I had a pipeline 2 weeks ago and am still experiencing headaches and blurred vision in my right eye and nausea I am suppose to go back to work next week but driving is difficult although doable but am nervous as my sight is not the same. I still experience headaches which cause my vision to be worse I work on a computer all day I am using advil and Phenergan when it gets real bad. I also have to take Plavix, and HTN meds and aspirin. Has anyone experienced this and will it get better. If I do too much I am so exhausted and normally I am a very active person so it has been very frustrated. My unruptured aneurysm was located in the 3rd cranial nerve along the sphenoid bone by optic nerve. Any feedback would be much appreciated. I was told prior to surgery that recovery is 10 days but this seems to be on to longer that I had anticipated Will my vision get better? How long does it take for inflammation to decrease as I will need to get new glasses but it may be too soon.
Hi all, I had two PED stents placed behind right eye 11 days ago, initially had floaters, pain, sharp, behind eye and headaches, past two days have been great, today I did become overwhelmed getting caught in a parade going by and I my brain felt like it was working too hard in problem solving, went home and slept for hours and am feeling more normal, hoping you feel better d.clark, Ellie
Hello d.
I have an aneurysm on my third nerve, behind my left eye. It ruptured about 12 years ago and they performed emergency surgery to Clip it. I was told it was a permanent fix and after 10 years to get it checked. Well, I decided that I wanted it checked every two years just to be on the safe side. So I had a Cat Scan with dye every two years. That brings me to the pipeline. In late November 2012, they found that my aneurysm had redeveloped into a fusiform aneurysm that could not be clipped. I had the pipeline surgery on 12-12-12. While the recovery time was much shorter about 3-4 weeks. Compared to 3 months when they clipped it.
With the pipeline, I've had some issues and continue to have issues. Chronic fatigue, dizziness, headaches, visual disturbances and after 6 months they took me off of plavix and I began seeing floaters more so and different than the others so I went to the E.R. and I was having mini strokes... So back on the plavix for life.
I then suffered a massive seizure on 2-27-2014 and fractured my spine in 7 places along with my left arm/shoulder and I did not have epilepsy!! The doctors said that my aneurysm and seizure were NOT related but the seizure was located where my aneurysm is...So whatever. I do not believe them.
Whenever I share my experiences with people who've had or are considering the pipeline, my intention is not to frighten anyone but I also believe that we all have to be honest about our experiences! The pipeline is a relatively new procedure and they don't know about the long term side effects. That being said, I'm not the typical case. Most people do very well with it and recover without incident. Everyone is different. Just take your time and rest! If you feel like something is wrong, do not hesitate to go in. One thing I've learned without a doubt, is that you have to be your be your own advocate!!!
Keep us posted and I will send some prayers your way!
d.clark said:
I had a pipeline 2 weeks ago and am still experiencing headaches and blurred vision in my right eye and nausea I am suppose to go back to work next week but driving is difficult although doable but am nervous as my sight is not the same. I still experience headaches which cause my vision to be worse I work on a computer all day I am using advil and Phenergan when it gets real bad. I also have to take Plavix, and HTN meds and aspirin. Has anyone experienced this and will it get better. If I do too much I am so exhausted and normally I am a very active person so it has been very frustrated. My unruptured aneurysm was located in the 3rd cranial nerve along the sphenoid bone by optic nerve. Any feedback would be much appreciated. I was told prior to surgery that recovery is 10 days but this seems to be on to longer that I had anticipated Will my vision get better? How long does it take for inflammation to decrease as I will need to get new glasses but it may be too soon.
thanks so much for your feedback It helps to hear the feedback It is so frustrating that I am still having headaches and blurred vision almost 3 weeks in so to hear I am not alone feels better.
Greetings d., I had 2 Pipeline Flex Embolization Devices (telescoped) inserted across my unruptured large 16mm R-ICA, 9mm wide neck aneurysm in June 17, 2015. This was the only viable option for me and I am doing very well 9 months out and my 6-month angiogram showed good occlusion.
