I would LOVE to hear about your progress

Let me start out giving you a little of my back story. My wife suffered and aneurysm rupture on Christmas Eve 2012 and was clipped on Christmas. She is a miracle and is doing very well. She is back to work (Speech and Language Pathologist at a grade school) and most important still a very good Mom and Wife.

Just last week we had a angiogram and were given very good news. Her aneurysm looks great and there are no others. Two days later we met with her surgeon to go over the results. He said we don't have to come back for two years (yeah).

But the thing that confused me or I guess you can say pissed me off what he said about Lisa's future. He said after about 1.5 to 2 years her short term memory would probably not improve. Since the beginning this doctor has been giving us best and worst case scenarios. I know they do this because everyone is different and they really don't know, and I get that. But, is this really how it is? Does everyone stop improving after 2 years?

I know we have some great aneurysm veterans on this forum. If you had an aneurysm years ago I would LOVE to hear about your progress over the years.

Thanks for your time.

Nate

Hi Nate,

I wish I could answer your concern but my Dad had his surgery (clipping also) just over a year ago. I am happy to hear your Wife is doing well. At the beginning of this we weren't sure how life was going to be for my Dad or us as a family but he is doing better everyday. I wish you and your family the best.

Tracy Winkler

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Hi Nate --

My ruptured brain aneurysm occurred January 19, 2007... so 7-1/2 years ago. I spent 44 days in the hospital... most of which I do not recall; and I guess I probably never will. My aneurysm was coiled and I've had a couple of angiograms and MRI's since and everything looks OK. After an additional couple of weeks at home, I went back to work at the same position I was before the rupture (Controller for a small insurance company). I think I'm probably 100% back to normal.... I had some slight problems with balance for a while and my head always felt "full" but now it rarely feels like that; I can't really pinpoint when it does but it no longer concerns me.

As far as my short-term memory goes... it's fine; I don't think it was ever a problem though (maybe I just don't remember :-) ).

I hope the best for your wife and you. Without the loving and caring from my family I'm not sure I would have made it this far.

Mary

My father had a SAH 2 years ago and is a living miracle. His short term memory isn’t the best but it has definitely improved even over the past 6 mobths. He remembers things now that we can’t even believe he remembers. Keep loving and supporting her and you will see improvements.
Samantha

My wife had aneurysm on June 14th 2013 and she has come a long ways but the short term is not what it should be. I think the spouse suffers more then the patient in many ways and we keep on keeping on to find an answer that in many times has no answer. I, like you, never give and know we have this site to chat with people has made it easier for me. To be back at work is amazing and I am very happy for you and yours. Please feel free to connect as a friend because I still have my good and bad days and want to give up. I focused on 100% by end of 1 year but now will desire 100% by end of year 2. Good luck from Maine.

Jon

I had the same as your wife in 2010 and mine has not returned, I just pray and have accepted it. Something are ok that I don't remember others are not but God has a way of making it all ok. I wish the very best for your wife and tell her to just keep praying because what is take God will replace 10 fold.

Hi!

My brain aneurysm rupture was January 27, 2009 and I was in college at the time. I initially lost everything--walking, talking, names of people, etc. But I worked with a lovely team of people who helped bring most things back. My memory I would say is one that will never be what it used to be (or so they say). To me this is my new normal. What I ask my family and anyone who knew me prior, is to embrace the "new" me, and not focus on the old me.

It's hard for my family because the memories mean a lot to them, and I can't place a feeling to the sentimental items, pictures, or stories. Pre-aneurysm life is gone, and the "new" me uses post-it notes and records thoughts so I remember. It's not to say I am not successful though. I went back to school and finished my undergraduate the following year and continued to earn my masters in education and special education.

I don't know if I agree with just stopping improving after 2 year though. The brain is such a magnificent thing and can morph when things need changed. We don't stop learning if we don't stop trying, and if your familiy's spirit's are high and your wife feels healthy and happy and you two are healthy and happy together, I would say you are ahead of the game.

I think what the doctor was saying was that most people have the greatest improvements the first two years. I can say this is consistent with what happened to me. But that doesn’t mean there won’t be any improvements after that. In my case one of the most annoying symptoms after the rupture was a terrible ringing in my ears. It was about year 3 when this started getting noticeably better. Now at year 4 it only happens once in a while (right now as a matter of fact). As for my memory, I have been married 25 years yesterday. My wife has been telling me I have no memory for the at least the last 15 years, but she actually says it less now because of it being real. So it’s very hard to gauge how that has improved since the rupture. But if a little short term memory issue is all she has left, I would count your blessings.

Best of luck to you and yur wife!

I agree with you that he's just talking and trying to adjust your expectations. There are averages, but no one can say exactly how things are going to go. Two years is not some magic line, I think he's just saying that dramatic changes in your mental powers are likely to occur before then.

