Does anyone have an Aneurysm in this location? If so, what treatment have you had?
I’m trying to gather as much information about this before I have my CT Angio and Neurologist appointment over the next coming weeks.
Thank you everyone who has reached out to me since I joined. I don’t feel so isolated anymore 
Hi Jho...I think I will share with the members...since there haven't been a lot of members diagnosed with this particular aneurysm...with over 6000 members we may reach a few of them...~ Colleen
Jho, I am so glad you no longer feel so alone. I am sure some will reply to your post. Especially after Colleen sends it out to everyone.
Take care,
~ Carol
Hi Colleen
I had an aneurysm in my right carotid artery I had surgery October 2012 and had 4 coils put in and since I have had 2 follow up angios and multiple mRAs I am doing very well my surgery was done @ Westchester medical by Dr Michael Steifel and I thank god for him everyday.my only side effect since the surgery is chronic migraines and I see my neurologist for that it’s been a long hall but I thank god everyday that I’m here! Good luck and please keep us updated
Jeanmarie
Hi Jeanmarie, thank you for commenting and sharing your experience! Colleen kindly shared my post. I’ve been diagnosed with a terminus carotid aneurysm.
I’m glad to hear you are recovered it’s a comfort to hear a positive outcome as I understand Aneurysms in the terminus part of the carotid artery are uncommon.
Warm wishes
Hi, Just reading my MRI results to be sure I am giving the right information. I have a 4mm aneurysm in the medial aspect of the cavernous portion left internal carotid artery. It was found in 2006 and I follow up each year in Boston. I also have a small 2mm berry type aneurysm of the supra-cavernous carotid artery. This one is of concern if it grows. The other I am told is the best place to have an aneurysm, in that if it ruptures it won't kill me. My Mom died at 55 from a brain aneurysm. If anyone has other information on this subject I would welcome hearing from you.
I hope I have been of some help.
Trudy.
I had it in 2001 same location 4mm but doctors said invasive brain surgery was risky. I saw one of the best intraventional radiologist at washington hospital center who treated it thru coiling via the groin. I remained in hospital for 2 days and followed up with my neurologist . I still have severe migraine headaches with blurry vision and follow up with annual CTA .... Good luck with everything
Hi Effes,
Did you have a choice to the coiling? My Surgeon and radiologist both want to follow mind. I have my next MRA in October. Now you have me wondering!!!
Trudy
Hi there , glad you don’t feel so isolated, it’s a tough place to be. I had a 11mm aneurysm on the left carotid artery that ruptured last July. Mine was coiled and I’ve gone very well, lots of things to deal with, but I’m still alive, you just need to take each day as it comes and post to your support group for sympathy and encouragement. Hope all goes well for you
Hi Jho...welcome and hope you get a lot of feedback...especially of others w/same terminology
I had a P COM aneurysm at its branch origin on the Internal Carotid Artery...following that is the next segment called "communicating segment"...or "terminus segment" or "C7"...the smaller artery, the anterior choroidal is sometimes noted w/PCOM...or sometimes in this last segment of ICA... I am a survivor of multiple leaks/ruptures...lots of experiences...no expertise...
The next, at this terminus/C7 segment, is the bifurcation of ICA to the MCA (middle cerebral) and ACA (anterior cerebral)...arteries... and, ask how close to either MCA/ACA is the aneurysm in this small segment?
We all learn (attempt to learn...I stumble a lot) the usual/normal arterial layout...apx 80% of us have perfection...apx 20% of us can/may have congenital variances in some arteries...
http://neuroangio.org/wp-content/uploads/ICA/ICA_NYU_Classification...
has 6 images side by side... on arteries, segments, and bone landmarks...easier to view and begin to see some anatomy...including "terminus"...
For researching other terminology... repeat term/word w/ anatomy...
In research...try the hospital website where your CTA will be done...browse for patient info by words you have...
Wishes/prayers for continued blessings to you...upcoming results of CTA...You can also secure a CD/DVD of the CTA...and, if/when you have any MR/As and/or arteriography done...or any other types...
Pat
I had an internal carotid aneurysm in December 2012. I had pipeline embolization done at Johns Hopkins by Dr. Alexander Coon with no residual effects.
