Warning: I am sad and frustrated so if you’re looking for inspiration this is not the post for you.
Prior to my stenting and coiling in July, I expressed concerns to all involved - even this forum - regarding issues with follow up and managing co-morbidities. My major concern about stenting/coiling over the open procedure or doing nothing was that I feared a reaction of my inflammatory condition and an inability to manage it effectively because of the anti-platelet therapy. I was also concerned with Mayo’s distance while trying to work etc. and who would follow up with me effectively.
Now my fears are coming true. I have had increasing migraines with various auras. I have a visual disturbance in my right eye which I am becoming more and more convinced is a blind spot because it is there all the time now. I am triggered by light and experience frequent nausea/sea sick feelings. This has escalated over time as I have been trying to work a full time job as a high school teacher. I now have constant headache. My scalp hurts. It hurts to move my eyes. I have pain in my jaw at times. And the worst part is the lack of energy, apathy, and brain fog that is accompanying all of this.
My PCP sent me to the local neurologist. He is sending me for a stat CTA that I will have done today and he prescribed a Medrol Dosepak as we both feel there is an inflammatory component to my reaction (like I anticipated). I am calling to make an appointment with my rheumatologist and with an ophthalmologist today.
Meanwhile, I have been out of work for the past three days. I have very little sick time accrued due to my ongoing medical problems. I like my job and would like to keep it, but I am really struggling over the last few weeks. High schools are bright, loud places and the work is hard. There is no resting while there. I also need this job for my insurance and I am not vested in my retirement just yet. I could potentially take unpaid time and pay my insurance out of pocket, but money is tight. I continually remind myself, though, that my situation is not as hard as some and I didn’t rupture. There’s always that. And I am hoping that at least the CTA will show that the aneurysm is taken care of.
So, one step at a time. I will go for the CTA today, take the steroids, and hopefully I will feel well enough to return to work tomorrow. I probably won’t see any replies for a while because I am trying to avoid computer screens, but I needed to vent and I thank you for listening.