Since my repair on 10/2/2020, actually the day after, when I woke up my feet were numb. Since then I have had Cerebral spinal fluid leak out of my right eye just below where they put the plate in after the repair, for numbness has moved up both legs bilaterally all the way to my knees to the point where I can barely walk unless I watch my feet move. I was re-hospitalized on 11/22/ 2020 and just got out of the hospital a few days ago. While I was there they did an electro stimulus exam where they stick 22 gauge needles all over your lower body connected to electricity and check to see what your reaction is both of my legs below my knees did not react. During my whole stay at the hospital my surgeon did not come and visit me or weigh in on anything that was occurring, that was his stance and behavior even though I complained of the numbness in the fluid for a month and a half, no answer no comments from him.
The neurological team then decided to try a treatment called plasma pheresis. It was a five treatment That lasted three hours a treatment. They would do it one day and then give me a day off because it makes you feel like junk after they do it basically they’re separating the blood in the plasma and then giving you human albumin with hopes that it regenerates the myelin layer around your nerve endings.
So far there have been no improvements and I have numbness in the areas that I’m embarrassed to talk about. My neurosurgeon did not come and visit me during my last stent in the hospital it was well over 20 days and we unfortunately had to report him because the neurologist I met at the hospital said he thinks there was something wrong with my surgery.
I know things could be a lot worse and I saw my mother with her ruptured aneurysm and what it’s done to her so I am very grateful that I’m still able to walk and live somewhat of a normal life even though I am unable to work until all of this gets worked out.
I guess what I’m asking for from all of you or if there are any other medical doctors watching our posts so please let me know if this is normal or if I need to look into other aspects of my health. My blood counts and all my labs came back normal even after they did a spinal tap that showed that it had proteins in it which was abnormal apparently.
Again I don’t want to complain but I’m just looking for answers I look at all of you as a family as we share something very sacred and I’m looking for any type of answer or thought or process or prayer as always I’m grateful to be here and I think all of you for always supporting me I will get back to all the emails I missed but I’ve been in the hospital for a long time I think we counted but I’ve been home for four weeks since June. Thank you everyone.
Much Care and love,