Bens Friends

FAQ FAQ about the BAF Community Bens Friends Apps for mobile Devices Bens Friends Apps for mobile Devices Site Feedback Discussion about this site, its organization, how it works, and how we can improve it. News The Ben’s Friends News Category is where members find out what is happening from Ben’s Friends Rare Disease Support Groups such as fundraising, important information on navigating our rare disease, caregiver support ideas, etc.

Topic	Replies	Views	Activity
About the Bens Friends category Bens Friends	0	1684	September 28, 2016
Today is Giving Tuesday. Here Are Two Easy Ways to Help Our Community News	0	53	December 2, 2025
Our Community Is Coming Together. Here Is How You Can Help News	0	61	November 25, 2025
📢 Calling mothers of children with rare diseases of all ages News	0	310	August 12, 2023
A Word about Covid Vaccines News	0	736	January 3, 2022
Check out the Ben's Friends Blog News	0	429	November 30, 2021
New! Caregiver Support Community News	0	406	November 11, 2021
How is a Ben's Friends Community Different from Social Media and other Support Sites? News	0	435	July 14, 2021
BIG Covid Vaccine Questions News	0	576	March 15, 2021
Here for you: Ben's Friends News	0	410	December 22, 2020
History Lesson From TJ and Immunization News	0	550	December 21, 2020
Down? We understand: we're ALL feeling it News	0	487	December 8, 2020
Ben’s Friends Secrets To Maintaining Healthy Communities News	0	405	November 17, 2020
Vaccine protocols and COVID News	0	438	November 12, 2020
BAFound Support Webinar: Brain Aneurysm Genetics: What do we know? News	0	526	October 16, 2020
<<<<< We've Redecorated ! >>>>> News	0	525	October 4, 2020
We are scared and not sure how to deal Site Feedback	2	550	August 28, 2020
The Ben’s Friends Volunteer Family is Growing! News	0	484	July 31, 2020
Ben’s Friends Communities Are Getting a Fresh New Look! News	0	426	July 28, 2020
Scholarship Opportunity For Rare Patients News	0	485	July 27, 2020
Living Will Site Feedback	7	1416	June 10, 2020
Worldwide COVID 19 Response: Moving Forward Based on “Science” News	0	483	May 19, 2020
THE SCIENCE OF HELPING OUT: good for you! News	0	447	May 12, 2020
Medical School Hopeful? Stuck at Home? Volunteer Online! News	0	495	May 8, 2020
Give Back while you Stay Home! News	0	485	April 21, 2020
COVID 19 Current Research - The real scoop News	0	657	March 18, 2020
A word from TJ - Ben's Friends Unofficial response to Covid-19 News	0	461	March 14, 2020
Who’s going Backpack-ing with Ben’s? News	0	587	February 7, 2020
Medication question Site Feedback	3	531	February 5, 2020
Spotlight on our Member: SewMomma from Living With Eagle Syndrome Community News	0	539	December 17, 2019