Hello everyone, my husband had clipping done on 8/15 and is still in the hospital recovering, they moved him to the rehab floor cause he’s still very weak and has no stamina ( which he didn’t have much of to begin with since he also has Copd and asthma. Anyway my concern is they have him on 2 seizure Meds, both of which make him drowsy (almost like he’s drunk) and he’s having panic attacks, mostly because they haven’t given him his rescue inhaler (which is like his best friend cause he has a lot of asthma problems) because the hospital is so slow it takes a day or more to get meds, and now because he’s had a couple of panic attacks, they’ve got him on anxiety med, which also makes him drowsy. I don’t see him ever getting better under these conditions, I’m getting really upset with his Drs, and I
Feel like I’m going to have a breakdown. I’ve been at the hospital 13+ hrs a day for the past 12 days. I think it’s really starting to get to me. Thanks for listening everyone!! God bless
so sorry Katt-praying now for you and husband-thank you-God bless you too!
Hello Kat, when i had my clipping i was put on anti seizure meds for 4 months. Iwas drowsy, moody, emotional
ect. They give us those type of meds to stop a bad seizure to occur. I was in hospital for 10 days. Still for the 4 months i wasn't my self, they told me that it was the anti seizure meds. Once i got off them because it was safe to do so, i felt so much better. The Drs there must be annoying for you, hang in there, he'll get better, it just takes time. Not everyone is the same after clipping, we all respond differently to meds and a major brain surgery. As long as the nurses are monitering his blood pressure ect and it's normal then that's great.
So take heart, it's ok
God Bless
Nikki
Hi Katt - Sorry to hear about your husband's problems. You definitely need to express your concerns to his doctors about being overmedicated. It did happen to me when I was first released from the hospital. I ended up going into the ER at my local hospital two days after coming home because I was so nauseated and tired. After consulting with my neurologist in the cities they reduced my anti-seizure medication. I was on anti-seizure medication for two months and I was so glad when I was finally able to get off them.
Being the caregiver is a scary thing. I have to agree with Jo that you may want to talk to a social worker or patient advocate to help you cope. I know how frightened my husband, son, mother and mother-in-law were after I was released from the hospital. My husband to this day still gets scared when I have one of my bad migraines and it has been seven years.
Know that it will get better with time. Hang in there and I will be saying a prayer for you and your husband.
Hi Katt...First of all, as the caretaker....you too need to take care of yourself...go home and get rest esp in the evenings...secondly, ask to see a "patient advocate and/or social worker" and voice your concerns if you aren't getting answers from your Doctors...I have asthma...and brought my inhaler...I go no where without it...I don't understand...please keep us update...I am so upset for you...gotcha in my prayers...~ Colleen
Just a little update, he’s doing a little better today, they’re going to drop one of his seizure meds tomorrow, so hopefully that will help, had his physical therapy session this morning, better than yesterday :). I want to thank everybody for all their kind words and support, I really needed it. Hope everybody is doing well today and God bless you all.
thank you so much for the update- so glad he's improving-have a blessed weekend!
i would first try to get a little rest for you. maybe someone else can come and sit with him while you rest for a few hrs?? i would then talk to the surgon about the med situation. you don't need hospital politics affecting his recovery!! stay strong my friend!! God won't give you more than you can bear!! i was in hospital for 14 days. 7 days ICU and 7 days rehab. and had rehab for 6 months after. you can get through this!! i had 2 clippings in 2 different area's on the same day surgery was 14 hrs. i was paralized in my left arm for 6 months after. the day after leaving rehab i had to go to court to fight for custody of 2 of my older brothers kids. it was a very nasty fight it was mom's side of the fam. verses dads side. i already had his first 2 kids, so with this 2 made 4 and i have a birthchild. can you image trying to manage all of that and being paraziled L-hand and general weakness on my left side. well it became my reason for getting stronger and fighting back, i never gave up hope that i couldn't get better. my rehab dr' said he had never seen anyone spring back so fast. i told him not getting better hasn't a option for me!! my husband and God were my strength when when i was weak. my children were my job and i loved all of them dearly. be @ peace knowing God isn't finish with you or your hubby yet!! count your blessing. love kathy
Kathy,Thank you so much for your advice and encouragement. He is doing better today, they’re going to take him off 1 of his seizure meds tomorrow. So hopefully that will help. But so far hes doing well with his rehab, he doesn’t think he is, but he has come a long way since just a few days ago, thanks again and god bless you!
hi Katt-hope your all doing well-interesting you said he doesnt think the rehab is going well-i thought the same-people say im so much better but we cannot see the slow slow progression, its so hard to remain positive not being able to do so many things- it took a year to learn how to tie my shoes!!!cause of the numbness and fine motor control is compramised. the numbness is still there but i somehow worked thru the numbness and learned to do it.please keep us posted!
Well it’s been another no so good day, my husband is having withdrawal symptoms from the steroid he’s been taking for 2 wks since theyve been weaning him off, he’s been having a lot of anxiety and panic attacks, and a ton of side effects from all the other meds he’s on for the anxiety, etc. I beginning to feel a little hopeless that he will ever get out of here, and he feels the same.