My 1st intro. Brain aneurysm while exercising

Hello, first a little backstory into my situation. I am 35, with 3 brain aneurysms. Two on the left temple and 1 on the right temple. The first two are on the left side, where I had a car accident, 7 years ago. That left me with debilitating migraines. The didn’t see it til they went back and found them about a month ago.
They aren’t big by any means. They are small roughly 4x4.
Fast forward to 4 months ago. I exercised and had to stop. The pain was intense, I passed out, severe migraine, felt. A pop, then my face went numb and had a bruise like soft spot where I felt the pop. Right on the temple. Bed ridden for weeks! I had a brain aneurysm while exercising. Went to the doctor and they did a mri and found the saccular shaped aneurysm right where I said it was.

In a few days I go in for angiogram. I’m scared. Any tips?
Has anyone dealt with this before?
Btw no smoking, underweight, low bp, young, etc.

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Hello @Mrs.C
I’m glad you found us, this group has been very helpful for me and others dealing with aneurysms. About the angiogram procedure, it is normal to be anxious about the procedure but necessary for the doctors to get a good picture of your blood vessels in the brain. This will give them the information needed to go forward, either with watch and wait or perhaps they will recommend some sort of treatment. The angiogram itself will most likely be performed through your groin, it may sound scary but the anesthesiologist will make sure you get enough medication to feel comfortable, you will most likely know what is going on, but you won’t care. It doesn’t hurt. The hardest part in my opinion is to stay flat in bed for some hours before we are able to get home. I hope other members of this group will give you some insight.
Good luck with everything and get back to us.

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Thank you for this insight. They did say that they will be going through my wrist. Is that normal?

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Good Morning Mrs. C! I’ve had more angiograms than I can count on both hands, I consider myself a frequent flyer as I quit counting around 12 or 13 lol. Everything @oct20 said is spot on. Everyone of my angiograms was through the groin except for the last which was through my wrist. I’ve determined they’re the best way for me… as there’s no laying flat on your back and the guardedness of picking up at or under the prescribed weight limit. I was out of the hospital faster than ever before. I learned about the radial entry here in our support group!

The Nurse Anesthetist is your best friend for the limited time, they’re the ones that put you in a happy place. The Anesthesiologist comes by and talks to you going over all the risks etc that your doctor has most likely already told you. Another RN will most likely put in the IV line though sometimes I’ve had the RN Anesthetist do it, especially if it’s one I’ve had before.

Once the doctor starts, he or she will direct you to breathe or hold it and breathe. They watch a big screen so they can traverse the catheter and take a look at all the arteries in your brain, both sides and you won’t feel a thing. You will have the Nurse Anesthetist by your side, the ones I get always stand on my left as my surgeon stands on my right. Since I go to a teaching hospital, there is always a Resident with her. There’s another Nurse that stands up by my head. There’s a couple more folks that help transfer from the gurney to the table but then besides prepping the machines I don’t see them once my Dr. comes in. If there’s a delay because of something else, I get to ask her team to play music I like and we sing along until she comes in. Dr. Quintero-Wolfe’s NP is always there now as the first one was but not the second one and they always say hi and let me know they’ll be in the observation room. Sometimes she will have other students (Residents, etc) packed in there like sardines but once I’m on the table, I don’t see them anymore.

Before she starts, I have a litany of questions such as did she sleep well, eat breakfast go to the head (we are both ex Navy). She might ask about the dogs we’ve rescued since I ruptured and I might ask how her family is doing, we’ve known each other since 2013. When she starts inserting the catheter, I may have some other odd questions to ask, many times it’s something that a member here has asked believe it or not.

She has her “look see” as I call it, removes the catheter and if it’s in the groin there is a bit of pressure to seal the seal they use, transfer back to the gurney and off to recovery, wake up, lay flat on your back for several hours with an RN checking it and go home. If it’s the radial, there’s a wrist doohickey that applies the pressure, go to a room for a few hours with an RN checking it and once it’s done it’s job, go home. As you can see RN’s play an extremely important part in our medical care, they are priceless in my opinion. Depending on which method of entry, radial (wrist) or femoral (groin) will determine your restrictions when you go home, abide by the restrictions!

There’s a few things I do to help me and the procedure do well. About three days prior, I make sure to start hydrating really well as it helps the needles to go in thus it’s basically pain free. The night before, we go to a really nice restaurant and discuss goals, our bucket list if you will. Then after the procedure, we stop and eat lunch or go to my favorite tea store where I pick out some new tea, sometimes we can do both and it really makes my day!

Good luck and please let us know how it goes for you!

