The other night I had an ischemic Acute stroke. I am not sure if that affected my aneurysm. I am seeing the N. Surgeon on the 15th. Apparently, it has grown. I am not sure if he will do another angiogram. I also have what is called PAH- which is probably what caused the stroke. I am just sort of a mess.
Ohh Abby I’m so sorry to hear all of this.
An annie, PAH and an ischemic stroke. WOW that’s a combination of bad. Each could play it’s own negative role. That’s not good
Are you in hospital? or have they sent you home to wait for an appointment?
Do you have any lasting symptoms?
If you do not want to answer any of that, it’s OK, I completely understand.
Sometimes they, the medicos, can establish that the bleed has stopped, sending people home before seeing the surgeon and during all of the COVID restrictions, home can be the safest place to be rather than a hospital.
Sometimes it can be a case of multiple specialisations needing to make an assessment, so you have a neurosurgeon, you could need to have a cardiac surgeon’s assessment too, then these 2 need to discuss the matter and make a plan. I know for my neurosurgeries they were done as a ‘team approach’, so a group of neuros and relevant specialist all get together to discuss a course of action, considering each person’s and surgeon’s specific risks. This is a good approach for those of us with complex needs, but it can take time.
I do hope things remain stable for you at this time or at least until you have an opportunity to consult your neurosurgical team. Do not be placing yourself under ANY stress until you’ve seen a neuro and can get a full assessment. I make that sound easy, but I know it’s not.
Please let us know how things get on.
Merl from the Modsupport Team
I have a meeting with my neurosurgeon on the 15th, then I have a meeting with a neurologist on the 17th, and then the cardio on the 22nd. I am all full of doctors.
No, I am not in the hospital. I am home. The only real effects I have right now is that my left side gets sore. That’s where the stroke it was on my left. So the muscles in my arms and legs sometimes get sore. I find that sometimes I have trouble with finding words a little bit but really I am no worse for the wear. I consider myself lucky.
The PAH has not been diagnosed yet. It was just in the radiology report where they said that it needed clinical follow up because PAH was likely.
I’ve been trying to take it easy. I think that some people understand better than others. Like, all of you for instance understand. A lot of people don’t understand and because I’m still walking and talking and moving about things that there’s no big deal going on inside my little head. But obviously I lost oxygen to my brain if I had a stroke. The aneurysm that I’ve had all along is on the left and the artery that is appreciated is on the right which is the one that carries up the oxygenated blood.
I’m not sure what they will do or if anything, The Nuro may want to do another angiogram but it depends upon if he feels it safe to go in and do that if I’m having suspected heart issues. I was taking a medication that they took me off of because it has a risk of cardiac issues. It’s very small percentage but since they’re not sure what the cardio issues are than they didn’t want me to take it. So, I’m a little bit of a hot mess right now.
I’m glad your home Abbeycat70, we don’t rest well in hospital. You are getting as many doctors as I and it’s a hot mess. I told my Rheumatologist there are too many cooks in my kitchen! One time, I became so confused with seeing all the specialists and being their go between, I told one to just talk to the other, come up with a plan and tell me what to do ROFLOL. Even with my last brain repair, the NP from my surgeon spoke to the RN at the Rheumatologist before surgery. Team work is essential! I have had some heart isssues but when they thought I had Brogada pattern, I had to have it rechecked before the GI doc could do some more testing. I have an unremarkable heart! A far cry from what the initial cardiologist had said. I still have LVT and an issue with a valve that mom had. They just watch it.
When BH had an ischemic stroke awhile back, a pulmonologist came in to the ICU room. He didn’t introduce himself or his role and just started talking about the lung spots. I got a bit tiffed and confused. We won’t be seeing him to make a long story short.
Please create as stress free a life as you can as Merl has suggested. Breathe before you speak, the extra oxygen helps as does slowing down. As with everything, drink lots of water and eat extra protein!
I’m glad you’re still with us my friend!
Big hugs,
Moltroub
This is REALLY common. I often call it ‘The broken bone theory’ ie you break your arm, you go to hospital and they plaster it… …6-8weeks later, it’s all healed and life goes on. For a broken bone that idea works well. But we’re not talking about bone, we’re talking brain and the healing is totally different. Some people just cannot comprehend it all.
No one, not even the medicos, knows the reality of it all. They may have all of the theoretical textbooks money can buy, but the theory vs reality can be miles, even light years, apart and we do not all fit nicely into their textbook theories. This can be somewhat frustrating for the medicos, but that’s nowhere near the frustration levels we have to manage, I can assure you.
Merl from the Modsupport Team