Continued numbness on one side of the body

I had 2 ruptured aneurisms in January. I had no headache, other than what I thought was a sinus headache. I was seeking help for an L1 ruptured disc, so I was at the ER when I suffered my largest aneurism, which was undetected even though I lost all feeling on the right side of my body. I was dismissed. Several days later I saw my ortho surgeon who sent me for an MRI which showed the brain bleeds. I was immediately sent to a major neurological hospital. My bleeds were starting to heal, so I did not require any coiling procedures. Four months later I am home recovering, but I will most likely not recover feeling on my right side. The doctors cannot find out why I had these aneurisms, nor can they do anything for correction/prevention. One bleed was right in the middle of my brain, which is very unusual. The hardest part is dealing with the numbness.

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Hi, sorry you have to go through this. I have no answers but just want to share that what I find challenging as well is to know that there are many things not even doctors know.
Big hug and I wish you all the best!
Iris

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Thank you for posting @Caity and welcome again! I’ve only read one other member, maybe two, saying their aneurysm healed without intervention. I think they were also somewhere here in the South. It’s pretty common for neurosurgeons to say they don’t know how someone develops an aneurysm. There are many theories - genetics as observed with multiple members in a family lineage, trauma to the head (I’ve had a few serious knocks to my noggin in my younger days), born with them, and the usual things the medical community likes to quote - drinking, obesity, smoking, high blood pressure, etc. (these last lifestyle choices don’t seem to hold water here as many, many members don’t smoke, drink excessively etc)

I’m surprised to read that the ER Doc didn’t due a CT scan when you lost feeling. Did they do the B.E.F.A.S.T. test for strokes? Our small local ERs always does the BEFAST then the CT it seems just to rule out a stroke of either type. I don’t know if your close enough to Jackson to see someone at UMC but it might be worth a try. If you have BCBS, I don’t think they accept it anymore. Perhaps they can give you more answers to why your numb on one side. Wishing you all the best!

The whole situation with me is unusual. I am a healthy 66 year old woman with no blood pressure or other medical issues, I am normal weight and do not smoke. I drink socially.

The medical care here on the MS gulf coast is not great. One ER gave me a pain injection for my back and told me they couldn’t diagnose me. I went to a different ER where, after 8 hours, they did a CT scan (of my back) and saw where I had some back issues. After developing the numbness I informed them only to be told that the morphine probably made me feel that way. Then I was dismissed.

I was treated at USA Health in Mobile, AL. I see the surgeon again in one month, but I think I will most likely be discharged. I was told the bleeding damaged my nerves and it may, or may not, heal.

My cousin and her husband live in Mobile. She had to drive her husband up to UAB for his eyesight, everyone they saw around Mobile said he was going blind, nothing could be done about it. UAB straightened him out and at 67, he’s back to building bridges.

You can call UAB or even Auburn (don’t tell BH I suggested them lol) and ask for a second opinion. Heck, you can even reach out to Duke up here in NC, Emory in GA (we have friends in Gulf Shores and he still goes to Emory for his brain issues.) You would just need your medical records to be sent to them and figure out which one you can get to.

I know from personal experience, the two nerves I almost completely severed healed eventually (years). With my rupture the damage was vast. My Neurosurgeon over at WFBH in Winston Salem didn’t think I would come as far as I have. But my brain has been able to reroute the messengers (neural transmitters) it’s a long, slow process. The Cerebral Spinal Fluid (CSF) was mixed with a lot of blood and was quite painful, especially for my neck as I recall. Though the pain wasn’t anywhere near the level of the thunderclap headache. It’s become rather amusing and difficult for me when medical specialists ask me to rate my pain now.

Just curious, but do you remember the size of your aneurysms and the location (which artery, are they in the Circle of Willis?) if you don’t mind my asking…if you do there may be other members with the same location that can share what their doctors have done.

Have your doctors suggested anything you can try to get full feeling back? Even though the side is numb, are you still able to use it?

I’ve moved your topic to General in hopes more members will read it.

I see my surgeon in 3 weeks, so I hope to get more information then. When I do I will post it. I am able to use my body although it is numb. I do have feeling, but it’s hard to explain it. I can tell when someone touches me, but the feeling is very difficult. Almost like I am carrying a dead arm or leg with me. Thank you for the response, and I will give out more info as I get it.

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Hi Caity. My name is Kim. My husband, Dan, had a SAH which ruptured, 3(almost 4 )months ago. Since returning home from acute inpatient rehab he has shared that his feet and hands are numb. The other day after his OT consult, we almost immediately were off to the ER because he woke up with numbness on the right side of his face. He wanted to shrug it off and I did my best to keep from going down the Google rabbit hole. I insisted we go, called my pup sitter back, and we spent the next 5 hours mostly waiting. They did a CT scan, which showed there was nothing. They wanted to keep him overnight for observation, but he wasn’t having it. As he possesses his cognitive faculties, I respected his choice but made him swear on a stack of Bibles to tell me immediately if anything changed. He did and we came home. After a few hours of relaxation and decompression, he said it no longer felt as numb. We have a PT eval on Tuesday and I am dncouraging him to tell his PT person. Also, a Neurosurgery follow up in a few weeks, where it will come up again. I just wish we were told this was a possibility before coming home and discovering it so abruptly.

I don’t know if my babbling helped,but I do wish you all the best and please keep us posted!

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Thank you for posting and welcome again! Trips to the ER were abundant after I ruptured and lots of calls to the Triage RNs at the Neurosurgeon’s until I learned about the patient portal :joy:

You are truly a remarkable caregiver. For a caregiver to allow us a sense of independence amongst all the rules we have to follow after SAH is fantastic and I can’t tell you how important it is.

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A post was split to a new topic: A Caregiver’s Journey