17 December 2023 member welcomes!

Hey y’all! Guess what? We get to welcome new members on this chilly, rainy day! We watched a movie “A Good Person” with Morgan Freeman last night. Towards the end of the movie Allison (Florence Pugh) is reading a letter from Daniel (Morgan Freeman) and he wrote about the meaning of his tattoo “Amor fati”. It’s Latin and means to love one’s fate.

It struck a chord in me as a survivor of a ruptured aneurysm. There are so many changes we can undergo, ruptured or not, craniotomy or emdovascular, it’s a lot to swallow. Sometimes the hurdles seem insurmountable especially if we have to experience the loss of a loved one such as @Joe and @Traci have had to do. Sometimes we experience the loss of who we once were. We need to grieve for as long as it takes and there’s no set time for it.

If we survive a rupture or procedure, we can get a lot of hurdles. Seems I’ve had to learn to go around hurdles and not go over them, just like my brain is trying to do with all the roadblocks thrown at my neurotransmitters. If I were to get a tattoo in Latin, I’d probably have “Memento Vivere” it means basically Remember to Live. Knowing one day, I will no longer be walking on top of the grass (Memento Mori) I really do want to live my life to the fullest I can. What would you have tattooed on you? How have you learned to handle the hurdles life puts in your path? Let us know in a new topic, please and thank you.

On to the new members and out of Latin…

@CanKiwi had a few hurdles, my goodness. In 2005, Jackie who’s up in British Columbia was diagnosed with an AVM. Jackie’s follow up scans showed an aneurysms which has now grown to 7mm. Jackie thought her increasing symptoms were from the AVM but now thinks the aneurysm may be the culprit. There are no specialists in her area of Northern Canada and she would have to travel to Vancouver! Apparently there’s some issues within Canada’s Health System because she refers to things happening as “crap”. Jackie has already waited three months to see a specialist and has no idea how much longer it will take, sounds like a long line to me. On a brighter note, Jackie says she a 68 year young woman with a husband, three large dogs and a parrot and loves living in the wop-wops (Canadian for the boondocks, boonies or just out in the middle of nowhere). She is living her life to the fullest and with a sense of humor! Welcome aboard Jackie!

@Peter is somewhere in the Southwest of the USA. He and coiling for an unruptured aneurysm. He shares the his story will be submitted. How about introducing yourself under the General tab and tell us more, we are a curious bunch and more importantly sharing is how we learn.

@JenniferJulia was in Vermont and relocated down to Florida which wasn’t a bad move at all. She met her husband and they now have two little boys. They found the aneurysm after giving birth to her second son and since her procedure, she hasn’t been the same. Come talk to us, we can certainly share our experiences!

@FoolyLiving is also in Florida. Andrea is a caregiver to her mother who is over 70 years old and has been in NSICU with an SAH for 22 days. She shares her mom was treated with Heparin and she had an allergic reaction which caused secondary strokes on both hemispheres in her brain due to the platelets given. I didn’t know that could happen, I thought of vasospasms. Andrea shares that she doesn’t no what to do as the doctors are already treating her mom as if she is dead and the RNs won’t talk to her anymore. Andrea come talk to us by starting a new topic under General. We can offer you some support.

That ends our welcomes for this week. Stay warm and dry and try to live life to the fullest possible.