Just checking in

I wanted to come on and provide you with an update. On 02/14/21 i had my 2nd ruptured aneurysm and then a stroke i have pushed thru this last year with some difficulty my memory is very bad my balance is awful and i have had a constant headache since this happened. I have had many test in the last year. My neurosurgeon or other doctors here have never had a patient survive 2 aneurysms, but just this monday i had a ct scan come back that i have another aneurysm its very small so on the 25th i go for another ct scan to see if it is any larger. I have worried every day since this happened will i ever have anymore? well folks the answer is yes! It is very hard to deal with this let alone worrie if you will have another and will this next one be the one that kills me…but thru everyone on here i am helped everyday to contine to push on and try to keep my head clear Thank you! Just needed to vent my feelings having a hard time dealing with the new aneurysm

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I am so sorry you have to deal with a third one Ms. Kim. Please take heart that medical science is improving even as we speak. With just one ruptured aneurysm it may be easier said then done, but I was fortunate enough to have gone through four repairs and the last one seems to have done it’s job. I just had to wait long enough for science to catch up with my needs. So please hang in there, science will catch up with you as well!

We are here for you in whatever way we can help over the internet. Vent all you like. It can be difficult, but find the positives in each and every moment, it helps alleviate our fears and stress. Just imagine us all crowded into your home standing right behind you, holding your hand, easing your worries.

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Dear Kim2,
Thanks for sharing your story with us. It is amazing! This is the place to vent.

May God continue to keep you in His care and provide you with healing. It is my prayer that this new aneurysm has not grown and that you will not need another surgery. :pray:t5:

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Kim I pray the results from the your very small aneurysm are positive. Vent away! That’s fine with me. My rupture of two annies was in 2013. I know you are scared and worried but like Moltroub said…science is improving. Sending you only good thoughts. Keep us posted. :raising_hand_woman::cherry_blossom::tulip:

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Thank you @Cathy1 I’m praying too. Did you or did you have a headache after your two aneurysms I havent been able to get rid of this awful headache since my 2nd ruptured the doctors here have never had a case like mine i just need answers on how to get rid of this headache it affects everything i try to do, I’m having a hard time working im just so tired of my head hurting. Any help would be great

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Thank you @Carole_G i can use all the prayers i can get

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I hesitate to tell you but I still get headaches. Definitely not as severe as in the first two years of recovery though. They were brutal. It’s so important to rest if you can. I kept a little book and wrote down the time of headache and what meds I took to try and relieve them. I had to do this to keep track of when I would take the meds otherwise I wouldn’t be able to remember and didn’t want to take headache meds too close together. I still do this in my daily planner to this day! My short term memory isn’t good. I can only do one thing at a time. I can’t cook if anyone is in the kitchen with me. I can’t stand noise and get extremely tired if there is a lot of talking going on around me even if I am not participating in the chatter. The other day I was at the hair salon and almost walked out as soon as I sat down. They had a radio on, the hair dryers were going, everyone was talking at once! I forced myself to sit there, get my hair colored (ya, I still do that) and left as soon as my hair was washed without having it dried! Good thing it wasn’t too cold here in Toronto. I wish you only good things in your recovery Kim. I do ramble on. Sorry about that!

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@Cathy1 its ok if you ramble on i do it and i dont make sense but what you told me is a huge help i know its hard to predict whats going to happen because we are all different but any hope right now for me is a huge relief, my memory is also the same way i will be talking and forget what i was talking about, things i should know i dont i am also hypersensitive to noise i just can’t do it. I have a medication box i put my medication in because i also can not remember if i took them. I would be ok with the occasional headache but these are ridiculous and very painful. I also have a vp shunt to help with the fluid in my head and doctors think my headaches have to do with that, but just pushing on to get back to some kind of normal. Thank you again for your words they help so much

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I have rules my Neurosurgeon gave me that I have to follow to this day for headaches. Hydrate, eat protein, hydrate more. If the headache is t gone I have to rest, hydrate, eat protein, and hydrate more. If you search on our site here, you will find an enormous amount of topics dealing with headaches. Most of us get them, especially after a rupture that drops us to our knees but thankfully not another thunderclap headache! I learned here with our group that most neurosurgeons negative the headaches as being caused by the rupture or any repair they have done. I asked my neurosurgeon about it and she had no answer as to why the headaches continued in a daily basis.

The oddity of my headaches would diminish when our new pup would cuddle behind me on the couch and lay her head on my carotid artery. I started pressing on it myself when I began getting them. Dr. Quintero Wolfe, my neurosurgeon, advised me to be very careful doing this as it can severely lower blood pressure I think she said. But it did lead to repair #2, my coils had compacted.

My neurologist during that time and for several years, had me try different medicines for epilepsy due to a tremor I developed, none worked. He also had me take magnesium oxide I think it was as he believed Americans do t get enough in their diet. My body didn’t tolerate it well and sometimes I couldn’t make it to the bathroom fast enough. He also had me do a SPG block. The first one was a miracle and no more headaches for months. The second one hurt like the dickens and I wouldn’t have another which Dr. Quintero Wolfe said she was glad for that decision though I never asked her why. He called my increased issues with hearing and light “spidey senses” and was he ver right. Went to an audiologist to have hearing checked and mine had improved significantly. I wear ear plugs a lot and my sunglasses. I don’t bother with regular prescription glasses anymore as light is too bright. Unfortunately my neurologist and I fired each other when he and his partners sold out to a large corporation, it changed the practice dramatically for the worse.