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Good morning Mrs.C
It is normal to perform the angiogram procedure through your wrist but I think the most common is through the groin. There are advantages with the wrist procedure the recovery time is much shorter at the hospital and also the restrictions afterwards.
I just noticed that one of our moderators, ” Moltroub” has given a lengthy message to you and it’s a very good description of the procedure. I have done four so far, through the groin , two that I wasn’t aware of, when my aneurysm ruptured and one during the ICU period. The third was when I had to do an additional mend of the aneurysm with a stent and more coils as it couldn’t be done at the time of the rupture and this was one year ago. I have to admit that I was very anxious before this procedure, but it helped me to read about what others had gone through in this group. At the day of the procedure the RN anesthesiologist told me that she was going to give me some medication to take the “edge off” , she gave me some medication in my iv needle, the next thing I remember is waking up in the ICU, the doctor and my husband by my side and they told me that it’s done and everything went well. That was a real knock out :sweat_smile:.
Six months later I had an angiogram checkup, but at this time I wasn’t anxious, I felt calm the days leading up to the procedure and I told my family not to worry. It went very well, and as I said in the previous message, I was awake but I was given a mild sedation and I was able to communicate with the nurses and doctors but I didn’t care about what was going on. The RN anesthesiologist told me that if I feel uncomfortable, she can give me more medication, they will do everything for you to make it as good for you and the doctor as possible. You will get something to drink and a snack before you get back home. You are not allowed to drive your car or using “power tools “ on the day of your procedure and that is because of the medication they gave you . The doctor will come to your bed and tell you about the results before you go home.
Best of luck with everything and please let us know how it goes.

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Wow, thank you so much, I appreciate you getting back to me. This definitely does help calm my nerves. It really helps when you explain it in such a way that shows how caring and compassionate there were with you, and that’s important with me.

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Wow, 13 procedures!
Your a real pro. If you can do it that many times, I can do this :sweat_smile:. Thank you for responding, it makes me feel a bit better about the procedure on Thursday. And thank you so much for the in-depth detail. I feel better with the extra information.
Question :raising_hand_woman: Have you, or anyone ever heard of, or experienced an aneurysm due to exercise?

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@Mrs.C
They definitely care about you and it’s also very important for the doctor performing the procedure that the patient is relaxed and comfortable on the table. It would be dangerous if the patient starts to move around and not being comfortable so it serves two purposes. When they started to tape my head to the table, I didn’t care, but I remember that I thought it would have freaked me out if I hadn’t got the medication in advance . They will definitely make sure you are laying still and that your head is in the right position. The RN that are standing or sitting by your side may also sometimes distract the patient and talk a little bit. I’m happy to hear that you feel a little bit better about this. Also, ask if you can go to the bathroom just before everything starts, it’s good to have that taken care of too.
I don’t know the answer of your next question, hopefully you can ask this on the day of your procedure before you go home.
Please let us know how it goes.

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You’re very welcome. You might want to call your doctor’s office and ask which method they use, groin or wrist. I remember when mine told me the NeuroSurgeons were switching to radial. It may be up to the department, I’m unsure.

So an aneurysm is a weakness in the wall and it can come in different forms, berry, fusiform, or my oddity a multi lobed which is like a blackberry not a blueberry😂. There are others, but I forget right now…Hopefully another member can tell you.

A rupture or a SubArachnoid Hemorrhage (SAH) is when the wall of the aneurysm pops. I’ve always said I popped my pipe in my brain since most people outside of our group don’t know what an SAH is and I got tired of explaining. You may not be old enough to remember garden hoses that developed a weakness and would pop open, it’s sort of like that. If y go to the BAF site or do an internet search you’ll find a better explaination.

As @oct20 said, your doctor will be the best one to ask about exercise. You may or may not have limitations and I think only your doctor will know. My doctor insisted I not stay stagnant even after my rupture so I walk a good bit, I stretch every day and I probably lift more weight at one time than my doctor wants. What I do makes me feel good, a lot better than curling up on the couch.

What day is your procedure scheduled for?

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Thank you for your response!:blush:
the neurosurgeon said they would like to go through my wrist. In the mri they saw that it was a 4x4 saccular berry type, they didn’t say anything about a rupture. However I distinctively remember there being a popping sound inside my head, and then came the numbness branched down on that side of my face. They didn’t say what the other two aneurysms were, just that they were on the other side of the head.
I do remember those water hoses, I have one now that has lots of holes, and I’ll use it as a sprinkler. :joy: hopefully that’s not my arteries tho. I suppose there are a lot of unknowns, and I am wanting to find out.
Ever since my car accident in 2015. I have had terrible debilitating migraines. They did a scan back then, and didn’t see the two aneurysms. Til about a month ago, when they went back and checked. And a third popped up from exercising back in December. I didn’t have any migraine or dizziness Before this.
I have my appointment on the 31. Tomorrow!

