Hi Joolz my aneurysm is approx 2cm, considered large, very close to"giant"
I attached a couple images.
mine has a neuroform stent, and coils, but I am still at risk of regrowth/rupture because it is not considered secure- there is still blood entering the aneurysm...
they still want to try the PED stent for me. (they tried in Nov. 2013) but were unable to cross the catheter to the otherside of my artery to deploy the PED stent. So they sent me for a cerebral bypass surgery in June. It was started but surgeon stopped. He had difficulty w/ getting the lumbar drain placed in my back. He made an incision in my back. But once the lumbar drain was in, the flow was too slow. (this is to drain the cerebral spinal fluid in the head so he could have enough room to do the work:bypass) he felt it was too risky to go forward. Now, they want to use a new software to help them see better/navigate through my previous stent so they can have another attempt at the PED stent. It was about two weeks ago we discussed my options. At this appointment he briefly mentioned the WEB device, but I can't remember why he said it wasn't an option for me. So after reading your discussion you posted about the WEB, I emailed my doctor asking him more questions about the "plan" for me, and also if he can tell me more about the WEB device why/why not it's not an option for me. He responded that he is going to have to schedule a phone consult w/ me to answer my questions/concerns. Dr. Gary Duckwiler is one of the authors I posted about the WEB device I found.
He's done MANY PED stents- very experienced. I think that is why my local hospital sent me to UCLA- to meet w/ him last year "that they are better equipped to help me"
Holy cow Mamika2, you are in quite the situation! I am in Canada & the docs I am dealing with only use the SILK, and because of possible delayed bleeds I am wishing & hoping for some miracle, as I had a bleed 33 yrs. ago which left me paralyzed on left side…brought up my 2 boys on my own, struggled through but don’t think I can manage another at this age! Other option is to do the coiling with stent which isn’t always a forever solution right? I don’t want to do one and find out after they can’t perform some new device because of previous stents! OH! life can be so complicated sometimes eh? Let me know what you decide, I am still sitting on the fence for now! Have a good one - dee
Hello Mamika,Thanks for info-and how long have you been aware of that sizing?You do have to speak with doc/surgeon to get clarity of treatment options after what has gone on.I have empathy for you and trust good positive treatment is possible.
Did you get any symptoms prior to aneurysm being found?
I have discovered radiologists and neurologists are very keen to get into my head.The neurologist and his side neurologist told me they like the challenge!(just as well someone does otherwise we would have no surgeons!) ] It does not mean that I am going to let them,unless I am more swayed for surgery for my situation.
This sounds what I had last year; however they called it a pipeline embolism, which in simple terms is a bypass in the artery that cuts off the blood flow to the aneurysm. Mine was originally coiled back in 2010; which was my second anny; first one was a SAH bleed out, that created brain damage, etc. Of course, I never do anything half way; the first was in my frontal lobe; the control center; had to relearn everything. Died, in coma; said I had 25% of every surviving and 40% if I did of every walking and talking and here I am, many surgeries later. Back to your question; mine was repaired with coils (75) was only 2.9 then grew to 16.7 with wide neck (inoperable) only choice. Reach out to me, was a huge success can share side effects, I had of course we are all unique and special!!! That was last April 2013! Happy to share pictures before and after if interested! Was a huge success, some brain swelling treated with Decradon (sp brain steroids), headaches, which I have had since the first one so... no biggy. Happy God gets giving me signs that points them to issues for I had just had an angiogram in late October and it had not changed, so from October to February it grew like a balloon, had an even that rushed me to the hospital. Had to be on plavix for 6 wks prior to surgery. All is good!!! Thoughts and prayers my friend!!!
Hi Ceejay, I have been advised to have the same procedure for the same reason. I am in Britain and will have mine at Coventry Hospital. My Surgeon, explained the benefits and risks. I had to wait for the WEB to be made in Germany, which took a while. I've had the procedure cancelled twice now, because the machine has broken on both occasions. I have been advise by the Surgeon, I will have this procedure within the next two weeks. Hope you don't mind but I would very much like to know, where you had yours carried out and how you are coping since the op, have you suffered any problems or are you ok? I noticed on one of the replies, the person stated that he was one of only three in the UK to have had this particular procedure, but, my Surgeon stated he has carried out Ten of these procedures, with only one resulting in catastrophic event. If you could reply, I would be very grateful as you are aware, how stressful it is not knowing.
Hi Dee, thank you for your kind thoughts and prayers. I am from England. Small village called Dadlington (Warwickshire.) Will have my op at Coventry and Warwickshire Hospital. Will keep you postedx
I just started to research the WEB and wanted to see if anyone posted on it. I have a couple of IA's, small and being watched. But I'm always researching options in case I have to have them treated. I'm up for my annual scan and I will make sure to bring this up at my next review visit.
