has anyone had the webbing procedure done on their non-ruptured aneurysm?
If so, could you share your experience?
I have constant headaches and wanted to know if anyone else has experienced this and if so, what have you done for the constant pain?
By webbing do you mean pipeline stent? I have a pipeline stent and have suffered with headaches since.
Hi I had a web done Oct 18 on a non ruptured basilar tip aneurysm. Had no symptoms before. It was an incidental find. Don’t suffer with headaches but do get silent migraine auras since the op. Had alot of problems with my vision after. Not being able to focus occasionally for a few minutes. It would go as quick as it came. As time has gone on this has become less of an issue until recently. Had 2 episodes within a week. Contacted specialist nurse and had another MRI within 2 weeks. All came back with no new changes on xmas eve. Apart from the auras, rubbish memory and tiredness I’m ok x
Hi Wendy, thank you for responding. I have a nickle/titanium weaved basket. It’s inserted inside the aneurysm. It blocks the flow of blood into the aneurysm and acts as a stent as well. I’ve suffered with headaches ever since my procedure.
Hi Maria, I started with the migraine auras rite after the angiogram then the headaches started after surgery. At first they were bad then they settled down a bit but still every day I have to deal with them. I’m not one that has suffered of headaches before so this has been frustrating. There’s no pattern to be able to pin point a trigger. The surgeon said they weren’t from the procedure to see your neurologist. I haven’t gotten any direct answers yet. I’ve gotten more info from this group in just two days than I have from my own doctor. I do have a little bit of loss for words or forgetful more so now. I’m hoping it gets better. I have had some therapy which didn’t make a difference for the headaches. I guess some time an healing.
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Hi I had a web done Oct 18 on a non ruptured basilar tip aneurysm. Had no symptoms before. It was an incidental find. Don’t suffer with headaches but do get silent migraine auras since the op. Had alot of problems with my vision after. Not being able to focus occasionally for a few minutes. It would go as quick as it came. As time has gone on this has become less of an issue until recently. Had 2 episodes within a week. Contacted specialist nurse and had another MRI within 2 weeks. All came back with no new changes on xmas eve. Apart from the auras, rubbish memory and tiredness I’m ok x
Time is definately a healer. I’ve never had headaches in my life either. Sometimes if I am stressed I do get a bit of pressure on the nape of my neck where the aneurysm is but I use that as a warning to myself to slow down and rest for a bit. Regarding the auras I was sent from one clinic to another for checks. Spent a whole morning in opthomology and nothing was detected. Then got sent to a TIA clinic. That consultant said straight away what is was and showed me images on google. He prescribed me Candersartan which helps with the auras and also keeps BP low.
I know alot of people on here are from the US. All I can say is thank God we have the NHS in the UK x
So when you went to the TIA clinic, you mentioned that the consultant showed you what it was…? Were you having TIA’s or was the Candersartan trial and error for the headaches? I have the auras intermittently threw out the day with and without headaches. I am going back for another visit with both doctors, neurologist and primary care to try and get some further help. Well I’m happy for you to have great medical assistance. I have good insurance as well. It’s only been 10 wks since surgery, but from what I’ve read from others they are still suffering from headaches and their surgery was way longer ago than mine. Hope this isn’t my new normal!
Hi I was referred to the TIA clinic as they thought particles of plax may be coming from the original site and causing the vision disturbances. I think at that stage they were just crossing everything off the list so to speak. The consultant googled silent migraine auras and chose the images option. Then it all came together. I finally had an answer.
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I had a pipeline stent for a 5mm brain aneurysm (base of neck) 2 months ago. I still have headaches but progressively improving. It was frustrating because I was told to return to work two weeks after the procedure but that was not possible. The pain was so severe I could not function for more than 30 min. standing or sitting.
Occasionally I will take pain meds over the counter or prescribed. Rest and laying down was the most helpful for me but it took many weeks for pain to decrease. This site has calmed me down and lowered the frustration level knowing that others are going through similar situations. I learned that it takes time and patience—talking to others that understand has also been helpful. The pain is more manageable now but dealing with severe neck pain now. Hope things get better for all.
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Hi Chan273, My surgery was in November 2019. My unruptured 5mm aneurysm was located on the communicating artery. I was told I could go back to work within a week after my surgery. I’m a hairdresser and there was no way that I could go back that soon with standing like I do all day. My headaches were awful! Being one who never had headaches prior, thought this was protocol. Well my surgeon said it wasn’t from the surgery that I needed to talk to my neurologist. I couldn’t get any direct answer to why I was having headaches but gave me pain meds. Which only buffered the pain. I will say that when the surgeon took me off Plavix the headaches weren’t as severe, but still constant. My neurologist started me on migraine meds to treat the pain as tension headaches. I was willing to try anything at this point. At first, I was so excited that I went a day without a headache. That didn’t last. but they did get better, more tolerable. The migraine med is Butalb-apap-caf50-325. Over the counter meds didn’t touch it. I even went to therapy, no help. The pattern of the headaches have changed, even tho they are intermittent pain levels and still all day, its hard to have rhyme or reason . I go back next week to the neurologist for a follow up. It’s been said to me…You just had brain surgery, you have a foreign object in head that your body is trying to adjust to, it’s only been 3 months, it’s going to take some time to heal.) I guess I’m impatient. When I first joined this community and read a lot of others stories, an to know that most of them experience headaches and some of them for several years after surgery was quite depressing. I’ve tried some of the remedies that they have shared. Maybe they will work for you or even give a little relief. I wish comfort for you and others who deal with the pain! Oh , I forgot to mention that I have to sleep sitting up. Laying flat or on my sides brings exaggeration to the headaches !
Hi Boots 62 thanks for sharing your story! I have seen many specialists including a neurologist. They claim that my my headaches/neck pain are not from my surgery. It is comforting to hear from others that have been through this. I have had headaches before but not at this magnitude. I tried to return to work several times but the pain was unbearable causing my BP to spike at dangerous levels. Currently using sick leave and unsure if I will be able to return to work for a while. The only remedy for me is to limit the amount of time looking down or moving around (looking down causes severe headaches). Thank you for mentioning sleep sitting up, I had to find a certain position that reduced pain. Fortunately, improving every day but very very slowly. I have heard from others that it takes 6 months to 3 years to feel normal again. Rest as much as possible and wish you all the best.