Hi I had my ruptured Anni coiled back in June. I was lucky so everyone says to have a quick recovery. But I have lasting effects such as painful brain spasms, a very sore and snapping neck and while I have tried to ignore it, the constant ringing or buzzing in my ears is starting to make me insane…anyone the same? Any recommendations?
Hi! me too , neck spasms quit at 1 yr mark but tinnitus is louder than ever, i hope they find a cure! tc
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Hi Kparry,
Recovery is a zig zag process. When I was discharged, I was so surprised how fast I recovered and went back to work to early. I developed a chronic vertigo and double vision which became so bad that I had to go on Medical Leave. It took about 2 years of Neuro-Rehab, prism glasses and medication to finally control. Tinnitus is “ringing of ears”. It is usually associated with hearing loss but the ringing is brain issue. In my case, it was a vertebral/PICA rupture which resulted in SAH near the brain stem. It is also the location of vestibular/auditory neural path. Where was your rupture location? Also, do not go to a chiropractor. I had a really stiff/snapping neck. It was almost like a metal rod where I had difficult in moving my neck. Then, I had a neck adjustment. I started getting headaches. 4 days after, I had the rupture. Vertebral is a neck artery.
I hit the reply button to fast. As the bleed was close to the vestibular/auditory pathways, it ended up that I have single sided hearing loss in mid range. For this reason, I have “ringing” in my ears. At the Ear, Nose, Throat, they told me that there is expensive therapy to mask the ringing. I found my own therapies using sounds that very calming like a medication bowl, sounds of ocean, and other tranquil sounds. If there is complete silence, you notice the ringing which will drive you crazy. So, these sounds are good countermeasures when the ringing is really bad
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KParry,
Call your surgeon about the stiff neck and spasms. I had a multi lobed mother that popped and one of the daughters grew. It had to be coiled. I was having vasospastic headaches which the second coiling controlled pretty well. I believe my rules were stiff neck and headache, call immediately. Stiff neck, headache and upset tummy - go to ER immediately.
I too have developed tinnitus, sometimes its excrutiating, but having passed my 3 year mark, I can mostly ignore it or at least not have that sound at the forefront. Sometimes just tipping my head at a different angle can make it get worse or better. Sometimes I can drink a hot cup of tea and it relaxes, or maybe its just me that relaxes?
Wow thanks for the responses. I am still new at this. . Don’t know what to do. Just had a CT SCAN waiting on results. I just want this over. My pain in neck and head are now mostly periodic. . That is I will get sharp pains thst last 30 sec to 2 min then ok … but still have dull ache that I guess I am used to.
Thanks it’s helpful to talk and hear others’ experience … not so alone in this. Thank you
my ringing does not make hearing loss as someone said, if anything hearing is better but i cant identify strange noise sometimes, tc
Thanks tonk. I find hearing is much better than before I now carry earplugs everywhere and that helps a lot. Still get the ringing and the sharp pains in the brain … bright side… still here 
So its been about 1 y 5 months since my first coiling and had my 2nd coiling on same leaking annie about 2 months ago. neck pains are mostly gone with some spikes weeks apart - though the ringing in my ears is still there and loud as ever.
My hearing is more acute or sensitive since my annie - someone told me that ringing or tinnitus is caused by loss of hearing. I havent been professionally checked but other than the constant ‘white noise’ of the tinnitus I can hear fine. uhg
With your ringing do you sometimes get a strange noise like sharp loud buzz like a shocker maybe. Kind of scares me as it has been 25 years since I had the surgery for the aneurysm. Then about 3 months ago the new noise started.
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My experience of tinnitus was a mixed blessing for me. It caused my ENT to request an MRI to rule out Acoustic Neuroma as the source/cause of the tinnitus. Fortunately, no evidence of Acoustic Neuroma (a noncancerous tumor on the vestibular nerve) was found, but it did reveal an unruptured intracranial aneurysm. Had I not experienced tinnitus to begin with, I would not have discovered the unruptured aneurysm. Thank God for mixed blessings.
As for the tinnitus, I listen to and watch Dr. Berg on YouTube. And he once suggested that tinnitus sufferers try Benfotiamine (Vitamin B1). That was enough for me to do some research and I gave it a try. I can report, from my own personal experience, that the intensity of the tinnitus subsided significantly, so it is now part of my daily supplement regiment. Benfotiamine for Tinnitus - Viable Treatment Option? - Tinnitus and You
P.S. I am not a doctor nor have I ever played one on the boob tube. It is always helpful to run any intended supplement you want to take by your doctor.
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As @Peter mentions, you may want to see an ENT. After I ruptured I had non stop ringing and wasn’t sleeping because of it. My PCP gave me an easy fix - an old oscillating fan. The clicking noise seems to stop it when I’m trying to sleep.
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My ENT just said the nsaid can cause it not to worry I have had tinnitus for over 20 years so I not sure if he would bother if I tell him about the other noises I might try the vitamin
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I have always had to have a noise going especially while sleeping they sell noise makers I travel with
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My apologies. I forgot to include the fact that when I first started experiencing loud tinnitus, I first went to an audiologist to have my hearing tested. It was the result of that test that prompted the audiologist to suggest that I see an ENT to rule out Acoustic Neuroma. If you are experiencing severe tinnitus, you may want to see an audiologist first to determine if a hearing loss is at play.
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Yers ago I scheduled an appointment with the audiologist because sounds hurt and my tinnitus was really bad. For some reason my Neurologist’s office rescheduled me to also see my ENT (they’re in the same office). The ENT said there wasn’t anything that could be done about the tinnitus, but the audiologist was helpful, my hearing had improved dramatically. Apparently my hearing had lost about 40 years of the normal wear and tear they expect with someone at the age I was at the time. She’s also the one who suggested ear protection. The audiologist called upstairs to the ENT who came out to talk to me as I was checking out. She surmised it was the vast improvement in my hearing that was causing the tinnitus and it would eventually level out. Since then there’s been an increase in the research on tinnitus and many things are available now.
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My biggest worry is at time I get a different sound from ringing to buzz buzz then back to ringing usually when I first get out of bed
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Allergy season seems to have come early this year and I’ll hear a high pitched sound sometimes instead of the usual ringing. I also get pressure in my ears. When the sounds are different I do two things, hydrate and a nasal rinse. I had asked the allergist about it but I’ve forgotten what she said on why it works, so I just looked it up and found this article https://askanaudiologist.com/allergy-induced-tinnitus/. It’s interesting that the author suggests going to an audiologist to determine the cause of tinnitus. I don’t think I’ve ever known to do that.
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