

bravo,that really lays it on the line,thanks,Linda-tried to read this before but reading bothered my eyes &brain i guess-ican read better now & i comprehend better,glad i re-visited-ron