Sigh!

I know that some of you have been wondering about me so here is a short update.

As of yesterday I was told that the surgery that was done last Thursday looks at this point like it might not have worked. My neuro is dumb founded, he told me that from his standpoint there is nothing more he can du unless my problems turn out to be some sort of reaction to something that is in my head. Day after surgery I looked perfect, the next day the liquid filled bubbles were back bigger then ever. My semi facelift is already dropping. The plastic surgeon is also at a loss.

I was told although it won't kill me getting on a plane could end up painful and or I could end up with massive swelling. It's totally unknown. This has never been seen before by anyone here. I have spent the last few days just crying because I didn't know how to tell my kids all this and how do I tell my daughter as of right now I can not come home for her big wedding or the birth of my grandchild. I have talked with all of my children now as of today. (very emotional) I am going to check out if there is a train that I can take from here to England then a boat from England to the States.

My neuro even though can not do anymore is still going to try and find someone that can explain what is happening and how it happend. He is certain it has something to do with my first surgery (no kidding).

I am sorry that I have not updated sooner, I just needed some time to figure some of this out, try to think of how I was going to tell my kids, they had to be the first to know. Feels good that I have talked with them now.

I need a vacation!!!! I am jealous of all of you that have major signs of spring..lol

I hope and pray that all is well with everyone!!! Your in my thoughts daily!

((((hugs))))

Kimberley

Kimberley,
So sorry to hear this. I have been praying daily for you. Praying doctors will have wisdom to figure this out.
Deanna

Kimberley,

The biggest, warmest, hug I can deliver across the Atlantic; wish I could send a spaceship; wish my shudlers were broad enough to reach you. I am pleased (better word? you got with your children/family. It has to be trauamtic for you all. I am saddened by all that you have been through.

If you have already explained any of the following, please forgive me for asking again.

1) what did he tell you that could have happened or did, in your first surgery?

2) could massive swelling rupture; opening potential of inflammation, etc.?

3) has he done, or talked about potential, of tracking the fluid flow, by monitoring a dye color?

4) what similar to a shunt to avoid hydrcephalus, can be done to cach before your buble, and/or routing from your bubble?

5) i.e. could he re-route it to the tube in the eye that generally moistens the eye; or nose or?

6) when the CSF ventricles can be routed w/shunts to drain elsewhere, what can be done for yours?

A picture is worth a thousand words; and, yet one picture will not tell the full story...

7) Has he shown, explained the areas of your aneurysm, the access to it, and what he thinks (or knows) occurred during your initial surgery.

8) What terminology has he used to describe the bubble?

9) has he checked all the PubMed data for similar issues?

10) What specialists in other faclities, has he sought info from?

If I am repetitive anywhere, forgive me... no intention...

Prayers, love and hugs are surrounding you...

Pat

Awh Kimberley how awful for you, I wish there was something I could say or do to make it better for you. The only thing I can say is there is a boat you can get from States to England and visa versa, my Nephew has a brain tumour and was residing in the States and he came home to be with his parents Oct 2010 by boat. I hope this gives you a little hope, healing hugs and best wishes to you, Jill xxxxxxx

So sorry. I am sure there is a way to get you across the water. May be expensive but for our kids we will do anything. Will continue praying that it corrects itself or the figure it out and you make it home for both big days.

Linda

((((((((((Kimberley)))))))))))))))

I can't even imagine how you are feeling...you do what you must...and know you are in my prayers everyday...~

Cyber~Hugs and Healing prayers your way...Colleen

*HUGS* to you Kimberley. I know it doesn't help much, but we all really hope you will be ok. Someone somewhere has to have an answer for you. Keep looking. Google it. Do your research and stay strong sister! Keep us posted when you can. Until then, prayers for you and your kids.

Dawn

Aww Kimberley, I am so sorry for what you are going through. Some one will figure this out for you, don’t give up, keep pushing ythe doctors to search for answers. I will keep you in my prayers.
Shelly

Oh Kimberley I am so sad and disappointed for your part, I don't even know what to say. I have been praying for you and it's so disheartening, especially about your family. You are so strong and I pray that God will keep you in his hands and carry you through this.

All my love to you Kimberkey

Shauna

Praying for a miracle in your life. Keep updating us as time permits. God bless you and free you from this affliction.

Kimberely, haven't been on here for awhile and just now saw this update. I'm bummed out -- give it sometime and maybe all will be better. I'm hoping that you recover and can enjoy being with your family as in the past.

Prayers geing sent your way.