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I’m certainly going to keep you in my thoughts all day tomorrow! By this time tomorrow you’ll probably be thinking that it wasn’t so bad…

I think for most of us who rupture we experience what the medical community calls a “thunderclap” headache. I liken it to the worse migraine one has ever had on steroids. The pop could have been a bunch of different things which is probably why you’re with your surgeon. Did you know neurosurgeons can operate on our spines as well?! Which I think so very cool, a one stop shop for me. I tell Dr. Q-W she’s better than the Super Walmart😂

Those old water hoses were the precursor of soaker hoses and drip irrigation👏🏼 Use yours in good health! Speaking of water…have you hydrated well? Drink another glass of water. I think the time constraints for me was nothing by mouth after midnight but it depended on the scheduled time for procedure.

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@Mrs.C
I have been thinking of you today. How did it go?

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It was an experience for sure!
They looked at all three of them and decided the right one needs a stent, the left one needs a coil. And the 3rd is a wait and see. The said I have really small veins.
As I was getting prepped for the IV, they wanted to check the pulse rate in my feet. They couldn’t find a heartbeat in my foot, For the groin catheter. So they went through the wrist. Even with 2 different sonogram machines and 4 people! Once the IV was in, it hit me like a ton of bricks, I got instantly hot. And felt nauseous for a bit. And after that it was mostly smooth sailing. They gave me meds 4 times through my IV. As there was a cold flush, when doing so. They said that I Did a good job of hydration

Thank you for the tip :grin:
When they injected the dye, I saw bolts of lightening flash across my vision. :laughing: I said wow. Then, I think my meds really kicked in cause I saw a sticker on one of the machines and told them as it was moving in my vision. :flushed::face_with_hand_over_mouth:.
There is this problem with the doc sharing the results immediately with you, i itas so drugged up I don’t remember exactly what he said. But I got the gist of it.
I think they are concerned about the right on as it has gone up 1mm. 4x5 now. And apparently was created quickly.
I’m sure I’m missing pieces of this story. And I’ll fill you in when I remember them. Thank you for all your insight.
Right now.my head is killing me. And I’m gonna take a break.
Hope this helps. Shoot I was so drugged up I forgot to ask the question.

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@Mrs.C
We are so excited to hear from you. It seems like it went well after all. Yes bright flashes like spider web that’s what I saw too. I think I saw some more bright flashes the next day too, I don’t remember correctly. It must be good to get an answer and I hope you will hear more about this shortly. Stent and coils, been there done that….in this group you can ask questions about this whenever you want. One thing is for sure, based on my own experience, the procedure went better than I expected. My neurosurgeon told me that it will be much easier for me compared to the first event with a rupture, and he was right.
We have to take one step at the time.
Rest well and eat and rehydrate. I wish you all the best.

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This is my scratched record…hydrate well for the next few days to help get rid of the contrast dye. I’m so glad you did fine! Pamper yourself today, you earned it!

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I got scintillating scotomas for a few weeks after my embolisation. In discussion with others, we decided it was driven by the contrast material irritating something and the scotomas got less regular as the contrast material was flushed out of my system.

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Hi Mrs. C!

I’m new here. I’m a little confused. When you say you had a brain aneurysm while exercising, do you mean your aneurysm burst? I had a brain bleed in 2013 and was just diagnosed with 2 aneurysms. They are both small but with my history it scares me now when I’m exercising and feel my heart rate increasing.

Tanya

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Hi Tanya, thanks for the question.
It did not burst! Did you feel yours burst?
Once I get insurance again I’ll be getting the stents and coils put in. Back then, However when I tried to exercise, that’s when the 3rd one was created. It was six months ago now so I’ll try to remember it to the best of my ability. I usually get a lot of pressure in my head when I move around, like picking things up, reaching or bending down. That means I need to stop and rest. The biggest issue was when I was pushing it. Do you know the feeling of running rally fast and your heart is pounding out of your chest but it doesn’t hurt, it’s just going fast. It was like that in my head but with so much pain. The pounding in my head was effecting my vision and pulsating and making things blurry and dizzy. The popping of my blood vessel is what I felt. And then I lost my vision and i clumsily fell back onto my yoga mat. My left side of my face was numb and I felt it tingling as it migrated from my left temple down to my jaw and nose. That migraine lasted for over 3 weeks with awful sickness. One of the tall tail signs for myself is to hear pulsatile tinnitus. It is more on the rarer side, but If I can feel or hear the whooshing sound, or straight hard pounding, I immediately rest. I also have to cut out all, caffeine. I Seriously think this helps.

I had an AVM burst in 2013 and it was the worst headache I’ve ever had. I got tunnel vision in my right eye and immediately started throwing up amongst other gross things. I ended up having a craniotomy. I was diagnosed this week with two aneurysms. I hope you can get insurance soon so that you can get properly treated! Thank you for answering.

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I would have thought that pulsatile tinnitus is a sign of an AVM – most often a dural arteriovenous fistula – rather than an aneurysm. Has anyone ever suggested AVM to you?

I had a dural AV fistula that I discovered in 2015/16 because I could hear the whooshing of the pulsatile tinnitus. Oh, and the main effect of my AVM was dizziness.

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