Looking for information about flow diverter

Dr. saying low chance of rupture of my 4.6 left OHTHA LMIC segment ICA SACCULAR aneurysm pardon me I’m still trying to get used to the terminology. I go in for my second scan July 8, but as he was telling me low chance, he’s also telling me how the procedure would be done if I choose to do that, it’s a lot to take in! Took a month and a half to get to see a doctor so of course my brain went all over the place trying to figure this out. Anyways, any help with anybody that’s done flow diverter before and after experiences would be greatly appreciated. Actually, any advice at all how to handle anxiety would be greatly appreciated also. Thanks in advance for sharing.

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Welcome Yvette! Us girls in the South need to stick together don’t we? You’ll find we have lots of members who have had a flow diverter, they’re pretty common here. I hope several come and talk with you about theirs. Did your surgeon tell you he would use the flow diverter?

Please remember to breathe. I’m not kidding about breathing. When we are stressed we don’t breathe deeply enough. Try to do some relaxation breathing, you’ll find lots of ways to do it on YouTube. Whichever method you choose, practice it all the time through the day until it becomes as much a part of you as brushing your teeth,

No need to apologize for anything here. I had a different stent used on my aneurysm at the Left Internal Carotid Artery bifurcation that ruptured at 5mm but it was a multi lobed one which is more like a blackberry than a blueberry, bound to rupture. I found this which shows the different segments and you can see where the ophthalmic artery is by opening the picture 7 it’s by the mouth and to the left.

For me, with two exceptions, the rupture and then the stent placement, I had an angiogram first, then the coiling with whatever else she tried and then a follow up MRI/A then another angiogram. The diagnostic or the repair is done the same. The surgeon goes through an artery either in your groin (femoral) or wrist (radial) with a catheter that has a camera so they can see exactly what is going on. My surgeon always looks at both sides of my brain to make sure I haven’t developed another aneurysm somewhere else. Where I go in Winston-Salem NC, she doesn’t do a repair usually without the first angiogram (diagnostic) and then a week or so later, the repair. The last repair I had, she didn’t need to do the diagnostic angiogram because the MRI/A showed her everything she needed to know. My rupture was of course an emergency and had to be fixed. For my stent, I had to spend but one night in Neuro ICU and went home the next day. I hydrate well before a procedure so the RNs can get needles in easily it helps us both. I then have to hydrate really well and increase my protein for usually three months, sometimes longer. One of the reasons is I’m allergic to the dye. My surgeon premedicates me with Prednisone and I take a benedryl. My sensitivity got worse so I have to get a shot of benedryl and they keep dexamethasone and benedryl by the table so they can be prepared. Most members are not allergic to the dye, I’m just odd.

I am curious as always as to how a member found out they have an aneurysm, I’d love it if you’d share with us! Some have found out because of some type of imaging for migraines, vision issues or tinnitus. I think of them all, and yourself as very lucky indeed. Let your family know as there is a theory that says there’s a genetic link. It’s a pretty strong theory, my surgeon at Baptist told us to tell my family -siblings and their children. We also let a couple of cousins know on both sides and they passed it on to the others. The link is stronger with immediate family members.

Depending on where in the South you reside, there may be a physical support group available to you. You can look at the BAF website for their locations or try the Joe Niekro Foundation as they have some in the South as well. There are also hospitals that have virtual support groups online. The BAF posts theirs here under Brain Aneurysm Foundation. Atrium Health Wake Forest Baptist doesn’t have either type of support group which is sad as it’s where I go.

Again welcome and remember to breathe!

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Thank you so much for responding, mine was an incidental finding, I’ve been having issues with my neck and vertigo and ringing in my ears. Got so bad I had to go to the emergency room and they did a CT scan and found it. They said that none of the above has anything to do with the aneurysm it’s all to do with the muscles and joints in my neck. So I’ve been dealing with physical therapy for that. I go back in July for my second scan and then from there, I guess figure it out. That’s why I was asking for peoples point of view of what they’ve been through. Thank you for taking time out of your day to answer some of my questions and best wishes to you on this adventurethat were forced to endure.

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I’ve just graduated from PT for my cervical vertebrae. I’m trying very hard not to have another surgery in my lifetime🤣

Welcome to this amazing group! I just celebrated 8 years in June/July for my 4 brain aneurysms. I’m still not up on the terminology but this group has helped me through some issues. I had 2 aneurysms on the left side and 2 on the right hence 2 procedures. My dr wanted to make sure I healed from the 2 right before doing the other 2. He placed a total of 5 PEDs. 3 on the right because one opening was bigger and 2 on the left. I’d have to look up the sizes of my aneurysms to let you know how big. Not big on remembering those things. Mine were discovered when I was at zumba class and couldn’t get up off the ground. Drs the next day, MRI/MRA soon after and they were found…thank the Big Guy. My hospital stays were overnight. I felt great when waking up. I do have silent migraines usually once a month but no pain. I also can’t stay do my zumba type exercises for more than 30 minutes before sitting down. Also walking around a lot does the same. I use to walk 4 miles twice a week, now maybe a mile but I’m here and I’m thankful. Wishing you the best. Be positive and Moltroub has given me a lot of advise so I’m thankful for that too.

MiMi

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