Hello! I’m new to the community. This might be long and I apologize for that. I’m so confused and scared right now and I need some guidance, support and information about what I’m going through, so if anyone can help me and give me ANY type of information I’ll greatly appreciate it.
At the beginning of May I woke up one morning and felt drunk. The entire room was appearing to be tilted to the right and I felt like I was falling. I thought I had some left over fluid in my ear from a previous diagnosis of walking pneumonia the month before. I went to the DR, she said everything was “fine” and referred me to an ENT to check out my ears since I was so very “dizzy”. The ENT took my history and did a VNG test the following week. I “passed” the VNG test and he said this mean something neurological was going on and causing me to perceive motion incorrectly. So, he wanted an MRI/MRA completed. Last Monday I had the MRI/MRA and then on Wednesday my entire world was flipped upside down.
The ENT nursed called me at work at 4 p.m. to tell me “your brain looks great, no tumors but you have an aneurysm and we are going to refer you to a neurosurgeon for follow up.” That is all she said. I couldn’t speak, I couldn’t breathe. I ended up calling her back and she told me “it isn’t a big one and no I don’t have your appointment set up yet, I’m working on that now but the surgeon we refer to has already closed for the day”. I felt like I had been punched in the face. I work in the mental health field and part of my daily job is coordination of services for my clients. I would have NEVER contacted a client with news like that with out first consulting with the physician I was referring to and completing the appropriate referral information. I would have THEN called the client, requested a face to face office visit, reviewed results as best as I could and then gave them the appointment. I was so upset. She asked me to go to the diagnostic center and obtain my “scans” to take to the Neurosurgeon. I did that and it is all electronic so as soon as I got back to work I pulled up my scans to review. It was amazing to see my brain! I think on scan 56 of 120 you can see this little bitty “blob” on the left coratid artery that shouldn’t be there. I wouldn’t have even known if the radiologist hadn’t have drawn a big X through it to measure it. From what the scan said it is 4.2 mm. At that time she STILL didn’t have an appointment for me with anyone and I was beginning to panic even more.
I’m a mother of 2 little boys, a 3 year old and a 5 month old and my heart just sank, I was so sad and heartbroken that something might happen to me and take me away from them, I still am really. I stayed on the phone with the nurse at the ENT office and she continued to act as if she had told me I had an allergy to eggs or something. I mean, it isn’t every day some one tells you “Oh you have an aneurysm, no biggie!” So, I ended up getting pretty angry with her and requested she refer me to a different Neurosurgeon if the one she wanted to refer me to wasn’t really responding. So, on the 6th of July I will be seen at Neurosurgical Associates in Knoxville TN. This is a 3 hour drive for my family. Originally I requested she refer me to UVA but she wasn’t responsive to that for some reason (I did end up filing a formal complaint about her, I mean an ENT nurse telling someone they have an aneurysm via TELEPHONE??) Well, after I researched other Neurosurgeons in the area and requested the referral to Knoxville and realized I would not be seen right away she consulted with the ENT DR again. This time, she gets back on the telephone with me and tells me…the DR DOESN’T KNOW IF IT IS OR ISNT AN ANEURYSM!!! WHAT??? What else COULD it be and if he doesn’t know one way or the other why in the world is his nurse calling a patient and saying it IS an aneurysm??? I was livid!
So, here I am…on Monday morning and I still have to wait until next week for my appointment (which is stressing me out), I mean, I feel like I have a ticking time bomb in my head and any second now it could explode. It is on the left side behind my eye/sinus.
So, long story short. I need help I need support, guidance, information.
I realize it is “small” yes I’ve been told that over and over again but the small ones can still “rupture” right?
If it isn’t an aneurysm, what else COULD it be?
Has anyone else had an aneurysm in this location? What steps have been taken for you?
If it were to rupture, giving the location and size, what type of damage can this do? (I know it varies but I would like a general idea).
And I know this question is going to make me sound superficial but if I have to have brain surgery for this, are they going to shave my head?
The “dizzy”, “tired” and “confused” feelings that I am having now, could that be from this so called aneurysm or something else? If it is from the aneurysm, why?
What questions should I ask the Surgeon when I am there?
Any information will be helpful at this point.
Thank you everyone!