Thanks for all your advice. I got a second opinion for my daughter and her MRA is scheduled for Thursday. It will give me a clear head 
Thanks sue. Not sure how she will handel the IV and if she will sit still. They will put her out if they have to. You would think after all her surgeries she would be use to it. But it’s something I guess u never get use to especially at her age.
Eye surgery next. Her Annie messed up her eyes bad. I said they are not giving her another operation till I know she is Annie free. She is aging me by the minute but she is my angel. I put a pix of her on my page. Amazing kid
Thank you she is truly amazing. 
as are you. Oxoxox
So Glad to hear this Angela...Keep us posted...
Colleen