yes-winter was never my friend and since the aneurysm rupture and a shunt installed it really doesn't. When it is cold it feels like my scalp is shrinking. Hard to describe but I know what you are talking about. I am 3.5 yrs post rupture. I just put a hat on my head. My head also doesn't like being in the sun. :-)
Yea I do. It especially hurts where my incisions were.
Yes. Sensitive to extreme temperatures, both cold and heat - 8 months post rupture and coiling.
I have a problem with the entire left side of my head. It hurts and has that pulling feeling when air conditioning is very high. My surgery was on the left side and it's been 17 years since I had that.
Yes, I have tightness and pain from the cold and have experienced it since the rupture in 1992.
Can anyone suggest any remedies to alleviate this tightness and skin pulling in cold weather ?
Yes. The top of my head is sometimes so painful, I wince if it is touched, even by my hand, a hairbrush, or a pillow. I was told it was like arthritis from separating the bone of the skull, and muscle pain from cutting the muscles in the head, and that I could take Advil, if it was really bad. In my mind,I thought it was the metal of the clip getting colder than the brain, but i was told, there is insulation between the skull and the clip so that couldn’t happen. The only comfort I can offer is that it has gotten better over time, but it can be very painful when it happens. I find a change in weather can do it, as well as airconditioning, but it is definitely better when the room is warm. I guess I’ve just gotten used to it, but I don’t think about it as much as when I was first out.
As for the comment about tolerance to crowds and noise, oh boy, do I have that! I had to leave the supermarket in the middle of shopping because there were too many people, and it’s getting to the point that I do not want to eat out, because I perceive too much noise, while others in the group say it is ok. I’m getting a little agoraphobic. Hope that doesn’t happen to you! Wishing you a pain free day!
Has anyone here ever had Cranial Sacral Therapy? Please check it out on Dr Upledger site. I truly beleive in getting the Cranial Fluid moving again after such trauma to our brain. I had two treatment within 3 days after my annie, I know that it helped alot. So much so I don't have these feelings, not saying I haven't felt anything, but what I feel is minimal, with the treatment, and my training on it, plus understanding what goes on with our cerebral fluid, it can't hurt. I had posted something on this while ago. Feel better.
Hi Joseph,
It's been 3 1/2 months since my rupture and coiling but I'm not having any discomfort or tightness from AC but I do feel tightness in my head and still getting dizzy.
Tony Perricone said:
annesherlock123,
For your two questions. I have had many MRIs and never had any problem or headache. As for the A/C it has always been an issue for my aside from my aneurysm. Just last night due to the A/C being on all night I woke up with a bloody nose. Its been happening since In was a kid. I think both of your issues may be just coincidences. Don't sweat the small stuff, because there are so many other things to worry about.
Sharron,
After a lifetime of helping my daughter and grand child through every imaginable hardship, she up and moved away last October and I haven't heard from her since. Including fathers day. I don't even know where she is. They may be our children but they become their own person even it turns out to be a terrible one. There is only so much we can do. Live your life and be happy any way you can. Don't worry about anyone but you!
Hi Tony,
Thanks for your words of encouragement. You are right. No matter how good of a job we do raising our children to be good people, they make their own decisions when they are adults. It hurts that we don't seem to matter to them as much as we would like, but I have tried to just enjoy my own life with my wonderful understanding husband. I sincerely hope that you find out where your daughter and grandchild are. That is a hurt no parent should have to bear, not knowing where your child is. Thank you for responding to my plea.
I can’t stand the AC on my head since surgery. So yes!
Funny, I love the AC on me since I ruptured. The heat is what bothers me. Makes my head feel like there’s creepy crawlers on it. I use a cool wet wash cloth on my neck stops the feeling within ten minutes. Joseph have you thought about a warm towel on your neck or a hat? Or one of those bandana head things that you can do twenty things with? I forget what their called but they can be used as a bandana, a neck cowl, face cover, etc.
Hi my husband, who used to usually feel hot, now tends to be sensitive to the cold, especially the AC. I don't know about tightness, and I don't think he feels it only or primarily in the head, I think it is just in general for him.
Hi Joseph,
I had a craniotomy in 2011. I feel pain and tightness when strong air cold or hot blows directly on my head in the area of my skull plates. Otherwise I am doing great living my life.
OOww wow I do! I feel like no one understands. Its been 12 years now and it's difficult when no one understand. The shunt in my head also gives me allot of pain as it twists a nerve when I sneeze, cough ex. The Dr. cant help and I can only manage the pain with medication. I just don't talk to anyone about it because it feels like they just think "Oh you survive that is all the matter" Yes I did survive but I live with pain. I am n positive type of person but sometimes do feel like a alien hie hie hie
Sharon, I do remember when I was a young(ish) parent and my own parents were in their '60s or 70s, I was nervous about letting them pick up my kids in the car, or take them out on a day trip without me, or whatever. I was worried that, at their age, they might have a heart attack while driving or something. In fact, at the age of 68, my mother did have a severe heart attack, but at the time she was sitting in her own house with all of us, and reading a story to the children. It may well be that your son and his wife are concerned, because of the aneurysm, that something catastrophic might happen to you healthwise while you are caring for the children. As an anxious parent myself, that's the only reason I can think of.
oliher1952 said:
Sharon E. Morey said:Hi Everyone,
No, Joseph, I do not have a problem with the cold. I do have another question, however. I would appreciate some feedback. Has nothing to do with the ruptured aneurysm, just life. I celebrated my birthday on Sunday, Father's Day. My husband did not receive a Father's Day card from one son, and I did not receive a birthday card. My son was on vacation at Myrtle Beach last week. He called for a couple of minutes on Sunday to wish us a happy birthday/Father's Day. He did not stop by at the house although he lives 15 minutes away. His wife did not get on the phone to talk to us. We have been very good to this son, his children, and his wife. Am I wrong to feel slighted? I had another son, his wife, and two girls staying with us for two weeks from Colorado. They would not leave their girls with us at all during the stay. Finally, they told us that they don't trust us with the girls. They told us not to take it personally, but how can we not take it personally? They left the girls with my daughter-in-law's mother, sister, and my youngest son and his girlfriend. THANK YOU IN ADVANCE FOR LETTING ME VENT. I FEEL LIKE A SECOND CLASS GRANDMA RIGHT NOW.
Can't say I've experienced that, but then, we here in Britain don't often need to use air con! Right now, in "flaming June" it's grey and chilly ...
I get something the same but it does get better
I can’t say I feel this but I do get odd sensations now and then. I had an MRI scan two weeks ago with no adverse after effects…