Ok, I saw neuro dr last Monday. The visit went well. I was able to tell most of what I am experiencing. I forgot to take my notes so I had to work from my head. I will see him again at the end of the month. He scheduled another EEG and I am praying with all my might that something shows up this time. At the same time, I don't want to experience those events ever again, but I don't want to look like I'm crazy either. You know what I mean? New: I have been experiencing horrible bouts of continuous yawning. It last for about 1/2 to 1 hour. Then, the plug is pulled and I am totally totally drained. It's happened before and of course this is one that I forgot to mention to neuro dr. I also for got to mention the pressure in my left ear and the extreme dizzyness that follows. Seeing the colors is getting worse. My white stars are turning blue (that's new). Tomorrow, I meet with the pyschiatrist. I hope he tells me it is anxiety. I can live with that. I can work with that and probably continue to drive. thanks for listening to whomever reads this. I will keep you posted.
I hope you (whomever is reading this) is doing well. I hope you have a wonderful day. God Bless & Hugs!
Hi Mary, I think even after our procedures the brain, body, and spirits are impacted by what we have been through. Some of it is probably physical and of course being human we have emotional reactions as well. I have read that PTSD is common in aneurysm survivors. But your symptoms could still be physical, too. Before my aneurysm was diagnosed I started getting extreme pressure build up in my ears and objective (means other prople can hear the pops coming from your ears) tinnitus. After surgery, my tinnitus is intermittent vs constant, but the ear pressure and bouts of dizziness still remain. Bet there are more people on this forum with similar symptoms like ours. Hope all goes well with your visit and test results.
Take Care, Mary
Hi Mary,
I’m so very sorry to read of the troubles that you are having. In my case, seizures began approximately 1 year after the surgery and they are well controlled. Last week, I was helping to research seizures for a friend who unexplicably experienced a grand mal is now trying to find the cause. My understanding is that temporal lobe seizures can produce some of the symptoms that you’ve written about.
Were you on antiseizure meds that have been discontinued?
Please call, e-mail or fax your neurologist and provide the additional symptoms that you forgot to tell him about. A written communication is preferable as this has to be put into your files.
Thank you Carole for that suggestion. I was told by the pysch dr that I'm putting to much energy into remembering what happens to me and avoiding things that seem to provoke them. I'm not going to worry with it any more. I will have the EEG, see neuro and pysch dr after that, and then I'm going to wash my hands of it. They're starting to convince me that it's all in my head. I'm becomming a wreck! Lot more to say, but starting to depress myself, and I don't want to depress you or anyone else reading this. Gotta keep on keepin on and keep on movin on. I find refuge in knowing that, God will not put on me more than I can bare!
God be with you always and I hope you're friend never ever has another seizure. My sister in law had a seizure after her first child was born, she's never had another one and he's almost 30 years old. My prayers go out to everyone in need... mentally, phycially and emotionally.
I think you are right Mary. Im still trying to navigate in this site. I haven't really found anyone experiencing what I am. So that also makes me think perhaps it is anxiety or in my head. I think I'm going to give it a rest. Finish the test so that I'm compliant and not defiant regarding insurance. Then I'm done. I wont have to deal with dr's for another 3 years for ct scan and angiogram or whatever they call it.
I will post results of EEG, if they are negative then I can put this all behind me (try real h ard to)
but if they are positive.....? Nevertheless I will post either way. : )
Please don’t let anyone try to convince you that your are crazy. “You are a victor and not a victim” (to quote Joel Osteen). It’s important to remember that each of us in charge of our health and our healthcare.
May I suggest that you approach this as a problem to solve. Document symptoms, identify relationships between symptoms and events and have information available to share in a narrative form along with questions for your next doctor’s visit.
To be honest, I don't know what to do and I don't know where to go. I just don't know.
I've been spending more time with my sister in law. She's been trying to keep me pre-occupied, even then, i have these little events. I am so happy she's in my life. I think that God moved her back to my side of town just for me. knowing how badly i needed someone to talk too and some place to go. I gotta believe that.
I will continue to keep a journal/log of the events that take place with me. In the event I find another dr. I too have read up on seizures, anxiety and psychogenic seizures as well. I personally think I am experiencing the onset of simple partial seizures and anxiety. What's going to happen to me? What next?
I don't know how to keep doing this, but I dont know how to give up either!
I don't want to have a granmal seizure, or lose my sanity in a public place, lose my job because of my quick tongue and my frustration. I want them to do something now! not later, now! before i'm stretched out in an ambulance again, now! so that it can be treated and prevented. right now! before it causes me and those I love any more pain.
Your pain and angst come through very strongly in your writing. I hurt for you. We all approach challenges differently so it is difficult to tell anyone else what to do. I don’t know what will happen next to me or to you. I can only share my approach to solving problems.
I’ve had a grand mal seizure in the lobby of a Hyatt Regency and in a Bennigan’s restaurant. I dont’t care to experience either again but it was not life ending. What my doctors and I learned from those experiences is that my seizures tended to occur on Friday nights when I was overly tired and stressed and may not have taken my meds in accordance with instructions.
Your frustration level begs for calmness. Please try to gain this through centering prayer or meditation. Writing can also help.
Only you can connect the dots between the triggers and the results. At work, practice counting to ten or walk away when people annoy you or you feel the frustration rising within you… Try your very best to get enough sleep.
I get a lot of help and support from my PCP. I know that this is not the case for everyone but I would encourage you to enlist the help of yours. Is it possible to get an earlier appointment for your EEG?
More importantly, do pray that God will grant you his peace. I will pray with you.
thank you Carole. I truly appreciate your words of wisdom. I just broke down and had a good cry and I felt a little better. I've been writing for the last 6 months. I've pretty much written a book. I agree, it's theraputic (spelling). My EEG is scheduled for next wednesday. I will see all dr's this month except for cardiologist.
I was taking lyrica, it seemed to help, but the prescription got all messed up between pharmacist, insurance etc. The pysc dr. offered it to me again, I declinned. I guess I just want clarification and or a diagnosis. I dont want to take meds just to be taking them. I have a phrase that I use now to describe my absence from others even when present and I call it "down the rabbit hole", that's where im going for just a little while. Meditation and prayer are always good.
thank you again for your time, advice and prayers.
Please check the side effects of suddenly terminating lyrica. Lyrica is used to control partial seizures. It may be to your benefit to renew the prescription pending receipt of s diagnosis.