Firstly, welcome to the community.
“A lot of people don’t think when they speak.” Now ain’t that the truth, I’ve caught a few having little conversations about me. I confronted one person straight up, they were highly embarrassed, but got the message loud and clear. Don’t. And word spread quickly, ‘got something to say, say it, but say it to me’.
Now Botox. Yes, I have tried it. Botox can be of assistance for headaches if the headache is a tension type headache as the botulinum toxin releases the tension by temporarily paralysing the nerves to the muscles and tendons. BUT, for those of us whose headaches/migraines/head pain is not muscle related but have another physical/organic cause, Botox will not fix the headaches.
A bit of my story with Botox. Tried all sorts of meds post surgery (Craniotomy) from heart meds to epilepsy meds to psych meds, nothing worked and just made me feel YUCK. Tried all sorts of alternative therapies from acupuncture, manipulative physio, Bowen therapy, hydro therapy, massage, TENS machine etc, etc, etc. Consulted all sorts of medical ‘professionals’ if someone had a clue or an idea, I gave it a go.
I saw a neurologist, a very opinionated neurologist, who decided Botox was my best chance. I agreed to trial it. I had 3 rounds of treatment, each 8wks apart. And OHH BOY was it painful, it was like a bee sting. Some people say ‘Ohh a bee sting? That’s not so bad…’ but I was having 30 injections in my face, neck and shoulders. Front and back. 30 bee stings. nasty. Some people get this stuff put into their face, I couldn’t understand it. How? Then I was told when it’s used cosmetically they use a small amount of local anaesthetic before hand but as this was for medical purposes and not cosmetic, no anaesthetic was provided. Luckily I took my wife with me for the appointments because I had a headache from hell after the treatment and there was no way I could drive. I had a real sexy neck and shoulders but would have had to walk everywhere backwards to show it all off
I was prepared to continue with the trial, but after 3 appointments with no noticeable benefit, my wife put a stop to it. She saw the aftermath of the treatments and this, with the lack of benefit, was all too much. The neurologist was not impressed, he went into a big long speech about the brain and headaches, how the brain itself has no pain receptors and can’t feel pain, so it’s not actually ‘brain pain’, but the pain is often caused by tension. The only tension I had was caused by him. He proceeded to put it all back on me, I caused this. So I enjoy the pain that much that I do this to myself??? So I did my own bit of investigating.
It is true that the grey matter itself does not have any nerve fibres, the brain merely interprets signals from the nerves. The human head has 12 cranial nerves that control everything from swallowing to eye movement. From hearing to taste and pain receptors. Although the grey mater contains no pain receptors, the meninges, the layers over the brain does have such receptors. The meninges surrounds the entire brain and spinal cord. Any surgery resulting in disruption of the meninges can cause ongoing issues, including pain.
Now I have to say here, I am not a dr BUT I have deduced that my ongoing head pain is not due to tension, but is due to the surgery/ies themselves. I have queried the neurosurgeons about this (they didn’t like me questioning them) and in really basic terms it was either surgery or death. Not much of a choice, but there you go.
My personal recommendation, trial it. For some people it can be the miracle they have been hunting for and if it works for you, fantastic. But, do not be hoping for a cure because the disappointment if it doesn’t work can be huge.
Merl from the Moderator Support Team