My mom just had her 6 mth angio check up from the coiling procedure that was done. It was not the best news, the Dr said he was only able to coil about 70% of her anny, that there is still 30% left. He suggested another surgery to finish it. Has anyone had this happen? Is it riskier going in again? She is set to go back in January 5th, here we go again with bruises all over her from the meds and more hair loss from the procedure.
Hi, I am dealing with this same issue. There is still 20% untreated Annie and they told me it would be more dangerous to try to repair, because you can't re-coil. The Dr. said they will watch it to make sure it doesn't grow. Craniotomy is the only option if that were to happen. Good luck get a second opinion.
Sorry to hear about your mom having to go back in for more procedures.
I have 32 coils in my head and am always concerned about the coils compressing.
I wish your Mom all of the luck and a speedy recovery. Please keep your support team up to date. We are here for you.
Dancer
I had the 12 coils put in may of this year. An angiogram in august revealed that the coils clustered together …leaving a gap. The new surgeon wanted to do a pipeline surgery…but on Oct 13 when he was doing the surgery saw the aneursym had actually grown so he was forced to close off part of the artery…causing Me a stroke but saving my life
Hi Em. I find this to be unusual, I had 2 coiled and stented at the same time last year, normally they coil the Aneurysm and then close the opening/mouth with a stent!
Mines were completely packed and the aneurysms were completely occluded as shown by recent scans.
Have they given you a reason as to why this has happened?
I suggest a long chat with the endovascular surgeon is called for.
Regards
Martinc
so very sorry to hear about your mom.
I had a coiling first and through my yearly checkup, I found out that my annie was growing and the coil was compressing had another surgery where a stent was put in (craniotomy) everything went well a longer recovery, hair never grew back (but who cares, I have my life)
Goog luck to your and your mom
Hi.
I ruptured in Jan. 2013 - Had stent assisted embolization (coiling). Then, a month later, or a week after my 2 week follow-up from my procedure(hospital stay) I went back to the E.R because my neck/shoulders got super painfully and suddenly stiff- turns out- my anni had rebled. The surgeon put more coils into the anni and I stayed another 10days in ICU, 1 day in a reg. room. My 6 month f/u from that also told me I was still at risk of regrowth/rupture. Surgeon out in as many coils he could at the time w/o them falling out-
I have a LArge ( approx 2cm) vertebrobasilar wide neck aneurysm. Long story short, my next option was to get the PED stent- was sent to a well known hopstial/surgeon. He aslo agreed I need this procedure-" its my best option for a long term cure".. went in for the procedure Nov. 2013 But it wasnt successful. Next step was to go for a cerebral bypass. That didnt go well either(june 2014) So, this time they (Oct 2014) they attempted and succeeded. I had the PED stent placed successfully. ( I now have two stents- neuroform, and PED) he put more coils into the aneurysm and also closed off my right vertebral artery. Back in Nov, when I went for the PED, I had hairloss from the radiation(fluroscopy) hair totally fell out in one spot. It happened again after this procedure but this time a lot more hair -bigger bald spot BUT at least this time I wasnt as surprised and shocked by it as the first time AND at least my hair that I do still have is able to cover it. (just sucks to have my hair start growing back, and then falling out again- plus the otherside is where they had to shave it for the bypass surgery is slowly grwoing back- so my hair is def. not as thick as it used to be)
...
My coils had moved up into my aneurysm, and lucky I havent had another (3rd rupture) in between all of this. I was glad they were able to put in more coils, because intially after my first 6 month f/u angio my surgeon said he didnt think he could put more in...its why also suggested the new stent -
I just had an MRI andMRA yesterday- a month post procedure check. Im anxious to hear the results- if the anni is starting to thrombose, how the artery is doing w/ the two stents..if I still need to be on PLavix ( Im on 325mg aspirin and 75 mg PLavix) before, because of my first stent I have it was baby aspirin 81 mg for life... new procedure- new stent- higher doses for now.
Agree. I would be talking to doc and possibly finding a new one
Can you ask to have it clipped? I know its more invasive but its permanent once done. I had my ruptured Basilar aneurysm clipped in 2011. I have read a lot about the coiling process and I dont think they have perfected it yet. I keep seeing people going back after coiling to have something done at a later date.
Just my 2 cents.
My mother (78 years old) had a ruptured aneurysm in April 2013 that was coiled in an emergency procedure to save her life (Vidant Medical Center, Greenville NC). She had many ups and downs on the way to recovery and we finally had her move up here to New England. In July 2014 she had an MRI followed by angiogram at Tufts Medical Center in Boston. It showed that the coils had compressed and were no longer filling the whole aneurysm. Had the aneurysm grown? Were too few coils used in the initial procedure? Impossible to tell. The doctor recommended re-coiling with hydrogel embolic coils (really interesting technology). Mom had the procedure done and tolerated it very well, getting out of the hospital after only two nights. She is doing very well now. I am glad we had the MRI and angiogram done and discovered the issue. There was no question about whether or not to address it (at least for us, after seeing what she went through with the initial rupture and bleed). I hope things work out for your Mom like they did for mine.
