Martndee,
I share your plight only I'm 17 years in to this post surgical phonemena. Your wife like mine is trying to find herself again and trying to find a new normal. The depression and withdrawl seems to be common in clipping patients. One of my wife's residual problems is related to the passing of time. It's difficult for friends to understand why she seems to take so long to return phone calls (one of her friends called in early May and I keep urging her to return the call, she acknowledges she needs to but forgets just how much time passes before she executes a task. Seeing that it occurs in coiling patients as well indicates that the problem begins in the rupture/bleed stages. Keep supporting your wife she will need it as she slowly gets back to being the person she was. I like to say that my wife became a better person as a result.
Firstly, I'm not sure if this is open for discussion to a survivor of an aneurysm or directly towards husbands/wives/partners/caregivers, but one thing I am sure about, your pain and your fears could well be the voice of either.
On many occasions I read blogs on how survivors have good days and bad days, have their ups and their downs! Battle not only to recover, but have to readily accept that things may never be the same. Those fortunate, feel blessed to have survived and eternally grateful for the gift of life, to be able to continue to be part of our loved ones lives, even if we are not the same person as before, We accept and embrace what is commonly know as the NEW (post aneurysm) ME...... Those who are not so fortuntate feel cheated and angry or don't even recall the OLD ME never mind accept or like the New ME...... We as survivors are all so different, and have suffered and recovered in many different ways, but most have one thing in common....We have had someone who has loved us and not only helped us in recovery but watched helplessley in front row seats, whilst we have been allowed bad days, and our ups and our downs. It has been husbands/wives/partners/carers who have waited patiently hiding their fears, have taken care of homes, children and held down jobs, and if that is not enough, be expected to accept and be grateful for the NEW US!!!.... I know it may feel as tho it is a never ending battle, and 4 months is such a long time to miss your best friend, but 16 weeks is such a short time out of the recovery period, please believe she's in there somewhere, just perhaps a little lost and needs more time, and really, no need to Thank someone for taking the time to read your blog. I'm sure there are many out here who shall wish to Thank you for reminding us how most of us got to the New Me and continue to recover daily with the fight, help and love of our partners. Stay Strong!!!!
Best Wishes
Gaynor
I certainly hope everything works out for you and your wife....
The Doctor told us that the ruptured aneurysm Buster suffered on June 24th will affect the "personality" portion of his brain. Once he is in the clear (fingers painfully crossed) this will be my largest concern. He is the sweetest, kindest, most giving and talented person I have ever met. But believe me, I'll take him no matter how he comes back to me....
Please, please keep us posted. Everyone's stories are helping me more than you can imagine. Just knowing what to expect is so strengthening.
I am in the same boat as you. My husband had his SAH on April 17, 2011 is back to work part time, flew through therapy mastering everything, but I notice his uninvolment in our family. I Feel like a single mom yet as he sleeps a lot, procrastinates at everything, and is very quiet. This, like you, is not the man I married but it has only been 4 months the Dr. said do not expect the personality back until at least 6 months so I patiently remind him to participate in life this is what he did before and he doesn’t see his deficits at all. Keep your chin up and seek therapy for yourself you also had a tramatic experience!!!
Kara,
The sleep, procrastination and quiet demeanor appears to be a common SAH side effect. It will take a lot of patience and understanding, maybe forever. My wife has problems continue 17 years later especially with time passage. She has her sleep under control now but it took a few years (depression had a lot to do with it) and expression of emotion is difficult. My wife explained that it is difficult to formulate how she feels and it takes time for that or any expression voice or facial to "gel" because she is too cautious to just say anything. SAH patients seem to exhibit this problem and I believe it is directly caused by the trauma of the bleed and not the surgery.
Martndee,
Your story brings tears to my eyes because
you express so well the heartache that many
of us have felt. We are grateful that our
mate and best friend survived, while praying
and doing all we can to try to get back to the
life we had before the SAH . . . It’s a difficult
journey at times. Taking long drives in the
country was good therapy for us. Life will get better. Keep us
posted.
Prayers for you and your wife/ best friend.