I'm not a doctor, and my aneurysms didn't rupture; I just had them clipped a few months ago. BUT, two days after I came home from surgery, I had a huge series of seizures and so three more days in another hospital. The surgeon "can't really say" that the seizures had to do with the surgery, but I'm sure there's a relation.

After all that, I had some serious and very frightening problems with my short term memory (and balance, and even maybe speech, and I was just generally a wreck). So my primary doctor referred me to a special rehab program for people who've had various kinds of brain disasters: strokes, accidents, tumors, aneurysms, etc. In the course of that, I learned a lot about memory and brain function.

The main thing I picked up was that it's not hopeless. Your ability to heal may be strongest and quickest soon after the injury to the brain, but your brain builds new connections all the time and can learn to work around damaged areas. I think it's particularly likely that you could relearn something you used to know or get your ability to recall back to the level you used to have. The therapists stressed that it was important to get physical exercise -- something about that spurred neuron growth, and to take good care of yourself in terms of sleep and diet. Critically, they have research that shows learning new systems and processes-- things like math, languages, and musical instruments, were the best for building up the brain. And there are games and exercises that are supposed to help with short term memory, like Lumosity.com (and I know there are many others, I'm not shilling for them; that one just popped to mind). It's like anything-- the more you work at it, the better you get, although some people are always better at it than others.

Another factor is that it's hard to compare how one is now, in terms of mental capabilities, to how one (or one's family) thinks one was two years ago. Heck, it's been a few months for me, and while I feel 95% better and have stopped telling people the same things twice within three minutes (because I now remember having said them), I do wonder sometimes if my memory is really all the way back. I'm guessing your wife didn't do any testing that would prove how her memory was before, so you can't say for sure she's x% worse. Also, regular people have bad memory days, too-- as they age, when they're tired or stressed, or chronically for certain kinds of material, etc. I have an advanced degree and many academic accomplishments, but I have never been good at connecting names and faces, for example.

A big chunk of brain rehab class had to do with personal organization-- using a calendar, schedules, lists, a smartphone, reminders, making yourself notes and voice memos, repeating or rewriting critical information over and over so that you would start to remember it eventually. If your wife is back to work, then chances are she's doing all that pretty darn well.

One last thing: if she is taking any kind of brain medication, especially anti-seizure drugs, I can attest that being spacey and having difficulty remembering things can be a strong side effect of those.

Hi Nate,

So happy your wife is doing well. My story is a little different, but hopefully can provide a little insight and hope. I had an unruptured aneurysm and had surgery 2 and 1/2 years ago. As a result of the surgery, I had one major stroke and a bunch of tiny little strokes (I was 34 years old). The first year or so was extremely difficult and I struggled with words, memory, etc. Luckily I had no physical issues, and I continued to work the whole time. I had an MRI after a year and a half and the areas of damage in my brain had shrunk considerably (didn't even know this was possible!). I began noticing a lot of improvement in general after this. So now, 2 and 1/2 years later, I feel I am almost back to 100%, and still feel I am improving daily. I no longer struggle with finding words, memory issues, or anything else for that matter. All my doctors say it's amazing I do not have any lingering effects from the bleeding in my brain. So please do not let the doctors dictate what is possible for your wife. They really do not know. Your wife should not have those limitations imposed upon her, because she can improve. The brain is an amazing thing and anything is possible!

background...my son had aneurysm in feb. at the age of 56, he is paralized on the left side, we were told that in a month he would be walking, never happened...he is home with his wife and friends trying to take care of him, almost 6 mo. later he still isn't walking and now they are telling us he probably will never walk again. Depression is bad, which makes the whole family depressed and things couldn't be worse. He can't be left alone, his wife makes to much money to get help, but not enough to hire someone to come in to take care of him...the future looks very bad for the whole family...

I had a ruptured brain aneurysm in March 2013. I had coiling for this. I was in Mt Sinai in NYC for approx 6 weeks,which only about a couple of days I remember. I have short term memory issues along with major depression after this. My neurologist sent me for a neuropsych test and found out the right side of my brain is not functioning correctly. I am no longer working ,as I was injured in an auto accident before aneurysm . The other driver was uninsured ,and I also suffered many disc herniations in neck and back from this. Both of my knees are shot. I cannot walk very far without severe pain and then the aneurysm happens. I do not like to leave my house any longer. This is where the depression comes in. The Dr that performed the test is sending me for occupational therapy but doesn’t think it will get any better. But it is worth a try.

I am doing really well it is 3 years since mine and I am doing very well and have been discharged thank you

One thing I've learned from this site is - everyone is different! My avm was discovered after a minor bleed, and an unruptured aneurysm was discovered through the various scans. I had craniotomy a year ago yesterday. The avm was removed and the aneurysm clipped. I'd say that my memory is pretty good with the exception of names. I was in sales for years and was always very good remembering names...but not so much any more. Of course, I'm 73 years old now and that probably makes a bit of a difference! LOL! I'm playing tennis 3 times a week, bridge a few times a month, just returned from a trip to Europe. My energy level is not quite what it was before but - then again - I am a year older! I see neurologist about every 4 months, neurosurgeon every 9-12 months. I'm definitely one of the lucky ones - had a few bad bouts with medication reactions which affected my balance terribly - but once that was adjusted I've been fine.