At the time that aneurysm was found, I experienced sudden horrible severe pain in my right eye and head, turns out aneurysm had bulged and pressing against my optic nerves. I had III/IV nerve palsy; my eye lid totally shut and I was unable to tell it to open, when held up by my Neuro-Opthmologist the eye could not focus and I could only see in double/quad blurred vision. He said it could take from 6-18 months for eye to return to “normal”. Of course I was unable to drive and the left eye became tired when reading or watching too compensate for the damaged right eye.
Slowly the eye pressure was removed as the aneurysm shrunk, I also wear stronger glasses than before and a prism lens on the right and am careful of positions that cause the eye to see double again. I drive now and have no limitations, realizing the brain can take a long time to heal. Everyone is different but common are headaches and tiredness after the surgery and possible vision problems. I feel so lucky the Pipeline Flex was available and I had a great Dr. and Hospital in Boston, MA, I expect the same when I have my L-ICA aneurysm fixed.
I learned to rest often in the beginning and not overdo, you may want to talk with your Dr and see a Neuro-Opthmologist to help with your vision recovery. Take care of yourself and do take the time to heal.
Where were you treated Martin?
How are you feeling now?
Hi I was treated at the JR Hospital in Oxford in the UK, it all went well with no side effects at all.Kind Regards MARTIN CONNOLLY+44 1235 799931MOB: +44 77952 ■■■■■■■■■■■■■■■■■■■■■■■■■■■■■■■■■
Hello, I’m doing well thank you!! Hoping you are too. Francine
Thanks for the messages, it seems so long ago I originally posted. It turned into a bit of saga for me and I ended up in the Walton centre from may to October last year to have various issues sorted. I had microvas ular decompression of the trigeminal nerve but ended up with a constant CD-R leak through my nose so had to be reoperated on a couple of time. The pipeline got done in September and the little bugger moved so part of it went into the aneurysm itself so I was quickly whipped back to theatre to have extra stents and coils to safely occlude it off. I’ve had my six month follow up and it’s is occluded with no blood flow 
I have a teeny 1-2mm which is just a watch and wait for now. But the big beast is sorted and I’m very relieved!
Same here found Aneurysm in 2009 was 2mm Now is over 7mm. Had a Stent placed Monday ! March 5, 2018.
It was 7mm huge base this no coils used. Located in R ICA 5 CM behind my right eye! My Headache driving be bonkers 
I’m feeling tired as a wee Baby 
and haven’t had a BM in 6 days is that TMI 
Hopefully will have the pipeline soon. Mine is also behind my right eye. Scared is an understatement
It’s a lot of worry that’s for sure. But once the procedure is over is great . No more worrying about the darn thing bursting in your head ! What a relief 
I feel great it’s April 10 and my procedure was on March 5th. I had an amazing funny down to earth surgeon that was just so comforting . Good luck to you and you will be just fine 
Thanks.
Carla Poole
do you know anyone that had the ophthalmic artery covered by the PED? I think my aneurysm is actually at the superior hypophyseal artery
do you know how close yours was to the ophthalmic artery?
Hi Capoole73;
Haven’t been on in awhile and just saw some of your posts. I had 4 “annies”. I did have a 6.5mm right ophthalmic artery besides my other 3. I had pipeline stents put in. My eyesight didn’t change. I do have silent migraines almost once a month on the right side and some imbalance issues at times but otherwise doing well. Silent migraines aren’t painful, you just see a zig zag pattern and I get tired after. Google them. Keep positive!
MiMi B
I just had a stent put in for my para othomolic right anuersym…12 days ago…I am noticing I’m so so emotional right now and I am having a bit of trouble hearing, as well as I get so dizzy throughout the day…is this normal?
My procedure was May 11 of this year. I was dizzy, unbalanced for a couple weeks. But that soon went away. I had no trouble hearing though. I did have flashing floaters in my eye and still do occasionally. As for emotional, I’m still emotional but I think that is normal for what we have been through. The recovery seems to take a little while but it does get better. I go back for my follow up MRI in December. Where did you have your procedure done?
On the 5. Of October…I am hoping the dizziness goes away. It getting frustrating. What do you do,about the flashing in your eyes… it does go away but again a bit annoying…I go back for another angiogram in April