It seems to depend on what is doctored the most in our symptoms and records.
As for med data on-line, it is excellent. Do you get on to the FDA site, too? What I like the most is Public Citizen's www.worstpills.org. Membership is $25.00/year; I gave many memberships as thank you gifts to family/friends. It covers supplements a/w/a prescriptive; however, it does not get into things like contrast dye, or others used in the hospital.
Today someone sent an email on statements of MD/RNs that were funny; as I sit here, reading/typing, I have decided I will do same from my records.
Tammy, 14 years is grand...wishes and prayers for your continued health
wow. i am just speechless. you're better off w/o the asshole if he can't understand what you've been through and are still going through. sounds like you're his scapegoat to get out.
bless your heart!! please tell me you have a good support system where you are. you really need it right now.
hi carole- im a little off base i keep comparing my story with other peoples-not everone here has had the sah like me,anyway Im happy to hear of the adjustments that are helping you-ron,ps if you are typing a comment dont switch back to another page-you will lose all your work
thanks Pat,yes i have quite enough exercises-thank you very much!!!!I'M KIDDING-seriously though,i have arm bands and ankle weights but not sure they're helping being put on my "plateau"Oh -what I'd like to know did neurotin help anyone or are we just guinni pigs? Prayers right back atja kiddo!-your pal ron
HiCarole,maybe for others but N/a for my condition-entire left side,being a painter i also had carpel tunnel and they gave me splints but what worked best was to literally shake it off by lowering my wrist and shaking it slightly.43years-i still can't believe it ,you are very lucky & Blessed cause they told me i was lucky-if the hemmorage happened 25 years ago they would have parked me in the corner & called the chaplain or priest-i was level 5.Trying to recall who told me that,i think it was a hospital aide that gets you ready for a procedure or the anestethiologist/have a great day
When my annie ruptured, we were told that without the surgery, my chances of survivalwere only 20% . With the surgery, there was an 80% likelihood of paralysis, blindness or both. I don't remember them talking about mortality as related to the surgery itself. My mother (a widow) was paralyzed with fear especially since my young neurosurgeon had only 82 patients total before me. Fortunately for me, a good family friend was able to talk her through the necessity of giving approval for him to do the surgery. :-)
One of my favorite memories shows the goodness of God. On leaving the recovery room to go to the ICU, the orderly bumped my stretcher on the door jamb. I woke up long enough to say hello to my mother - she knew that I could see, I complained about my headache - she knew that I could talk and, I wiggled my feet in response to her touching me - she knew that I was not paralyzed. The next thing I remember was waking up in ICU - how much later, I don't know, but my mother had been comforted.
For this and so many other blessings, I give thanks to God.
I think all survivors of ruptured annies are very blessed. A friend recently died from a ruptured annie. She didn't know she had one - just a really bad, unusual headache which I believe she tried to shake off - probably didn't think it would be something major like an aneurysm. She was found unconscious on the bathroom floor, her husband brought her to ER straight away, doctors tried to clip but unfortunately, she did not make it. So count your blessings - you are alive to experience a few discomforts in life. It still sucks I know and complaining relieves some of the frustration. I bet you know though that being alive is such a gift after what you have all been through. God is good!
I hope you haven't get the impression that "I am complaining" about my annie rupture or the unruptured aneurysms that I still have. Please know that I'm not. I know that I have been blessed in so many ways. One thing that my mother taught me long ago that that has proven to be true is "if I were to put my troubles in a bag with everyone else's that I'd be so happy to get my own back, I wouldn't know what to do." She was definitely right.
Because of the quality of the medical care that I received, I am also blessed that I've gotten old enough to experience the pain of aging. And, while I would prefer to be pain free, I don't complain about them either. They have given me the ability to empathize with others and to share the knowledge that I've gained through my various experiences.
I can't believe how many of us have these same symptoms! I came home early from work yet again with numbness and tingling on my right side face, hand and even my foot this time. I have had a headache all day. I literally feel like I am having a stroke. I am having trouble thinking and speaking. It has been 2 years since my last surgery. I had an aneurysm clipped in Sept. 2009 and 3 subsequent surgeries due to an infection. I have been back to my neurosurgeon, had MRI's, CT scans and even a myelogram. She then sent me to a neurologist because I have a history of migraines. He has shed some light on my headaches and feels I am not only having migraines but also low pressure headaches due to a possible CSF leak even though nothing showed up in the scans. These symptoms are very unnerving and frankly I don't know how much longer my employer is going to put up with me. Frightening and discouraging!
These are the symptoms that originally sent me for the CT scan that found my unruptured aneurysm. Still having them............
Lord no, I didn't think you were complaining and should you want to, please do so. Like I said before one should air out their frustrations as it does help release our pent up emotions. I don't want others to think that complaining in here is a no-no. That is why I am in this forum - so I can listen to others' experiences (both positive and negative), support those who need help and it is wonderful that they help me out in return through words of encouragement and advice. Complaints make me see I am not alone - others are experiencing difficulties too and it is not all in my mind. I have aired a lot of my own frustrations in here and a sympathetic ear goes a long long way - even a good friend will never fully understand what she has not undergone. My words were meant to be positive, sympathetic and supportive. I was merely reinforcing what you said about being blessed especially as a friend of mine just passed away from a ruptured one. Mine was unruptured and those who survived a ruptured one is even more blessed.
Carole, your mom sounds very wise indeed. All the best on your unruptured annie - it's good to know you are in good hands as it sounds like you have a very capable medical team.
Hello,I had my surgery june 13 and I now have the numbness/tingling thought I was going crazy so glad you posted hope all goes well for you. I am waiting to see doctor.
so glad to read this post im 6months post clipping for rupture , still off work daily headaches and tingling in my head arms and aches in my legs etc, doc says im suffering post traumatic stress so prescribed me antidepresents and was really quite flipent about my aches and pains and said ive yet for you to come in and feel fine and laughed omg has she had her head cut open was my thoughts came home and cried feel as if she thinks im making my aches and pains up .....still waiting on my follow up with neuro which should have been 3months now at 6months told doc and just to wait. i like you feel as if im going mad and want to feel normal again or maybe this is the new normal... hope you are coping too cyber thoughts :)