If I may make a comment????? Contact the surgeorns and doctors and discuss what you are observing,,, your wife is very lucky to have you there,,, to have someone that knows the normal her,, I have to to keep a journal as my husband died oct 2007 and I had my first surgery in Oct of 2008! , The doctors and surgeons may be able to perscribe meds and may have to tweek the dosages and may even have to change some of them ,,,, this is what I am going thru now ,,,, I am 2 yrs post annie coiling of a giant left ICA,,,, You are not a rambling lost soul,,,,, there has been a great change in your lives and you bothe need to love and support each other ! your are bothe very blessed to have one another ,,,, you will be amazed at the new woman in your life ,,, just give her some time,,, she is still finding herself! lol she will be new and improved!!!!!!! Huggss adn prayers to you both !!!!! Julie in
delaware
First of all I want to thank all of you that have replied. I will also reply to each of you personally as just reading your thoughts ment quite a bit to me.
While this was happening in February I sat next to her day and night and thought no differently than each and every one of us…my only concern was that she was with me and that I would the ability to take care of here the rest of my life regardless of what condition she would be in. It was a daily struggle for survial those first 2-3 weeks but I know that there was no more “Me” without her. We had transformed over the years to “Us” and that was all anyone knew including ourselves. We are inseperable, everyone asks about us, not her or me, and we have always been up to any and all challenges since we met, lived together, and then married.
I still thank God every day for this miracle that has happened and I pray for guidance for her and I…and for patience as I know I need to help her recovery in any way I can. I do not hide my emotions well and she nows asks me if I am mad at times. I am not mad but I feel alone and to be honest I feel disappointed in myself that I am not handling this situation better. I have always been described as the “Rock”. Always there for everyone, the go to guy when friends and family have problems, and now I am the guy that cries as much as I smile. My wife used to cry when seeing a an elderly person having a problem doing a normal task or just from seeing or hearing of an individual or familly hardship from friends and others. Now she doesn’t cry…I do. I know it’s not a sign of weakness and this was one of many things that I love about here so much, her compassion and tender heart. She always thought about others before herself. I now find myself taking the areas she once considered normal and adapting them to myself. Odd concept but true. I used to tell her not to cry but now I do for seemlingly no reason and she tells me not to.
I know that each and every one one of us has and will continue to go through an amazing transformation with our loved ones. We look for small changes and things that we all took for granted before. A smile or a sign that some resembalance of normallacy has returned. Supporting our families and loves ones, along with each other is not only challenging but frightening at times. Afraid at times to say what we really feel because it could be interpruted wrong and worried at other times that we may not be saying enough. Looking for that glow in her eyes that once made me see her as a happy child and only seeing a look that tells me she is not understanding and wants that glow to return also. Not hearing her laugh as much or tell jokes as she always did but wanting to hear the same jokes that I used to tell her I was tired of hearing repeatedly. Hearing her tell me 20 times a day that she loved me and me now telling her 40 times a day that I love her. I struggle with her being a new person or even a better one as she was perfect in my eyes before this happened also.
I only hope that she takes small steps each day and that the support and love I give and we all give only adds to the love and partnerships we have in place. Strength is an amazing vurtue that shows itself differently depending upon the person and the challenges they face. Let’s all continue to provide strength for our loves ones and each other.
Thanks again to all of you as an extended family.
While this was happening in February I sat next to her day and night and thought no differently than each and every one of us.......my only concern was that she was with me and that I would the ability to take care of here the rest of my life regardless of what condition she would be in. It was a daily struggle for survial those first 2-3 weeks but I know that there was no more "Me" without her. We had transformed over the years to "Us" and that was all anyone knew including ourselves. We are inseperable, everyone asks about us, not her or me, and we have always been up to any and all challenges since we met, lived together, and then married.
I still thank God every day for this miracle that has happened and I pray for guidance for her and I....and for patience as I know I need to help her recovery in any way I can. I do not hide my emotions well and she nows asks me if I am mad at times. I am not mad but I feel alone and to be honest I feel disappointed in myself that I am not handling this situation better. I have always been described as the "Rock". Always there for everyone, the go to guy when friends and family have problems, and now I am the guy that cries as much as I smile. My wife used to cry when seeing a an elderly person having a problem doing a normal task or just from seeing or hearing of an individual or familly hardship from friends and others. Now she doesn't cry.....I do. I know it's not a sign of weakness and this was one of many things that I love about here so much, her compassion and tender heart. She always thought about others before herself. I now find myself taking the areas she once considered normal and adapting them to myself. Odd concept but true. I used to tell her not to cry but now I do for seemlingly no reason and she tells me not to.
