Nice to see there is some support out there… my mother died from a brain aneurism in 2002, we didn’t know she had it, I was 15 she was all I had… last year in june I had one rupture… didn’t know I had it… my daughter is 14, she would have gone through the same thing… not sure why I made it and she didn’t…I’m just glad my daughter didn’t end up like I did
Hello @Jens6246
It’s a sad story you have told us. It’s a terrible condition. I can’t imagine how it must have been for you losing your mother when you were at such a young age. Thank you for sharing your story. I hope you can find some support in our group. I myself have had and still has such a great help by just reading what others have gone through. A ruptured aneurysm really changes our lives in one way or another 
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@Jens6246 welcome to our group, it’s a very good place for support. As @oct20 said, I, too, cannot imagine losing the only support you had at such a young age, it’s heart wrenching. And then for you to have a rupture, only to be followed by what sounds like your daughter also ruptured, makes me want to say haven’t you had to deal with enough!
Since my rupture, I’ve had many people tell me they also had someone they were close to experiencing a rupture. Some make it, some don’t. I’ve had more than a handful ask why I was able to survive. Some were actually mad at me as if I had control of their loved one’s passing. One time, BH came out to the front yard of our old place and stopped a neighbor from screaming at me, saying to her that my pay grade didn’t go high enough. I think it’s a combination of current health, where the rupture occurred, severity of rupture, growing knowledge of medical science, and something greater than us that joined all together gives us who survive the opportunity to appreciate this world.
One thing I’ve noticed with the members here who have ruptured, we don’t take things for granted anymore.
I’ve moved your entry into the general category so more members will read your story.
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Thank you, no my daughter didn’t have one… just that she is the same age I was when I lost my mother to a rupture…she almost had the same fate… I was very alone when it happened, messed me up for a long time… it’s been almost 6 months since mine and they haven’t scheduled anything as far as follow up…except for a EEG to wear home for 24 hrs…trying to adjust to my new life everything is so different now
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I’m really glad to hear your daughter is good! My parents both lost a parent at an early age and I know how it affects someone. Dad was 10 when his mother died of cancer, his eldest sister took over raising the children that were still at home. He had 12 siblings, a big family. The loss effected them their whole lives in different ways. Mom was 13 when her Dad died, but she had five older siblings that helped out. I still cannot imagine having no one at such a young age, it breaks my heart.
I know the first or second week of being in NSICU, my wonderful neurosurgeon told us to contact family immediately. She is a strong believer in family genetics playing a role in developing aneurysms and wanted them all checked. BH made the calls to my nieces and nephew. Nephew blew it off, but the eldest niece told her neurologist and the younger niece had herself and one of her sons checked. He has some issues with his brain. Both came back good. The eldest niece said her neurologist would check next time she had a bout of uncontrollable migraines, insurance plays a big role in getting an MRA approved. Perhaps you will be able to have your daughter checked with such a strong family history.
I know with the pandemic, everything is backed up. Have you asked your surgeon about a follow up? Mine does a follow up angiogram after six months from having a procedure. I’ve learned here that some members don’t have follow ups and I’m not sure why. I always get an MRI/MRA prior to an angiogram. The only time I didn’t need an angiogram prior to a procedure was the last one as the MRA told her all she needed to know. Because of the type of aneurysm I have, the coils keep compacting.
Adjusting is very hard, it’s constant work that seems to be a life long endeavor at times. You can do it! Our members are full of skills on how to get through it. Take a look at different posts or ask them. I still use the suggestion @ronk made years ago about cleaning in a set direction and think of him often! I will add that it becomes easier the further we get from our rupture. I no longer have debilitating migraines, am able to do more around the house and my favorite chores that are all outside. I and BH no longer freak when I do get a headache, stiff neck and upset tummy. I still need to make sure I’m well hydrated and eat enough protein.
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Thank you, this is the 1st time I’ve spoken about any of it publicly… they haven’t even said the word angiogram until I joined this group… definitely need to get my daughter checked… have an Eeg Wed that I have to wear home for 24 hrs… that’s all they’ve said to me… I still have small seizures and have a blind spot in my right eye… had a grad maul seizure a few weeks after my rupture was intubated in icu for 5 days… then had an emergency appendectomy… been a hell of a ride
I lost peripheral vision and it took a long time to get used to it. On good days I get it back somewhat, on bad days, I have to turn my head a lot. Looks like the Foreign Accent Syndrome is going to stay with me as well as the aphasia which isn’t as bad as it used to be. Be kind to yourself and give yourself time to heal. As Merl @ModSupport often says, we have to look at the healing time in years, not months. I learned from my neurosurgeon to stay hydrated and from the RDN in NSICU that I have to eat at least 90 grams of protein each day. Even this far out, I find if I don’t hydrate and eat the proper protein, my brain gets wonky.
The holster monitor is just a needed inconvenience. Hopefully, it can answer the questions your cardiologist has, it did for BH. BH has an implant now that sends messages all the time, electronically. Medical science is awesome.
It took me over two years to get on disability. Hire an attorney yesterday. We wish we would have listened to the Social Security lady on the first call and hired ours. We finally did after a year or so. NC was behind about two years in listening to cases. When our attorney told us after almost a year that we would be waiting 27 more months, I made a call to a young man I’d met with our then new Senator. He remembered me and made a call which had me awarded SSDI the next week. Our attorney had told us SS in NC doesn’t have a code for SAH, maybe they do now. Hopefully your State does as it makes it easier. He also said the hospital had done their paperwork incorrectly, but we knew that as BH had to fight the first year with the lady who did the paperwork. She had me returning to work while I was still in NSICU! The seizures may make you more qualified.
Ask your daughter’s PCP for her to get the MRI/A to check her arteries just for piece of mind.
Remember to hang in there and be patient…