linda,
you are not alone---- although i do have scars, but---- when i found out about the situation, i did 2 things,
1---- shaved my hair, which was past my butt, and donated it to cancer children----my point ofview was, let it bles/ help someone, i was told 3 childrem got a wig from all of my hair
2---- i looked at it as, i would EITHER not wake up from surgery, or..... thought everything would be back to normal, ---was raised in a very positive home place, so, now---- yes- i woke up, yes , i'mnot paralyzed, yes, i'm not many really hoorid things, BUT----- not knowing where i am in the middle of the day or night, not having real memories, dreams are real, and real seems like a dream..... anyone else been there? i do not diss anyone's situation, we all have stuff and thiings we deal with, (BTW---- the delete button is one of the greatest things the computer world gave us all!!!!!)
the real point seems to be,--- just as we all speak of,, the dr's don't see it, and yet---- even among a group of people who have suffered what we have----- opions still live, people are people, and will always say:
I HAVE BEEN THROUGH BETTER OR WORSE, AND MY PROBLEM IS BIGGER THAN YOURS"
guess, when i found this , i thought that we could share, relate, empathize, and be there with each other, and FOR each other..... i know,,,,,EVERY ONE OF US HAS A DIFFERENT STORY<
my question is, i've read many of all of yours, and my heart and prayers go out daily to and for ech of you.
this is truth! !!!
i pray that you all find a dr/ someone in the medical field that sees YOU, ECH AND EVEY ONE OF YU, for what is truly going on, mentally, physically, emotionally, and all other ways.
so , please let's really work together,
as i said before, for all of you who have, blessedly, family and friends who are able to help you through the rough times, thank whatever/whoever , you believe.
for those of us who may not be so fortunate, put up a prayer, or wish, or whatever you do believe in.
and.... it's really NOT complaining, it's ackowledging a reality, and maybe even a fear, no SHAME in being a person----even people who have never seen what we have, they , too , have fear, stress, pressure, and anxiety----, do we think any less of them????Go to whatever/whoever you believe in, but, i can honestly say one thing-----i've been judged, as good and as bad, right here, as the whole world has treated me since my surgery.
just saw a NEW dr. today, and she was very kind, and very understanding, and when she felt all the scars/lumps/bumps, etc., on my head, down to the side of my face, she never flinched, she had tears in her eyes.
WHAT A SHOCK THAT WAS TO ME.
actually, gaveme hope, and a different sort of view.... i know what i look like, and what it is for someone to touch my head....... she cried!.
that's how some of us feel, and yet---- through it all, we do the best possible to stay positive-----truth is---IT DOESN'T WORK THAT WAY EVERY DAY
GREATER TRUTH IS, WE DO THE BEST WE CAN