Hi
I am a survivor, one burst in 2017 which was coiled, and a stent placed in front of 2 other unruptured annies… i get headaches occasionally but lately a new one. I am getting headaches across the back of my head…ear to ear & from the bottom of my hairline to the crown of my head. Its been consistent and going on 2 weeks now. Has anyone had anything similar??
Hi @Bsgirl,
I am an unruptured survivor (clipping 2016, FDS 2021) and I do not experience headaches, however, the way that you are describing these is very specific. I am assuming you are getting scanned at least once a year? If you do not have a neurologist, you may want to call your PCP or internist. My aneurysms were discovered after I had an MRI/MRA for a very specific headache (right frontal area that I could take a marker and draw around; about the size of a half dollar. Same place every day). What’s odd is they went away on their own after the scan, and have not returned. I call them my good luck headaches. They probably saved my life.
Please let us know how you are doing!
Kim
Hey Linda,
Yes, I have had something similar. It was explained to me that the muscles in our necks hold a lot of our stress. These muscles are connected to the base of our skull. This tension pulls on our scalp and our skull and can be a source of the headaches. I was trialled on a few differing therapies from a TENS machine to Bowen therapy to Botox. For some people these therapies can work wonders, but unfortunately I’m not one of them. I also tried acupuncture.
The lady who did the Bowen Therapy showed me how to self massage the muscles in my neck which did provide ‘some’ relief for a short period, but nothing as a long term fix.
I would recommend, with your dr’s advice on suitability, to trial them all. You never know one of them maybe just what you are hunting for.
Merl from the Modsupport Team
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@Bsgirl I had a rupture back in 2013 and have had several different types of odd headaches, before and after. The ones prior were usually at the base of my skull and ran across, my neck would be stiff, they were always diagnosed as stress headaches. When I started getting them after the rupture, my neurologist sent me for a full spinal scan and I have vertebrae issues. My Neurosurgeon pronounced several different types as being possibly dehydrated. There is a sharp pain I used to get on the left side that always led to a scan and subsequent angiogram and more coiling. Like @phoenix33 and @ModSupport suggests start with your PCP or Neurologist. If you decide to go, let us know what your doc says, please.
All the best,
Moltroub
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I ruptured in 2019 with SAH. After a coil, a flow diverter, a stent in my neck and a spigot screwed in my head, they told my husband about “the” headaches. The surgeon told him I could have them for a week, months, years but I would probably have them for the rest of my life. So far he’s right. It is my constant companion. It changes positions and intensity but it’s always there kind of like a pain accompanied by brain fog. Some days I can see through the fog, some days, not so much. The best I can say is my neurosurgeon told us about it. He said he was sorry but the headache isn’t going anywhere. Bright side . it’s nothing like the headache I had when I ruptured. I may not remember anything else, but I will never forget that headache I had when I ruptured. Good luck, I have heard rumors about Botox treatments helping. They’re sticking needles in me enough so I think I will pass.
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