Are you on any medications? I ask because while on topomax after a few months, my husband actually said to me, “either you call the doctor, or I will!” I also think the term SuperBitch was mentioned but later forgiven. ;). Meds can make you react differently as can going off meds. But also, I think we have earned the right to a shorter fuse to an extent. Life is short, we know that more now than ever and we shouldn’t have to put up with nonsense. And when you’re still healing, a lot can get on your nerves! At least it did mine! I remember going back to work and being made to attend a workshop where the speaker would not turn the music down. He was making a point, that when music is loud, students tend to cluster closer to have discussion. My point was that I had just returned from brain surgery and shouldn’t have to endure a migraine brought on by sound. The world unfortunately does’t understand what we go through, and even people that are close to you and went with you to surgery and through recovery don’t understand what’s kicking around in your mind because we faced the knife and came out on the other side, and recovery is a different beast altogether… One with very little support, even from our doctors… Because most have NO idea. My husband kept saying “you look fine! Stop pulling the aneurysm card!” They have NO idea. And hopefully they never will! Do what’s best for you. For me, it was a low dose of nortriptyline for chronic head pain. It certainly gave me more patience, and helped with the kicking of cigarettes.
Hang in there! And hey, do some yoga, or he’ll even kickboxing to defuse some of the anger!
I had my coiling in June of 2012. I have been angry for a while. It comes and goes. If I hold it in I feel me head getting hot and start to hurt and throb like. My face fells all flush and hot a little I’m not sure I’m explaining this correctly but that’s another problem. I don’t know just what to say when I don’t feel good. Some days I’m very happy and other days I’m very depressed and angry. I’m afraid of therapy because I don’t want another pill. I just want to heal if there is such a thing. I feel stuck most of the time. If my atmospher is not a controlled one I can get pretty upset being around people sometimes. I want to interact with people but sometimes it just goes all wrong.
Another thing that bothers me is I feel that since God saved my life the devil is always setting traps for me. I have had several people who know what I’ve been through to curse me out seriously for no reason at all. They usually call me after they have been drinking and let it rip and later act as if nothing has happened and expect to pick up and keep it moving. I NEVER intentional hurt anyone ever. This I feel is Dominic because does not work like that. Whew!!! Venting.
Frustrated.
Sharon brought you back on line here...so is that time for some us to nag? Where are you, how are you, what are you doing...what are your neuro-doc advising /recommending?
How are you feeling?
So hope you will share your changes, adjustments, medical advice/help/results with the rest of us...
Sorry for the late reply. I still learning how to use this system.
I live in Memphis, Tennessee. I have good days, bad days and very bad days. I am on SSD as I can not work due to chronic migraines and the things that triggers them. Neuro doc is advising that I take my meds and give my brain plenty of rest, which is what I do most of the time.
I have platinum coils in my brain. My Annie was on June 26, 2012. I have chronic migraines due to the bleed, and my head tingles and throbs daily. I can move around some, but I don't go many places. When the weather changes, I have really, really bad headaches, florescent lighting, and certain scents also triggers my migraines.
I am regaining my life one day at a time. It has been an uphill battle for me and my family, but God is able. I think that I would like to start a BAF in the Memphis area to bring about awareness and raise money for research. I would like to also help other families who are struggling for answers on what to do next after the rupture. As you can witness it does change your life and limits you with certain restrictions, but there is life after a rupture. I got to figure out where and how to get started though. I'm stuck!
Hey Dan . I had my aneurysm 16 years ago
At first I was mad at everything and everyone and didn’t know why . The smallest stupid things would set me off . Eventually my wife and I got a divorce . She couldn’t take the changes in me . Well I am on the strongest dose of Welbutrin that I can get. It has helped tremendously .
Talk to a psychiatrist . They can help .
I was wondering why am I so angry? My husband asked my neurologist and he said that it was a part of my brain that was affected due to the aneurysm eruption. My circle has gotten very, very small. I prefer to be left alone because I noticed too that I will explode over nothing, because my fuse is very, very short. My draw back is I take so many meds now that I don't want to add another one to the pile, but I am sure that I need to.
Thanks for sharing. I am glad that I found this forum as I thought I was all alone.
I do not recall you noting chronic fatigue...my reason to send this relates to the anatomy noted... i.e. imaging on key areas of the brain...including cingulate cortex, hippocampus, amygdala, thalamus... areas I noted in the limbic system data I had found...our "emotion brain"... from other web data...
This may help us with questions to ask our doctors...
So hope you are feeling better/more comfortable...and, that you will share whatever you may learn from asking your doctors...we all need to learn so much to help our recovery therapies, etc...
did your doc explain/identify which part of your brain was affected? You may want to pursue what I noted below to Magpie...
You may want to research limbic system and limbic system anatomy...because it is the brain area initially accessed from the neck arteries...
Remember I have no expertise...but data found like "limbic system" came from good websites...I do not always see or think well...but once the site is available it is easy for me to study over and over...to outline/re-study...
Prayers for you to achieve more info and suggested (your doc suggest?) neuropsych testing and to suggest any therapies that may be helpful/beneficial...
This current article is on testing of chronic fatigue...tho what so engaged my interest is the reference to areas of the limbic system...areas not discussed/explained to us as the main access site to our brain...
Prayers you will begin to feel better and to have questions to ask your doctors...
Sharon...we all have timely to late responses...to memory blanking...
I still have to learn this system and mine; my tech is calling me @ 9PM tonight to fix and/or teach me how to do some things...
Many of us go thru many changes...and, diff parts go from expanding, reducing, to staying the same...
Have your docs ordered/provided: neuro-oph testing, hearing testing, neuropsych testing?
Then, any therapies that may help after the test results?
RE: setting up a BAF support group...have you thought of potential presentation at your church, other churches? Other organizations in your city? You may be surprised of others who know of, have relatives, a friend's relatives, etc... who have had an aneurysm...and, also did not have connections...
Have you looked over the main BAF site on the Groups? I understand they provide help in setting up...
You may smile...I had a fantasy of a support group...would never have been coordinated enough to accomplish it...even now...I'd not know/sense what to set aside first...
Prayers and wishes for your success in your goals, desires...to provide help and results to others... Please keep us posted on your success...it is delightful for us to know...
Hello Sharon/everyone. Sharon it sounds like you and I have the “side effects” from the a/SAH. My aneurysm ruptured in April 2012. I am currently on disability through my employer. I have applied for SSD, but have been denied twice and am awaiting a hearing date. I have daily head pain and migraines. The pain can be almost unbearable sometimes. It is terribly frustrating also. I am fortunate that I “look” normal, although I feel so far from it. Daily head pain actually changes your personality. I am no longer outgoing like I used to be. Ya just don’t feel like socializing when you have a severe migraine. Lights and activity increase the pain and noises are greatly amplified, increasing the pain also. I don’t know when I will be able to return to work in my current situation. Fortunately, I am followed by a neurologist monthly so there is lots of documentation. I hope SSD comes through because my employer benefit is running out soon. THAT causes a headache in itself. I rarely get out of the house also due to the many meds I take, like you. I know driving is unsafe for me and it is not fair to other drivers for me to be driving “under the influence.” Blessings and prayers to you. Know that you are not alone. =)