I wanted to start a new topic regarding anyone’s experience with “leaking” aneurysms.
By this I do not mean a leaking repaired aneurysm, I mean any experience with an aneurysm that might have been in their head a long time.
I believe that my aneurysm was the result of a surfing accident I had in 1985. My aneurysm was discovered by the first MRI I ever had in 2022. So I am talking about an aneurysm that was in my head for 37 years!
None of my friend or acquaintances believe me that it could have been in my head that long.
However, my neurosurgeon did say that “it did look like it had been in their quite a while.” Because it the angiogram indicated that there were parts of it that had “scabbed over.” (there were “masses” beyond the area where the dye contrast was flowing).
The first 12 years after the surfing accident I was in an intense, inexplicable pain .
My aneurysm was in the left side of my anterior posterior cerebellar artery, but the pain was in the right side of my neck.
I could never get a diagnosis for this right side neck pain. Not in 37 years . . . .
After doing a lot of recent reading about aneurysms, my thinking is that aneurysm GROWTH and leaking DISPLACE CEREBRAL SPINAL FLUID and push the fluid out of the meninges. That flow caused pain.
See the following links for information:
- Meninges: What They Are & Function
- Meninges, Ventricles, CSF and brain blood supply | Kenhub
- Spinal CSF Leak Foundation - Home - Spinal CSF Leak Foundation
- Low CSF Headache | Johns Hopkins Medicine
- CSF leak (Cerebrospinal fluid leak) - Symptoms and causes - Mayo Clinic
If you think about it an aneurysm is a bulge, and a bulge takes up volume. There is not a lot of space in side the skull: if something starts taking up space, something else must get displaced.
I am thinking in the early years my aneurysm was leaking and growing and this led to some chronic displacement and re-balancing of cerebral spinal fluid pressure in my head.
In the first four years after my accident I did have two seizures which no one could find the cause of and I always felt something happened. I was just wondering if anyone else had experience with anything like this.