I know that each and every one one of us has and will continue to go through an amazing transformation with our loved ones. We look for small changes and things that we all took for granted before. A smile or a sign that some resembalance of normallacy has returned. Supporting our families and loves ones, along with each other is not only challenging but frightening at times. Afraid at times to say what we really feel because it could be interpruted wrong and worried at other times that we may not be saying enough. Looking for that glow in her eyes that once made me see her as a happy child and only seeing a look that tells me she is not understanding and wants that glow to return also. Not hearing her laugh as much or tell jokes as she always did but wanting to hear the same jokes that I used to tell her I was tired of hearing repeatedly. Hearing her tell me 20 times a day that she loved me and me now telling her 40 times a day that I love her. I struggle with her being a new person or even a better one as she was perfect in my eyes before this happened also.
I only hope that she takes small steps each day and that the support and love I give and we all give only adds to the love and partnerships we have in place. Strength is an amazing vurtue that shows itself differently depending upon the person and the challenges they face. Let's all continue to provide strength for our loves ones and each other.
Thanks again to all of you as an extended family.
While this was happening in February I sat next to her day and night and thought no differently than each and every one of us.......my only concern was that she was with me and that I would the ability to take care of here the rest of my life regardless of what condition she would be in. It was a daily struggle for survial those first 2-3 weeks but I know that there was no more "Me" without her. We had transformed over the years to "Us" and that was all anyone knew including ourselves. We are inseperable, everyone asks about us, not her or me, and we have always been up to any and all challenges since we met, lived together, and then married.
I still thank God every day for this miracle that has happened and I pray for guidance for her and I....and for patience as I know I need to help her recovery in any way I can. I do not hide my emotions well and she nows asks me if I am mad at times. I am not mad but I feel alone and to be honest I feel disappointed in myself that I am not handling this situation better. I have always been described as the "Rock". Always there for everyone, the go to guy when friends and family have problems, and now I am the guy that cries as much as I smile. My wife used to cry when seeing a an elderly person having a problem doing a normal task or just from seeing or hearing of an individual or familly hardship from friends and others. Now she doesn't cry.....I do. I know it's not a sign of weakness and this was one of many things that I love about here so much, her compassion and tender heart. She always thought about others before herself. I now find myself taking the areas she once considered normal and adapting them to myself. Odd concept but true. I used to tell her not to cry but now I do for seemlingly no reason and she tells me not to.
I know that each and every one one of us has and will continue to go through an amazing transformation with our loved ones. We look for small changes and things that we all took for granted before. A smile or a sign that some resembalance of normallacy has returned. Supporting our families and loves ones, along with each other is not only challenging but frightening at times. Afraid at times to say what we really feel because it could be interpruted wrong and worried at other times that we may not be saying enough. Looking for that glow in her eyes that once made me see her as a happy child and only seeing a look that tells me she is not understanding and wants that glow to return also. Not hearing her laugh as much or tell jokes as she always did but wanting to hear the same jokes that I used to tell her I was tired of hearing repeatedly. Hearing her tell me 20 times a day that she loved me and me now telling her 40 times a day that I love her. I struggle with her being a new person or even a better one as she was perfect in my eyes before this happened also.
I only hope that she takes small steps each day and that the support and love I give and we all give only adds to the love and partnerships we have in place. Strength is an amazing vurtue that shows itself differently depending upon the person and the challenges they face. Let's all continue to provide strength for our loves ones and each other.
Thanks again to all of you as an extended family.
While this was happening in February I sat next to her day and night and thought no differently than each and every one of us.......my only concern was that she was with me and that I would the ability to take care of here the rest of my life regardless of what condition she would be in. It was a daily struggle for survial those first 2-3 weeks but I know that there was no more "Me" without her. We had transformed over the years to "Us" and that was all anyone knew including ourselves. We are inseperable, everyone asks about us, not her or me, and we have always been up to any and all challenges since we met, lived together, and then married.
