Anyone else have seizures post craniotomy? I’ve been put on meds for them. Still having them in my sleep, have an appt with a specialist on the third. It’s my understanding that we won’t know if they are permanent for about 6 months when they wean me off the meds and if they continue I will be on seizure meds permanently. Anyone else?
Mom,
My wife was on Dilantin for almost one year when she expressed to her Doctor that she would like to discontinue it. Prior to discontinuation she had to successfully pass a EEG brain wave test which she did and was then allowed to be weaned off them. She never had a seizure during that time but may have had one about three years ago as she had a stunned look on her face for about 15 seconds. She knew it and I knew something seemed wrong but whether it was a seizure or not we'll never know but that appeared to be the only time that she ever came close. At some point later down the road you may be able to discontinue but give your neurons a chance to recover.
Ed
Thank you
Momof6..darlings...
I have no known seizures...as there are the various forms/structures...Because of some issues I do have, have had...I have done some (bits and pieces at a time)...can only suggest you may want to search online: seizures anatomy and physiology...
Track from your symptoms...known/identified symptoms...and, add any you have sensed...not yet addressed with you...to ask about them ...
Please keep us informed...hope you have had a grand Thanksgiving ...and, our first steps into the holiday season...
I had clipping surgery April 23, 2014 and just found out this past month that I have been having seizures. I had a 48 hour EEG that did show seizure activity so now the doctor has me on anti seizure medicine. I wish you the best because I did not have any seizure activity after surgery until now.
I had clipping surgery July 16, 2013. One year later I had a seizure that lasted 6 days. I was in ICU with a breathing tube and while they tried to break the seizure. Finally they found the right combination of meds to stop it. I was put on Keppra - 3000 mg per day. Three months later my neuro doctor lowered my dosage to 2250 per day and 9 days later I had another seizure that was difficult to break, but was broken in 1 day. This has happened 2 more times until finally I was put back on the Keppra 3000mg and I have been fine since. I do not have convulsions, I just stare off into space. From what my husband says, I can walk and follow commands. When its over, I can recall bits and pieces of what took place.
I was told the seizures could be from scar tissue that built up from the craniotomy. To be safe, the docs are keeping me on the seizure meds.