My PCP suggested another neurologist who I saw. He put me on some type of addictive drug which I wouldn’t take unless needed as I became a zombie when following how he prescribed it. My PCP was none to happy about the medication. Fortunately he relocated and I had another at the same practice whom I dearly liked. He got it and worked very hard to help me. Unfortunately he left and I don’t know where he went, just that he moved.

By this time I’ve had repair #4, no more headaches, no stutter to speak of, aphasia greatly diminished, tremor gone. I credit the type of stent that was put in, as all my symptoms diminished, except for the fantastic hearing I have now and of course the photophobia which I’ve been working on. I was assigned to a new neurologist but he isn’t allowed to see me here in NC so I see his wonderful NP, Sergey whom I like very much.

The first time Sergey and I met, I think he was a bit confused as to why I was going to a neurologist. I was pretty much symptom free by then, seven years after my rupture. We went to a friend’s wedding that was supposed to be outside but due to weather, it was quickly moved inside. All my symptoms came back in a fury! I couldn’t even drive more than a couple of miles as it was too much. Was able to get into see Sergey who put me on a short course of medication to help with the headaches and immediately ordered MRI and MRA. He wanted me to lay down and rest in a quiet dark room, but that isn’t me. It’s taken about a year for my symptoms to subside again. I see improvement every day. Hydration and protein has helped immensely. I suggest you ask your Neurosurgeon about how much you should have. I have to eat at least 90 grams a day though I do better if I can get around 120 grams of protein in. Protein drinks and bars are really helpful.

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Hello,
Thank you for sharing your story. I can identify, as I had my first BA on 12/6/93 and my 2nd b-aneurysm on 12/12/2020 both in different locations.
The 1st was found while looking for “why I was having headaches”; clipped and no problems. While at the doctor’s office for the 2nd time with a headace for 5 days, I walked in the lobby door advocating for myself asking for a “cerebral angiogram” -, at that moment, I felt tired, set down in a chair, and immediately had a stroke in the lobby - I was immediately taken for a ct scan and they found I was bleeding in the brain. I was then transported 14 miles to a wonderful hospital where they saved my life. After months of rehab - I returned-to-work with some slow processing speed that got better. Allow me to encourage you that healthcare is advancing. Remind your self to say “no”, I’ll get back to you"; or don’t pick up every phone call that may cause additional stress. I’m learning that we are not alone - Stay postive and remind yourself that you are still here - live your best life and keep making memories.

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Welcome Noweapon and thank you for sharing your wisdom with the group!

Is absolutely spot on and something we all need to do!

Hi Kim
I hope everything went well for you yesterday. Please let us know if you are ok.
Cathy

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Thank you @Cathy1 so far i am ok i have not gotten the results yet i will keep you posted once i receive them. Thank you for thinking about me

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Praying for you :pray::pray::pray:

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Hi Kim2, I had headaches for years after my Annie, took lots of Tylenol, but a little over a year ago, I started receiving Botox injections for the headaches and they’re gone. It has worked tremendously for me.

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@Djs i have heard alot about the botox but my neurologist does not beleive that will help me they beleive that my blood pressure is what is causing my headaches so they are working with my PCP to get it down but so far nothing has worked so now hey want to try lidocaine injections. I now have another small anyerism that they are watching, i worrie everyday will this one rupture too my anxiety is so bad. All i do is worrie. I have a ct scan every two weeks. But I’m hoping the will figure it out, the doctors here have never had a patient survive 2 anyerisms so we try something if it doesn’t work we try something else.

@Kim2
I’m sorry you’re having to worry so much. I’m sure that doesn’t help the headache or the blood pressure. Do you meditate? I’ve found meditation helps tremendously with stress and keeping calm. YouTube has many videos for meditation.
As far as the 2nd aneurysm, do you live somewhere where you could get a 2nd opinion or go to a different hospital? Not all hospitals are the same or staff the best doctors for your condition.
I hope everything goes well for you. I will keep you in my thoughts.

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Are they wanting to do an SPG Block to deliver the lidocaine? I have had two of those back years ago, about a year or so after my rupture. The headaches were really bad, knee dropping occurrences before my neurologist at the time suggested it. I think my BP was checked by the radiologist before I could get the first one. I don’t have an issue with my BP.

You might want to ask your neurologist to order an MRI/MRA instead of CT scans. I had numerous CTs in the hospital they were checking for vasospasms I think and then they went to ultrasounds. I had vasospasms for a full 21 days, they aren’t fun. They say I can light up the entire County I live in with number I’ve had. My Neurosurgeon switched to MRI/A’s after my release fro NSICU.

@Moltroub they did not day anything about a spg block just that they want to do the lidocaine injections in the back of my head at the base of my skull and i have an MRA in june my neurosurgeon gives me those my neurologist is the one giving me the shots

Thanks! I haven’t heard of lidocaine being pit in the back of the head. I’m sure several members will want to ask their neurosurgeon about that! Hopefully it works out really well for you.