My PED was done on 12/1/16. Since that day I have had head pain in the region of where the PED is and my pain ranges from level 6 to 7 every single day, along with the stabbing pains. I have tried all pain meds to no avail. They give me fentanyl in the hospital which eases it a bit, but not completely. I have been told the pain is a Migraine. My thought about that is Migraines GO AWAY!! I have had migraines in the past that were called “Trauma Induced Migraines”, these started after a T-bone accident. This pain is nothing like that. I have done the, “is this worth it” several times since the PED was placed. I even told my surgeon if I knew the pain that I would be in I wouldn’t have had the surgery.
One month after PED was placed, I had a stroke. The only lasting problem from the stroke was right eye blurriness. My problem is since the stroke, almost every month to 2 months I have right sided weakness. I have gone through many angiograms and stent is where it should be. They have no clue what is causing these right sided weakness spells. I go through a code stroke every time I go to the hospital. I actually quit going, unless there is a lot of extra pain in my head.
When the PED was placed they told me about the placement and what could possibly happen. Where they placed the PED it covered the aneurysm and also covered an artery. We, I, knew about this from the start. The worse is now happening, this past year they have found that the artery is slowly closing. I have Neo Intiminal Hyperplasia. Eventually it will stop blood flow. I have been sent to the University of Miami a couple of times to have a Brain Bypass performed. The first visit they did not see it necessary to perform it then. The second visit, they found they cannot do it because my veins are to small. Day of discharge, July of '17, I was told I have approximately 2 years left.
I am not writing this to scare anyone, I am just wondering if there is anyone out there that is going through these same problems.
I keep reading posts that it takes 3 months to 3 years to feel normal. I am so happy to hear about the recovery that most of you are having. God Bless.
Is there anyone out there that still has some of the complications I have from your PED? Needing guidance, suggestions, emotional support.