Been since 2010 with watch a see…

Hi Friends I’ve been dealing with this for a very long time was followed since 2010
I’ve had watch and see for these two
5 mm aneurysm in the clinoid segment of the right internal carotid artery (ICA) and 2 mm aneurysm in the M2 segment of the right middle cerebral artery (MCA)
In 2020 doctors called me into office to discuss possible treatment pipeline stent
At the time I was concerned about the hospital staff and Covid I’m in NY and it was pretty bad I even needed to be tested before coming for my appointment :disguised_face:
I ended up putting it on the back burner and since moved to Florida in 2022 I’ve been thinking a lot about it and have significant anxiety about it
I did some research and found Doctor Peter Nelson in NYU and found out he was one of the pioneer for the procedure I made an appointment in December and flew to NYC to see him he was wonderful explained everything
In great detail I have increased risks every year of aging so I decided to go ahead
The 2mm Annie may just be an artifact
I have never had a Angiogram so we don’t know for sure
My main concern is that I have a very rare genetic mutation that causes bone marrow failure I have very low platelets and how will I fair on blood thinners for long periods?
I’m having a full work up at NYU with hematologist to see what my options are
Has anyone had to be on blood thinners with low platelets?
I would love to hear experiences from others about pipeline/stent
If anyone used Dr Nelson
My surgery is May 19
My Angiogram is May 16 before surgery to see for sure about second one
Also my nerves are totally shot

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Morning Sunshine! I had my stent put in Dec 2020 here in NC. My neurosurgeon was great about getting BH the most time allotted inside the hospital at the time. The three neurosurgeons at the hospital were only allowed two elective procedures total each week, Dr Q-W said they had to vote on who was able to have them. Most of the beds were for COVID patients. I remember NC was having to airlift numerous patients out of state for emergencies. Fingers crossed we don’t have another epidemic.

I have a Neuroform Atlas Stent that my records show was put in the LACA because my aneurysm is at the LICA bifurcation. My last images show there’s still a signal but I’m not able to have any more angiograms unless it’s a life or death situation due to my allergy to the dye. So they’ll just redo images every two years instead of the five years. Guess that means I’m back on the watch list, I don’t worry about it quite frankly.

Remember to breathe, deep and slow. Hopefully members who have experience with a pipeline and Dr. Nelson will share!

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Hi @roseanne_p -

I am scrambling to get stuff done before my CT Angiogram in a couple of hours, but - if it helps at all - I wrote about my recent pipeline/stent procedure that happened back in October (link below).

Admittedly my procedure was not with Dr. Nelson himself, but he came down to train my neurosurgeon on the procedure for a few days (who then presumably trained my neuroradiologist on it too!). So, not a direct link, but only 1-2 degrees of separation! :smiling_face_with_three_hearts:

I also link/comment to one type of breathing exercise that may help with the nerves piece - if not, there are tons out there so try some others if it doesn’t work for you!

https://www.bafsupport.org/t/unruptured-aneurysm-surgey/19062/5

I have to tell you that I take the subway every day on my way to work, stopping at Christopher St/NYU along the way. The other night, I saw this guy get on, and I really wondered if it was Dr. Nelson, as I want to thank him live & in person! So, please tell him that he has a BIG fan club out there, and we are EXTREMELY thankful for him and the pipeline!!! (And don’t be surprised if random people on the subway ask if it is him, so they can geek out on what a cool guy he is!)

I will be holding you in my thoughts and prayers - please let us know what we can do to help support you!!

Fin Whale Fan :whale:

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Hi! Thanks for your encouragement!
I’m very nervous to the point of not sleeping and so tense I messed up my back !
I’ve been though so much in my life muti surgeries and dealing with Bone marrow failure
But the thought of having blood thinners with my platelets so low is freaking me out
I’m very comfortable with Dr Nelson
It’s just that I have more than normal issues
If anyone has been on blood thinners with low platelets chime in
Xo

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How are you doing with the angiogram?

Wow! I know he’s a superstar!
Did you have the procedure in NYU?

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I am sad to report that Elmer (my annie) was officially declared dead on March 20th at about 4:15 p.m. O.k., THRiLLED to report that, so absolutely a fan of the pipeline as you can imagine! :smiling_face_with_three_hearts: I was lucky that it was a radial entry this time around, although I also appreciate that it is a smidge more challenging as it is my dominant hand. :rofl: Oh well, nothing that time won’t heal!

I am actually not affiliated with NYU; I live in the suburbs of NYC, and my closest hospital is affiliated with another institution. Of course, I am incredibly grateful Dr. Nelson took the time to come down and train them - he is one of my heroes, and every time the MTA stops at Christopher Street/NYU, I always say a moment of thanks for him!!!

Let us know what else we can do to support you, and I am sure some Dr. Nelson/NYU patients will be chiming in to give you their experience!

Fin Whale Fan :whale:

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That’s FANTASTIC news congratulations!
Who are your doctors?
I’m from Long Island are you?
Where did you have surgery?
I currently live in Florida so I’ve been flying back and forth not ideal but it is what it is!

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Thank you! :smiling_face_with_three_hearts:

Even though I was suspicious this was going to be the result, I am still a bit in awe/incredulous!

I am born and bred in everyone’s least favorite state, New Jersey. :rofl: I actually live in between NYC and Philadelphia, and a Philadelphia-based hospital took over my local hospital about a year or so before my rupture, so my commute to see them is nothing like what you are doing!! :smiley:

@Moltroub pointed out this thread to me before, so it is one you may wish to consider contributing to as you go through your experience (and I list out my medical team).

Keeping you in my thoughts, and hoping you are doing ok!!

Fin Whale Fan :whale:

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So happy you beat Elmer! That’s fantastic news, happy dancing for you!

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@Moltroub -

Don’t think you have no impact or influence on us! Just the other day, someone shared some great news with me via a private message. Thanks to you, I replied that although I am not a dancer, I will do a happy dance because it is the only right & proper thing to do in this forum! :grin:

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How did you go about getting these doctors at Penn medicine? I would like to get a second opinion on the 4 aneurymns that were discovered after a mild stroke in 2023.
Thank you for your assistance.
Maryanne

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Hi @Mabh212,

Great question, but PLEASE do not go down my path!

In June 2023 (same stroke month as you!), I ruptured, and I was taken to my closest hospital, which is part of the PennMed system.

Considering it was a rupture, and by definition, complex and requiring expert treatment, I was medevac’d to Philly where my aneurysm doctors are. So, I go to Philly when needed (surgeries, CTAs), but follow-ups, MRIs and CT scans, I do at one of the closer PennMed facilities.

If it helps, I spoke a little about my specific doctors on this thread, but I appreciate you may want to find your own medical team:

I do not want to push or promote them, but I am more than happy to answer any other questions you might have about them or the PennMed system. (It is complex, but I understand how it works so much more than 2 years ago).

Most importantly, I wish you wisdom and peace in your healthcare decisions. I am confident you will make the right choices for you!

Fin Whale Fan :whale:

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Thank you. I do have a Neurointervetional radiologist at the moment but plan to get second opinion.

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Hi, I too have low platelets ITP and two aneurysms - Paraclinoid 5mm and ACA 2 mm. Both are unchanged for past 9 years. I have another check in August this year. Given the platelet issue and that they are unchanged I might just continue to monitor. But I wish you best of Luck and would love to hear about your treatment plan.

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Thank you so much for your reply!
I have been waiting for so long to get this done since 2010

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