Best of luck as you move forward through this process. Chilly Girl

Hey Nate. Glad to hear your wife is doing well. As far as my ordeal and based on my own experience I Continued to improve noticeably physically over those next four years and it would seem so slight over a few months then one day I’d realize how much I’d improved those months. I have slight short term memory loss, but then again I’m like a computer in long term. I think maybe I blame my Annie and it may be age. Lol.
My story is that I had no idea I had an aneurysm. I was in Texas (I live in LA) in 2009 when mine ruptured. Nearest hospital to handle it was 2 1/2 hours away. Weather was too bad to fly so long ambulance ride. It was coiled. I was given almost no chance. I was in great hands. I came home 16 days later out of ICu I was slow at first in walking but I could walk from the first day I got out of my ICu bed 14 days after Annie, I had basically no deficits. My Dr said I probably wouldn’t remember any of the ordeal or probably not him. I did!
A year later I was still improving, and I continued to for the next four years. It’s so gradual til you just notice every now and then you have improved Hard to explain.
I did research online and they say the brain reroutes itself and improves after injury for even 20 years. But I know there are many opinions out there. But I believe there is no way a certain time measure is possible as we really don’t understand or know and each of our cases are different though shared.
Thanks for the response. Wish y’all we’ll.
Nell Denova

I suffered my ruptured brain aneurysm May 2001. In addition I was in a coma for over 7 weeks.

I listen to my doctors as they provide information. However, since I am a person with a strong faith, that is all I do-listen.

I also was told that by the second year, I would be the best I would ever be. Well, it is now 13 years and I continue to make gains, because that is what I desire for my life! I do not accept that the good Lord pulled me back from death so I could be a vegetable in my older years.

You are correct that doctors will provide best and worst case scenarios. However, all of mine have also indicated that I am the instrument who guides the outcome, not them.

My husband had his SAH April 2011 and every few months i still notice improvement . He was back yo work full time 4 months after but the improvement continues only very subtle. One day I will just realize he is doing something he never did in last 3 yrs. our Dr. Told us we would see improvement for next 10 yrs just not as dramatic as first 2 and I have to completely agree so far.

I had a rupture stented 4 years ago, followed by clipping of a 2nd unruptured one, followed by a shunt (just for context). I think the doc's speak from their raw experience, and although I guess there are always exceptions, my guess is that they're generally right.

What can continue to improve, however, are the work-arounds. It was a slow and gradual process, coming to accept that some of the abilities I'd lost were permanent. Stupid things, like I know I can't carry an armful of dishes in one hand and a pot in the other - they're too different, and one of my limbs will stop coordinating so I'm likely to drop something. For a while I consciously just carried fewer things at once, and now, selecting what I carry has adopted some unconscious activity from practice. I drop things less! Yay! It's very frustrating and depressing when the implications of lots of little problems dawn on you. Perhaps you can help your wife to identify problems and come up with ways to circumvent the disability. Maybe one solution is for your wife to carry around a little spiral notebook in which she writes anything important during the day, so it's not forgotten.

Another work-around you might find helpful is to avoid difficult topics and complicated stories when your wife is tired. My biggest disability has been the mental fatigue, and I've found the best solution is to get insane amounts of sleep. When I'm tired I'm frustrated and useless, when I'm sleeping I'm recovering and staying out of the way, and when I wake, I'm fresh and can participate with others in a more meaningful way.

More and more, the brain is seen as plastic. My guess is your wife will never be the same as before, but her basic personality and inclinations probably are; she just functions a bit differently than before. Wishing you both patience!

For my wife it has been just over 2.5 years. She had a 6mm ruptured aneurysm, a result of a 5 (worst case loss of function), and coiling for repair. For her there was great recovery at the first, and then it tapered off. She is doing so well that it is difficult to say whether there is still recovery going on. She has residual spasticity in her left leg/ankle/foot, but nothing else physically. Her emotions are less controlled than before, but not in a truly negative way--cries and laughs more easily. She has had a great recovery, and we are grateful. I know that life is different than before, but I cannot really remember much of what it was. This is reality now, and in the mercy of the Lord it is very good. We wish you well; it is very encouraging to know what your wife's job involves and that she is back at it. We have a friend who is very much less fortunate, but she is still making progress little by little after 3 plus years.

Wow, what a great response to my post. You all have such great information that I had to add a few more questions to my list to ask our neurologist in September. Lisa is a fighter, and I'm positive she will continue to improve. I realize everyone is different, but as long as there is one person out there continuing to improve is all we need to keep the faith. I want to thank you all for taking the time to tell your stories. It is nice to know there are people out there that understand our situation and needs.

Nate