Hello everyone,
My mother (53 years old) was diagnosed with Giant aneurysm located in the frontier section distorting the optic nerve. She complained of vision loss in her left eye for over 2 years and only when she started complaining about the right eye, we got the MRI scan done. She underwent the coiling procedure almost a month ago but experienced vision loss immediately after the procedure. Now her left eye vision is completely nil and right eye she has only about 20 % left. She is complaining of extreme tiredness. Praying for her eyesight , at least to an extent where she can manage to do basic things.
Please do share your thoughts.
Thanks,
Sharath
Hi Sharath and again Welcome to BAF ~
Your mom is early in the healing journey to know what will be here "new normal"...considering her eyesight...What have the Doctor's told you about her getting her eyesight back?
Gotcha both in my Thoughts ~ Colleen
Hi Colleen, Thanks so much for your thoughts. Doctor did tell us regarding the eye sight and its a slow process, which would take up to 3 months time for any improvement. At least if she could manage to get back whatever she had before the procedure would be great. Doctor also assured that she would get back whatever she lost post coiling in a couple of weeks time. Its over a month and there is no improvement A reason to worry.
Hi Sue, Thank you so much for your prayers. :-) We were not referred to a neuro ophthalmologist. Doctor told us that it would take at least a couple of months time for any improvement. I should be consulting a neuro ophthalmologist at the earliest. Did u have any vision problems before surgery? It would be great if you could share your experience post clipping.
hi Sharath-thanks for sharing- im now wondering if the coiling wiped out my left side vision- i was under the impression that it was from the rupture. well at any rate i'll keep you and mom in thoughts and prayers. Let us know- hopefully her vision will improve enough to join up with us~~
Hi Sharath,
Back in 1998 I had a clipping for a large aneurysm which, as it grew, snapped my 3rd optic nerve in half....I had severe double vision and no muscle control of the left eye (Which is what brought me to the ER), and had emergency surgery for the aneurysm..It took at least 4 months for my nerve to re-connect and for my vision to regain normalcy, but I did regain all vision function (no better and no worse then it had been pre-annie), so don't give up hope ! Sending big healing vibes your moms way !
Peace, Janet
Ron, thanks so much for your prayers. Heard from the doctors and also with the help of google learnt that post coiling one would experience immediate vision loss. In my mom's case she already had poor vision and coiling made it worse. Doctors have assured that the vision loss incurred after coiling would be retained in a short period and pre-operative loss would take a long time. Please do share your experience post coiling...
Sharru
Janet, Thanks so much for your prayers and your story was really inspiring and it sure gives us all hope.
Two years ago she had blurred vision in her left eye and doctors wrongly diagnosed it as lazy eye. Time passed by and she complained vision loss in her right eye and it was wrongly diagnosed again as myopia and that she needs to wear spectacles but that didn't do much of help as her vision was deteriorating everyday. Better late then never! at last the reason for her vision loss was diagnosed.
Post coiling she incurred further vision loss and presently she is having no vision.
Sharru!
My annies were found due to vision loss. Took forever to get right diagnosis. After stent and coils, no improvement. Almost no sight in left eye
I'm sorry to hear that.How is your right eye vision?
Lily,
I so regret your vision issue...
There are so many with vision loss, failure, balance and more...and yet are told over and over that it does not relate to angio-coiling...some such words...
Have you been referred to a neuro-ophthalmologist and/or to vision therapy?
I had both...and remarkable results...after neuro-oph, my neurologist referred me to vision therapy...after months of therapy (weekly one hour sessions...with daily homework) and, then had neuro-oph re-test...so the results are medically-oriented (documented?)...
Until I could use my eyes...I could do little else...including reading/comprehending...and. of which I am yet soo slow...and learning-to-long-term memory yet trips...I have to read / outline anything new...including the Two Books I so promote by neuro-docs...listed on the BAF main website...
Lily...I did not have vision loss before diagnosis which covered three ERs...and seeing another four docs between the ERs...Between the ERs, I definitely had the photophobia...the light/dark reaction... and, I yet have that w/special lenses in my sunglasses...that I have cherished a couple of times when unexpectedly caught in rain-glare...I attempt to drive only based on weather...
Prayers you ask your PCP/GP and/or neurosurgeon/interventionalist or neurologist for referral...or their other specialized diagnosis to assist your recovery...
Pat