Karenrae - you are wise to obtain as much input as possible when making this important decision; however, at some point it will be time to make your own decision (with your loved ones) and move forward. Just be sure that all your questions are answered to your satisfaction, even if you must keep asking the same question and telling the medical personnel if you don't understand what they are telling you. And make sure you have someone with you to help you listen. It's a lot to absorb. I'm almost a year out from craniotomy to remove AVM and clip aneurysm....and I feel great. Best of luck to you! Chillygirl
Chillygirl, what did they do for your AVM? they are going to do something called the Cyberknife at United hospital in st paul this fall which I guess is low risk radiation. Can I ask where your aneruysm was located. Sounds like I'm going to go through everything you did I hope I come out as well as you. Thanks so much
My AVM was surgically removed when I had the craniotomy. My aneurysm could not be coiled so it seemed logical to do everything while they were "messing around" with my skull opened and could access the AVM. The AVM was located sort of behind my left ear and left eye. In my (very humble) opinion, you would be wise to consider all your issues together - the AVM and the aneurysm - since it's likely something will need to be done about both of them. Best of luck to you. Chillygirl
Hi, i had a 9 mm that was taken care of with stent/coil. There is a 3 mm one that they keep a check onā¦ I go every few years(they want me to go every year) with MRI/MRA. I had a doozy of a reaction to the dye last timeā¦2 years ago. I will be going again this yearā¦perhaps no dye.? Anywayā¦I have been living 9+ years with that 3 mm annie. So trust the doctorsā¦ If they keep a check on itā¦to see if itās changedā¦you should be okay. I have several teeny, tiny balloon type annies throughout my headā¦ The doctors say it is typical for someone of my ageā¦am 69. So, unless you feel differently, I think just trust the doctors. They will know something needs to be done if it is growing.
My mom passed away in March of 99. In June of 99 i began presenting with bas sinuses. Went to the same hospital my mom passed away at. Told them the story about her but they never checked my head. One day my friends came over to check o e after school and noticed that my eyelid was droopy. I went to the ER and after several test it was discovered that I had an aneurysm. I was 16 at the time. I had surgery and after a few months I felt back to normal. I am now 32. March of this year I was having sinus pressure. I had a CTA and found out I have another one. I was devastated, seemed like my life stopped at that moment. I have a 13yr old daughter now and all I could think about was not being there for her. Im all she has and as a single parent I kept playing in my head that my daughter was going to lose me and be a lost motherless child as I had been at such a young age. It was a long night in the ER but I was able to come home. It appears that the aneurysm that was discovered had been there since July 99. I never knew this, or maybe I did. I don't know. As of now, I'am Here.. Alive and telling my story. My aneurysm is the same size that its been since July 99. I pray that it doesn't change and that I'am able to raise my daughter
I was extremely fortunate. My aneurisms were found by an incidental finding. I had been experiencing these little light electric buzzes through my head every so often, but dr's didn't think it was anything to worry about. I was under lot of stress at the time, so put it down to that. Along with this, I had an aggravating ongoing ear issue. After numerous medications, I was sent to an ear specialist who could not find anything out of the ordinary, so he sent me for an MRI. Long story short - the MRI showed up the aneurisms, that I have since had coiled by choice. As it turns out, the ear issue was caused by a dental problem, that only required that a back molar be shaved down slightly to re-align my bite. Lucky - oh yes!!!! The little electric type shocks gong through my head are also gone, so I have to believe there was some kind of connection to the aneurism. My motto that got me through the anxiety, the horrible stress of the unknown, was and to this day still is. "Don't worry about you can not control, Control how you worry". Every day is a blessing - I do everything I can to stay healthy and even though the fear is and always will be there - knowing you are not alone in the unknown journey is a blessing in itself.
Your daughter needs you to be healthy. Can they operate on this one or are they going to just watch it? Good luck and god bless you.
I was in training for new aircraft type. Iām an airline pilot. Have been flying since 1984. First in the Navy then with American Airlines. For the first time in 30+ years. I was having trouble while getting ready for my check ride. Company decided to give me a couple of days off to relax and study. While home I had a very deep hard head ache. The next day I was still exhausted from the headache and took a nap which lasted all day. When my wife got home from work she had a hard time waking me up. When I finally woke, I was showing signs of a stroke.
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John youāve found a very old topic. You can tell because the Original Poster started this in May 2014 and the last reply was July 2014. Iām to going to close it now.