Hi,
Can I ask who you saw at Washington Hospital Center? Did you like the person?
I'm surprised they decided to coild such a small aneurysm. I have read that these small ones are better off not being treated, as they have a good chance of not growing and that the intervention can be higher risk that the wait and monitoring approach. So, when I hear your 4mm aneurysm was coiled, it makes me wonder why.
Appreciate your response, Michele
Lisa...you were blessed...everything I read/know about JH is remarkable...
When you say no residual effects...does that include any symptoms you had to achieve diagnosis before treatment?
Prayers for your continued status...some of us can so envy you...
Pat
It helps to find an image online of the path of the Internal Corotid Artery so you can see where your is along the path in the brain. It gets complicated. I put some basics below but this will be easier with pictures. You'll see once you start looking. I would suggest focusing on the Communicating or Terminal C7 part of the artery to see what exactly happens in the brain there and what it branches into or off of.
The Internal Corotid Artery is subdivided into 4 parts, the cervical, petrous, cavernous, and cerebral with 7 segments within the 4 parts which are the Cervical segment, or C1, Petrous segment, or C2, Lacerum segment, or C3, Ophthalmic, Cavernous segment, or C4, Clinoid segment, or C5, Ophthalmic, or supraclinoid segment, or C6, and Communicating, or terminal segment, or C7.
Yours is a Cerebral (in the brain) Aneurysm in the Communicating or Terminal C7 SEGMENT which I believe falls within the Cerebral PART of the Internal Corotid Artery's path.
The following link explains this all in detail with images to help. http://en.wikipedia.org/wiki/Internal_carotid_artery
The communicating segment, or terminal segment, or C7, of the internal carotid artery passes between the optic and oculomotor nerves to the anterior perforated substance at the medial extremity of the lateral cerebral fissure. Angiographically, this segment extends from the origin of the posterior communicating artery to the bifurcation of the internal carotid artery.
The named branches of the communicating segment are:
The internal carotid then divides to form the anterior cerebral artery and middle cerebral artery. The internal carotid artery can receive blood flow via an important collateral pathway supplying the brain, the cerebral arterial circle, which is more commonly known as the Circle of Willis.
C7: Branches from the communicating portion
I would ask your doctor as much as you can as far as what this part of the brain, as far as the nerves, or glands it might impact, if at all. Mine was in the cavernous segment. I believe, although I could be wrong, that the pipeline embolization device is only used in the cavernous segment on widemouth types of aneurysms which is how mine was treated. Although many people don't have any symptoms of recovery time, I did due to the size and how many nerves it was putting pressure on and it effected the whole side of my face and I lost part of my vision in one eye. Everyone is different. It's been almost a year and I'm just getting back to normal. I had a giant (over 1 1/2") wide mouth.
There are 4 sizes of aneurysms.
This will get you started as well as all the input you have already received. Please let me know if you need any help. I didn't figure it out until after surgery. It happened so fast for me, within 48 hours of finding it I had no idea what was going on.
The best of luck to you and keep in touch.
Great reply dasis72. I am going to copy this and save it.
~ Carol
Dasis ...welcome...
Thank you for providing more specifics...we all need to have this data explained...particularly before the marketing of the minimally invasive procedures.. a/w/a the long-term open surgery...
I actually believe all this type of data needs to be in the application of devices...and, the FDA review of the application of devices...before approval...well, and the equipment to load/land those devices...
Thank you for offering so much...
Pat
Thank You Dasis
I’m struggling to find information about surgery/its effects in this region but am grateful for your enormous input! Thank you for including both informative and personal experiences. I’m so glad that you are here to ‘tell the tale’ xx
Thank you Kayt, this group has certainly been of immense support to me! Both a mix of information and emotional support x
Dr.William Banks is a world reknowned Intraventional radiologist. I am surprised you are being asked to "wait and see" ..u are lucky u found out ..most times there is no sign until it ruptures .the location is v risky to operate on that is why the coiling is best recommended. I have had several opinions from different specialist and both recommended immediate coiling ..good luck
Hi,
I had an aneurysm in the same location as you. Mine was 8mm. I had mine coiled 14 months ago but have experienced visual disturbances following my surgery.
Eve x