The way my neuro explained it to me, is that the coiling can compress ~ the 6 month check-up checks for that. If it does compress, he would just add more coiling. No one wants to go through it again, but it is necessary to keep you safe. I think just having your neuro explain more to you would make you feel better. Sounds like you didn't get enough information and now have a lot of questions. My neuro was available by email all the time and I asked a lot of questions. He would respond almost immediately. If all doctors would do that, it would save a lot of worry. I wish you the best. Try to stay on the positive side and I know that is hard to do. When I find my worrying, I say a prayer. That is how I get through it.
Great point Sam...
my new surgeon is avail. through email as well.
answers my questions almost immediately too
First one, (the one I went to twice because I ruptured), was the Least informative. thankful I found BAF for more answers- it was all so new to me.
Agree- try to stay positive. Worry and stress is hard on our bodies and mind!!!
Sam said:
The way my neuro explained it to me, is that the coiling can compress ~ the 6 month check-up checks for that. If it does compress, he would just add more coiling. No one wants to go through it again, but it is necessary to keep you safe. I think just having your neuro explain more to you would make you feel better. Sounds like you didn't get enough information and now have a lot of questions. My neuro was available by email all the time and I asked a lot of questions. He would respond almost immediately. If all doctors would do that, it would save a lot of worry. I wish you the best. Try to stay on the positive side and I know that is hard to do. When I find my worrying, I say a prayer. That is how I get through it.
After intial stent and coil procedures in 2007 on giant wide neck aneurysm, 6 month angio, showed that coils were compacted and additional coils were needed. My surgeon said for my case that up to 20% chance of recurrence Since then I have had two recoils procedures. In In April 2014, aneurysm grew again, surgeon was unable install the pipeline stent an instead we opted for occlusion of the artery. After six month follow-up last week, all is solid and safe.
So while each of us is different, it is not uncommon for the additional work to be needed. Many people do not not have recurrence. Based on the size, configuration and location of your Mom's aneurysm, ask the doctor how likely it is for a recurrence of your Mom's condition.
Awesome news denise!!!!
Yes, I too have a complex aneurysm. Its been a long road- and Im hoping my anni will done causing me potential problems in the future!!
I am so lucky and thankful I have had no neuro deficits despite my two ruptures and the procedures Ive had thus far
Denise Boyle said:
After intial stent and coil procedures in 2007 on giant wide neck aneurysm, 6 month angio, showed that coils were compacted and additional coils were needed. My surgeon said for case that upto 20% chance of recurrence Since then I have had two recoils procedures. In In April 2014, aneurysm grew again, surgeon was unable install the pipeline stent an instead we opted for occlusion of the artery. After six month follow-up last week, all is solid and safe.
So while each of us is different, it is not uncommon for the additional work to be needed. Many people do not not have recurrence. Based on the size, configuration and location of your Mom's aneurysm, ask the doctor how likely it is for a recurrence of your Mom's condition.
Hi - I would have a second (and even third) surgeon at another hospital look at your mom’s reports and scans. Not sure where you live but the best hospitals for neuro are: Hopkins, Mayo, Cleveland Clinic, Mass General, Columbia Presbyterian, NYU, Cedars Sinai. Ask if another coiling or a clipping instead is the best next step. It will depend on your mom’s age and lots of other factors. Proceed quickly but make sure you both feel comfortable with next steps recommended. Best wishes to you!!
My six month coiling checkup showed no movement, but my surgeon warned me not to be surprised if I would need coil added. It’s unfortunate your mom’s surgeon didn’t tell you that needing more coil is common. Best of luck!
Interesting that some MDs encourage communication, even by email. I'm lucky to get 3 minutes with my neurosurgeon who seems afraid to say much, even tho I have 3 A's. I am avoiding coiling as long as I can, given all the complications. May seek a second opinion.
I’ve heard about aneurysm needing more coiling. I has the PED done but it is normal.
Sorry to hear about your Mom, hope she will be ok. I just had two clipped because I was afraid of the rebleeding possibility from coiling and one of mine was very deep on the Y on the MCA. I had open crainiotomy and it was successful, they say that the best way to take care of them is to clip them. Praying mine stays in place and for a bright, normal future. Am two weeks out from the surgery an just had the staples removed yesterday. It is an adjustment but I am feeling good and recovering at home. I am 62 and was concerned about length of time under anesthesia but if I have to go back would still opt to clip rather than coil...praying for you both, good luck...
Janice Gams said:
Interesting that some MDs encourage communication, even by email. I'm lucky to get 3 minutes with my neurosurgeon who seems afraid to say much, even tho I have 3 A's. I am avoiding coiling as long as I can, given all the complications. May seek a second opinion.