I was diagnosed with lumbar arachnoiditis on Friday, 2 years & 2 days post SAH (had 2 ruptured aneurysms coiled). I have chronic head pain which is taken care of by OxyContin 20mg x2 day. But haven’t conquered the hip pain with suitable pain relief yet. Currently on Lyrica and cymbalta but having major side effects.
Still trying to process the arachnoiditis diagnosis - nothing has changed but feel scared and sick to the stomach that this is going to get worse and there is no cure or pain relief that really works. Googled it last night and really frighted the life out of myself - dumb move!
Is there anyone else out there with arachnoiditis that has found a way to deal with it? Has yours been progressive or stable?