I'll find out tomorrow if the doctor will be doing the surgery on Nov 7th. I'm a nervous wreck. I feel paralyzed in fear. There are times, since I've made the decision when I know that I'm doing the right thing and it will be better after the surgery. I've seen plenty of positive posts/discussions/blogs as well as some negative ones.
I still need encouragement and support. I wish I had more in my life but then again not everyone does so I shouldn't complain. I do have a wonderful husband and a few good friends. Rest of family seem very standoffish?? I don't think they know what to say or do and it's actually hurting my feelings alot. It's like they don't care. I know they do but I sure could use some support and concern from them.
What type of surgery are they proposing? It really is very anxious having to wait. My doctor gave me Lorazapam in the weeks before for anxiety - you should call yours and ask for a scrip for something for anxiety. Your neuro will also need to know if you a taking anything. I looked on your page - you have 2 annies on your basil artery? Mine was on the basilar tip.
Hang in there, JKnights. Try not to let the non-supportive folks take up space in your head right now. Focus on the positives, keep breathing, and have faith that your doctors will do their very best for you.
I think many people don't know enough about aneurysms to understand the seriousness of them. Some people seem to think it's like a cyst on your scalp that the doctor will lance. Or they think it's a simple day surgery procedure. Don't we all wish it were that simple! Maybe that's the situation with the rest of your family and that's why they seem "standoffish".
Please reassure yourself… The doctors who coiled and stented my ruptured annie, we’re fantastic. . I’ve had two recoils, and after my MRA yesterday, my annie looks the same as last December!
They are finally going to get aggressive with my cluster headaches. We’ll have to wait and see if steroids will kick their butt!
Be positive and believe in the miracles of modern medicine.
I have 3 aneurysms, two on the basal artery and on one the internal carotid artery and they are all going to be clipped. I assume yours was operated on already? How are you doing now? I am actually already taking 2 anxiety meds, one as needed and another when that one isn't enough. I have soooo much going on in my life right now that I was having these frightening rage attacks. My regular doctor thinks it's a major overload and it's just my body/minds way of telling me that. So, I have no choice but to live one day at a time. Waiting really really really is hard. Once I made the decision it made it even harder.
Thanks,
JKnights
Sherri Long said:
What type of surgery are they proposing? It really is very anxious having to wait. My doctor gave me Lorazapam in the weeks before for anxiety - you should call yours and ask for a scrip for something for anxiety. Your neuro will also need to know if you a taking anything. I looked on your page - you have 2 annies on your basil artery? Mine was on the basilar tip.
Thanks, I know I should only focus on the positive and I am trying too. My husband is great and I'm finding great support here as well (I hope I can reciprocate.) Breathing is hard sometimes though. I know I'll get through it, we all have trials in our lives, this is one that just through me for a loop. It's very emotional and I guess it's just more obvious who can handle this with me, who can't and who doesn't want to. Thanks. Did you have much support?
Dancermom said:
Hang in there, JKnights. Try not to let the non-supportive folks take up space in your head right now. Focus on the positives, keep breathing, and have faith that your doctors will do their very best for you.
Thanks everyone, I'm new here and I was trying to reply to each of you who commented on my discussion and I don't think I'm doing it right. Please bear with me as I learn to navigate the site!
You’re already doing so much for yourself. You have identified your support group, the mere fact you can do that is wonderful! I think Lori is right, some people don’t understand aneurysms, lots of people just don’t know how to react when told something like this, some don’t even know what they are. Perhaps you can write down what you need from your family and see which members can best help. I know in my large family, we have different strengths from listening to yard work and a bunch of stuff in between. I have a brother who no one would go to to talk about problems, he’s just not a talker; but he can fix near about anything - it’s the way he helps. It’s his way of hand holding Sometimes we need support, want support but don’t know how to ask for it or to give it. If you can clarify it to yourself, you may know which family member can best help. And the breathing is very important.
You're doing just fine, J! Everyone here is very helpful, so just ask if you need some help or advice on how to get around the site!
I joined here right after finally purchasing my first computer, and barely knew how to turn it off and on! I'm surely not a computer geek now, but I know a few tricks! Always gotta have a couple! ha!
Yes, JKnight, I had my surgery Oct. 2011 and I was coiled/stented. Nov. 7 will be here before you know it. The wait and anticipation is the hardest part.
Do you and your husband feel up to having a pre-surgical pot luck with your relatives? If so, this may be a great way for you to talk about the surgery and let them know you have been hurt. This might not be something that you feel like you can do now (or ever) - I'm not sure how I would feel about it either. Just a suggestion. Sometimes people don't say anything for fear they might upset you.
I hope all goes well with you and the surgery. I always felt that I was one of the lucky ones - it was caught before it could rupture. Sherri