Does anyone have information regarding the life expectancy of coils?
Does anyone know if people can live to be in their 90’s with coils?
Thats a great question if you have coils. I cant wait to see what the responses are.
Al...I sense I could grasp your humor... first...the life expectancy of the platinum coil or...of the one providing the coil garage...depending on what was parked inside...
Al said:
Thats a great question if you have coils. I cant wait to see what the responses are.
Campanile - this is what I found, platinum coils are permanent http://www.mayfieldclinic.com/PE-Coiling.htm#.VgqlLtT3arU
I wish they would do a segment on “How It’s Made”…
I should have noted that I was coiled 10 years ago and was told the coils will last.
There's a tremendous level available for research....
Start with MD-DI ... medical device ... numerous items will show up...
GDC coil platinum and titanium then alter/add metal variants...
One of interest: "the sustainable importance of platinum in biomedical applications" or attempt
http://www.mddionline.com/article/sustainable-importance-platinum-b...
I can never track /read/type the sites clearly... this was a 2011 report...under mddi (c) of 2015...
There are a tremendous amount of articles of this ...and apx 40 device manufacturers / members of this site...and, whatever else...
Moltroub said:
Campanile - this is what I found, platinum coils are permanent http://www.mayfieldclinic.com/PE-Coiling.htm#.VgqlLtT3arU
I wish they would do a segment on "How It's Made"...
I keep researching, but cannot find anything definitive. I assume a metal like platinum has a long life. Endovascular coiling started in the 90’s, so basically there is about 25 years, plus or minus, of history. Are the early adopters still around?
Sometime back, I did converse w/a metal specialist...he said it all depends on the "mix" of metals...etc...
and the history of other metals...Can almost find metals ...like finding diamonds...for which class...
Finding the companies /corporations to step forward w/that detail...likely a challenge..
You may be our miracle member contacting a manufacturer...and getting a response..
somewhere 1-2 yers back, there was stent (and/or coil) voluntarily recalled...w/over a years stock labeled...and, we never have gotten any real detail...If it exists...it will be in some lengthy research...
There is also the FDA MedWatch site...where any adverse condition should be reported...and, for stats...
well...likely and presumably...
P.S.....I am truly not concerned about platinum...even had it added to my pendant and earing...
What does concern me....is that the metal (or whatever) replacing the blood/clots in an aneurysm...is still putting pressure against that area of the brain structures...
I get joyfully amazed for members who have been coiled and are so normal, back to work, etc...
the same for those who have been stented...
Campanile said:
I keep researching, but cannot find anything definitive. I assume a metal like platinum has a long life. Endovascular coiling started in the 90's, so basically there is about 25 years, plus or minus, of history. Are the early adopters still around?
Does anyone have comments on clipping? My doctor told me I have a good 40 years ahead of me, which at 54 years old, sounds good to me! I do wonder, though, what is the life expectancy of people like me with a clipping of a non-ruptured aneurysm, on top of the radiation exposure. While I do wonder about this question, I am thankful to have peace of mind that my aneurysm is no longer a threat to my life.
Regards,
Michele
Campanile, Pat gave us the idea - try calling this distributer https://www.cookmedical.com/data/resources/productReferences/PI-BM-CEC-EN-201003.pdf
Bet they’ll have the information.
Use the second link, the first one is a dud.
I found a good deal of information here:
www.fda.gov/downloads/advisorycommittees/committeesmeetingmaterials…" target="_blank">http://google2.fda.gov/search?q=cache:Emor5V0GmcAJ:www.fda.gov/downloads/advisorycommittees/committeesmeetingmaterials…
Unfortunately there is negative information about stents, which I find particularly concerning. I was not told that a stent would be part of the process during my consultation, but a stent was mentioned in a follow up letter from the doctor.
Michele,
Thank you for telling us that your doctor said you had a good forty years ahead of you, that is great news and I hope you enjoy every day of it. I hope folks who have been coiled and stented post that their doctors made similar statements.
So was the stent not explained to you?...and, is where it would be positioned / detached described in your letter?
Some stents codes/numbering under the FDA: ... H020002; H05001; HO60001...and P100018 ...
the latter is the # for the initial "new" (2011?) stent implant procedures... to avoid coiling...and/or clips..
If you pull up any of these, the FDA - Device # ...records will come up...and display the sequence of the #'s... the manufacturers...etc...and, there can be numerous additional #'s to the few noted here...
You may also find the manufacturer who was the applicant to the FDA...is an independent developer and/ or subsidiary of those big companies... that do the big marketing...of the devices..
Campanile said:
Use the second link, the first one is a dud.
I found a good deal of information here:
www.fda.gov/downloads/advisorycommittees/committeesmeetingmaterials..." target="_blank">http://google2.fda.gov/search?q=cache:Emor5V0GmcAJ:www.fda.gov/downloads/advisorycommittees/committeesmeetingmaterials...
Unfortunately there is negative information about stents, which I find particularly concerning. I was not told that a stent would be part of the process during my consultation, but a stent was mentioned in a follow up letter from the doctor.
Thank you Patio.