I still thank God every day for this miracle that has happened and I pray for guidance for her and I....and for patience as I know I need to help her recovery in any way I can. I do not hide my emotions well and she nows asks me if I am mad at times. I am not mad but I feel alone and to be honest I feel disappointed in myself that I am not handling this situation better. I have always been described as the "Rock". Always there for everyone, the go to guy when friends and family have problems, and now I am the guy that cries as much as I smile. My wife used to cry when seeing a an elderly person having a problem doing a normal task or just from seeing or hearing of an individual or familly hardship from friends and others. Now she doesn't cry.....I do. I know it's not a sign of weakness and this was one of many things that I love about here so much, her compassion and tender heart. She always thought about others before herself. I now find myself taking the areas she once considered normal and adapting them to myself. Odd concept but true. I used to tell her not to cry but now I do for seemlingly no reason and she tells me not to.
I know that each and every one one of us has and will continue to go through an amazing transformation with our loved ones. We look for small changes and things that we all took for granted before. A smile or a sign that some resembalance of normallacy has returned. Supporting our families and loves ones, along with each other is not only challenging but frightening at times. Afraid at times to say what we really feel because it could be interpruted wrong and worried at other times that we may not be saying enough. Looking for that glow in her eyes that once made me see her as a happy child and only seeing a look that tells me she is not understanding and wants that glow to return also. Not hearing her laugh as much or tell jokes as she always did but wanting to hear the same jokes that I used to tell her I was tired of hearing repeatedly. Hearing her tell me 20 times a day that she loved me and me now telling her 40 times a day that I love her. I struggle with her being a new person or even a better one as she was perfect in my eyes before this happened also.
I only hope that she takes small steps each day and that the support and love I give and we all give only adds to the love and partnerships we have in place. Strength is an amazing vurtue that shows itself differently depending upon the person and the challenges they face. Let's all continue to provide strength for our loves ones and each other.
Thanks again to all of you as an extended family.
things will get better…right now her brain is n rehab n u r giving her so much of what she needs in having a full recovery…love n positive attitude…be careful not to rush…its a slow progression…after my 5mm anny ruptured in oct of 09…2 wks n the hospital,6 wks at home b4 goin bk 2 wrk i was literally scared to leave the house for fear of going to far from my safezone…interaction w/family was not really wanted,noise n congestion of a crowd was very nerve racking…it seems to be part of the return to our new normal process…its been goin on 2 yrs now n i now love having get togethers w/family n friends but just not to the frequency as before…i relish my down time…naps r welcomed…just need more rest than prior 2 anny…just dont give up n ur wife will thank u for it…i dont know where id be w/o the support of my husband n family…just remember slow n easy and things will get better…love n prayers coming yalls way///ur doing an excellent job…God bless
Martndee, my grandfather went througth this aswell, since we woke up from the induced comma he got,me and my family didn´t sense him like he was before,he lookes sort of sad and actually had to be given an anti-depressive in the hospital,but let me tell you, I dont know what really made him put up some effort and put up a fight, I might guess it was when he suffered from a respiratory arrest(he almost died in) in his hospital stay,he just came back to who he was and really was making a great effort, what I'm trying to tell you is that you have to be patient as your wife needs to aswell,her wake-up call may get soon or even late,but just keep having hope! Help her throughout all the recovery she is experiencing now and have hope...
Hi. I had a brain aneurysm rupture with coiling in September of 2010 on the 28th. I want to talk to you because I feel I am close to your story. I am understand of what your wife must be feeling. Well, we are all different.
We are all the same. First of all, what a great message and the love you have for your wife is incredible. she needs to be reassured of this even in small messages over simple things. like her smile, her hair, her laugh, anything that is familiar to reinforce that. Four months is not a long time. I look back over my world an see that as i approach my first year anniversary I see how i have improved...yet , I never knew that i had improvement coming as i thought where i was where I was...but you improve. i am shocked how more and more I am improved. I am tired. I am self employed which is tough. how do i stay home?./ the insurance company says no money you are fine. Every doc says no way you are not going to work at all .......brain injury is tough....really tough.
we are fighting insurance companies. big
they say i am fine.
how are you doing?? how is your wife doing. keep being this wonderful to her that you expressed here. way to go. your love will bring her back