You’ve been on my mind a lot lately! Just wanted to let you know, I practice what I preach. lol My daughter and I just returned home from flying to southern california and riding roller coasters.
The only thing different that I did, I asked to not be put in a metal detector, because that can change the setting of my shunt.
I went on all the fast, whirly, upside down ones, plus a few ones I was always too scared to go on before, but thought… what the hell, i’ve been through worse. No issues at all. No dizzy spells, no sudden, sharp headaches. We had a blast, took some pretty good photos, and have a great story to tell about a mama duck who went bonkers on a bunch of people who got too close!!
I really do understand it’s a different viewpoint from bystanders/caretakers. When I first came home, my husband wouldn’t leave me alone for a second. Sweet, wonderful man, but he was doing my head in (UK expression - making me crazy for U.S. people lol)!!!
Thankfully, he asked me what I really wanted to do, and that helped.
So, please… ask your husband. What does he want to do? If he wants to go on holiday with his lovely wife, then do it. If he wants to dress up in an ape costume and climb the empire state building, then obviously he doesn’t or shouldn’t be making any plans to do ANYTHING.
I do ask hubby what he wants to do but as with most things he says “i dont know”! He usually leaves decisions up to me but i cant decide if he should have the coiling procedure done…thats his decision which again hes unable to make! Hes on the clinic waiting list to see the surgeon but he saw him a few mths ago and still couldnt decide.
Our GP has started hubby on Beta blockers as he thinks hubby is suffering with anxiety esp with the anger issues in the car. I know hubby doesnt go out much these days and would prefer to stay at home and potter about.
As for my counselling the lady still hasnt rang me back and ive left lots of messages. Because i work on the same days as her i guess its a problem so shes not bothered calling me!
I just despair at times
Thank you for thinking of me.
Elaine.
My husband is a 6 year AVM rupture survivor now 61. He had is removed then clips/coils in place. Since then he now has 2 unruptured 4.+ each in his frontal lobe (original was in left parietal) We live day to day knowing we are not in control. He takes meds daily for high blood pressure (told by his doctors was part of the culprit) and does his best day to day. We still take vacations and do what we normally do with 2 teenage daughters still in the house. I know it’s easier said than done, but live you life, and his to the fullest each and every day! No one is promised tomorrow. I would say get a second option, but in my husband’s case I know I must take care of myself and mental health in order to be able to go home each day and take care of him and my family. Wishing you both the best!
I personally would prefer to have it coiled and not have to worry about it, but I’ve had both had an aneurysm Rupture had to be coiled, had vadospasms. A new aneurysm developed surgeon recommended the stent la stent malfunctioned during the surgery, and I had a stroke and never have gotten fully over it Ended up losing my employment and my ability to reason clearly gone.
