Hi Texas,
My recovery after the surgery was actually a lot better than I was preparing for, thankfully. I decided to go through with the surgery in about April, and scheduled the surgery for August, so I had more than enough time to try to prepare for what I knew would be the scariest experience of my life. I was expecting to be in the hospital for at least a week. My surgery was done on a Tuesday, and I was home that Friday - 3 nights in the hospital!
There definitely was a lot of pain involved, however. I do have an extremely high tolerance of pain but I quickly learned to ask for the medicine before it got too unbearable. I was sent home with pain meds, but I switched to Tylenol after only a few days home. I had therapists come in to work with me at the hospital the day after the surgery to help me get up and walk. I was walking up and down a flight of stairs a day after brain surgery - it still amazes me.
I did ALOT of sleeping in the first few weeks after surgery. I was exhausted after doing almost anything. I did push myself to walk outside every day and I walked up and down the stairs several times a day. This actually eased the pain and made me feel so much better each day. My surgeon told me this would be the best way to speed up the recovery time and to prevent blood clots. There is a small mountain near where I live, and I was able to walk up the mountain only 11 days post surgery.
For me, the most painful part of this whole ordeal was the jaw pain. Six months post op and I still cannot open my mouth the same way as I could before the surgery. I still do get pain when chewing certain things. It has definitely eased up significantly, but not yet 100%. I am hearing that it will take a full year to be back to 100% normal. I am not sure if the location of your aneurysm will require the same incision, but my temporalis muscle was cut open to gain access to the brain and this effects the chewing mechanism. My surgeon advised beforehand that this was the most common complaint post-op, and I completely agree.
I was able to return back to work after 7 weeks. I did this to make sure I was off of the Keppra (anti-seizure meds) because they made me feel very groggy. I did not push myself too much the first few weeks. When I felt that I had enough, I went home for the day. I still felt the need to take a nap around 2-3PM and could not make it a full day without the need to lay down for about 10 weeks post-op. The pain wasn't the issue anymore, it was the fatigue that was still holding me back from normalcy.
From then on, things got better with time. I did, however, have a slight complication with the wound healing. The scabbing where the drain was put into my head was not falling off after about 8 weeks. I was told by my surgeon to go see a plastic surgeon because all of the scabbing should have fallen off by now. My instinct was right and when the plastic surgeon removed the scab, the wound was still open underneath. I had to go through a couple of treatments of silver nitrate to close the wound. After that, everything was pretty much smooth sailing.
The main thing I am currently dealing with is the occasional jolt of pain along the incision, which I have been told is the nerve endings. I also still feel pressure on my temple, though this has subsided a great amount over time. The other major thing I have come to terms with is the indent on the side of my head. As a 25 year old woman, I was not prepared for the cosmetic change. My surgeon did warn me ahead of time that the dimpling of the temple could occur due to muscle atrophy, but it does not happen in every case. I guess I was one of the lucky ones! I have spoken to a few others who had the surgery, and theirs is not as significant as mine, so it does vary person to person. There are options to fill in the indent, but I am not sure yet what route I will take, if any.
The absolute greatest thing that has come out of this all is a new found love and appreciation for life, along with learning just how strong I really am. I wish I had known about this support group when I was in your shoes just a year ago. Please know that there is hope, and whatever decision you make, you will make it through. If you choose the surgery route, just take a look at all of the success stories that this group has to offer. For me, choosing the surgery meant that I was in control. I was not going to let this aneurysm surprise me with an unexpected rupture. I was not going to let it control my life and restrict me from living to the fullest. Know that this can be treated and you can make it past these speed bump in your journey of life.
I am here for any additional questions you may have, so don't hesitate to ask anything.
- Cait
Texas said:
Many thnaks Cait390. YOu are giving me more insights and hope.
I like to know more about the recovery after craniatomy. Were you go back to work after 4-6 weeks? you mentioned you have some ups and down duirng some days, can you eloborate and how those issues impacted your daily routine.
you can email me at msjbabu@gmail.com, if you like to take it offline.
Again thank you and appreciate your response.
Cait390 said:
Hello Texas,
I had a successful clipping done of a 3mm right MCA aneurysm in August 2015 (about 6 months ago). I saw three of the top neurosurgeons in New York City. Because of the location and shape of my aneurysm, the coiling procedure was not possible. Two out of the three suggested that I do the clipping, while the third said to just monitor.
The two surgeons that suggested to do the clipping put many things into perspective for me. At the time of being diagnosed, I was 24 years old and experiencing a great amount of anxiety after incidentally finding the aneurysm. Both surgeons brought up quality of life and how living with the unruptured aneurysm would affect my well being and experiences of life. At such a young age, I would be limited to certain activities as well as never being able to have children (I know this isn't the main issue for you!). Both surgeons also made a good point about watching with scans - different radiologists read the scans each time they are done. Therefore, one may measure it as 2mm and the next will measure it as 2.5mm, indicating that the aneurysm is unstable and treatment is necessary.
Ultimately, it is your decision to go through with the surgery or if you can deal with the monitoring. Personally, knowing I had the aneurysm was just too much for me to deal with. The surgeons assured me that there was less than 2% risk of any complications from the clipping. I had a successful surgery and was only in the hospital for 3 nights. I was up and walking daily the next week. The recovery is not easy but if you have the will and determination to push through, it will be much easier than you had imagined.
Six months later I still have my days, but overall I feel pretty much back to normal. It is a personal choice, but I can tell you firsthand that I am so glad I chose the surgery route. The risk and outcome of a rupture is much greater than that of the surgery.
If you have any specific questions, you can always message me. I wish you the best of luck in your decision process.
- Cait