I learned something about stents today that could benefit our members. Regarding the use of Plavix and stenting, not everyone has the same response to this drug. You could be a fast, slow or average metabolizer. Knowing how you process Plavix could be key to preventing a TIA or a stroke.
http://blog.23andme.com/23andme-research/snpwatch/snpwatch-avoiding-blood-clot/
Michele...such a question... w/all have varied reasons for life and death...so many times are things/causes we never anticipated...sometime back, I told a friend " our sandwich in life is a BLT...birth, life, and termination...It is how the filling is cut, sliced, seasoned and blended that counts"...some agree and some get repulsed...Long before my aneurysm developed...I had an advance directive...I had observed some treatments/procedures of loved ones (unrelated to aneurysm)...that I knew I'd never want to do...
I was coiled...and, I have for sometime questioned how metal can relieve the pressure of an aneurysm when it replaces the initial blood/clots in the aneurysm...
it is also one of those issues some of us have not been able to find in our research... on how the weight of platinum compares to the weight of our blood/clots...in the aneurysms...
The next part...those of us w/coils...have so much more f/u (radiation/contrast materials) sometimes, more coils and/or stents added....than the majority of those who have had clips...
I hope I have not offended you or other members...by what I have pursued research for some time...
and, now Ms Campanile has opened more questions... w/her ref to the FDA site she notes...
Michele said:
Does anyone have comments on clipping? My doctor told me I have a good 40 years ahead of me, which at 54 years old, sounds good to me! I do wonder, though, what is the life expectancy of people like me with a clipping of a non-ruptured aneurysm, on top of the radiation exposure. While I do wonder about this question, I am thankful to have peace of mind that my aneurysm is no longer a threat to my life.
Regards,
Michele
Campanile...re: this FDA article...w/my non-expertise... this 30+ pages are so complex...in a somewhat simple way....I barely glanced at them...and got stuck on Page 5...
NOW...on the Page 5...3rd #...re: Premarket Approval (PMA)... "endovascular treatment of large or giant wide-neck intracranial aneurysms in the internal carotid artery (ICA)...from the petrous to the superior hypophyseal segment"... which in lengthy research for me, the hypophyseal segment...is not a well-known segment name of any of the segments of the ICA listed from the cervical to the terminus... However, I did learn the hypophyseal segment noted here likely/presumably is the same as the ophthalmic segment (aka supraclinoid segment)...by their proximity...
What drives my curiosity is why the "ophthalmic" or "supraclinoid" names were not used... as either name is so much better known than 'superior hypophyseal segment'... Just my memory limitations...if this data is elsewhere/easy to find and understand by others.
I do know the superior hypophyseal artery branches off here; just no knowledge of it as "the segment"... and, that this artery is the main supplier of our pituitary gland...
The superior hypophyseal artery has many branches that supply: the optic nerve (CN II); the optic chiasm, and the Pituitary gland's anterior lobe and pituitary stalk..
There is also an inferior hypophyseal artery...which I did not see in those first 5 pages...
it will be awhile before I can get back to those 30 pages...that may explain my question?? .
CaCampanile said:
Use the second link, the first one is a dud.
I found a good deal of information here:
www.fda.gov/downloads/advisorycommittees/committeesmeetingmaterials..." target="_blank">http://google2.fda.gov/search?q=cache:Emor5V0GmcAJ:www.fda.gov/downloads/advisorycommittees/committeesmeetingmaterials...
Unfortunately there is negative information about stents, which I find particularly concerning. I was not told that a stent would be part of the process during my consultation, but a stent was mentioned in a follow up letter from the doctor.
Dear Patioplans,
Thanks very much for your response and analogy of life as a BLT. There is a lot there. The bottom line is that we all need to live our lives to the best of our own potential, since one day we all face the same end. I now realize that my message could have been insensitive. I know I'll be more thoughtful in the future.
Best wishes,
Michele
patioplans said:
Michele...such a question... w/all have varied reasons for life and death...so many times are things/causes we never anticipated...sometime back, I told a friend " our sandwich in life is a BLT...birth, life, and termination...It is how the filling is cut, sliced, seasoned and blended that counts"...some agree and some get repulsed...Long before my aneurysm developed...I had an advance directive...I had observed some treatments/procedures of loved ones (unrelated to aneurysm)...that I knew I'd never want to do...
I was coiled...and, I have for sometime questioned how metal can relieve the pressure of an aneurysm when it replaces the initial blood/clots in the aneurysm...
it is also one of those issues some of us have not been able to find in our research... on how the weight of platinum compares to the weight of our blood/clots...in the aneurysms...
The next part...those of us w/coils...have so much more f/u (radiation/contrast materials) sometimes, more coils and/or stents added....than the majority of those who have had clips...
I hope I have not offended you or other members...by what I have pursued research for some time...
and, now Ms Campanile has opened more questions... w/her ref to the FDA site she notes...
Michele said:
Does anyone have comments on clipping? My doctor told me I have a good 40 years ahead of me, which at 54 years old, sounds good to me! I do wonder, though, what is the life expectancy of people like me with a clipping of a non-ruptured aneurysm, on top of the radiation exposure. While I do wonder about this question, I am thankful to have peace of mind that my aneurysm is no longer a threat to my life.
Regards,
Michele
Michele, Dear...no your message was not at all insensitive...I am the one who has had concern because of the diff in receipt of mine...some enjoy the almost humorous side...and, others do not at all...
There were so many things I did not share...about BLTs...a long term friend died 3 days before his 103rd birthday; his lovely widow, pushing 90, will be flying to her grandson's wedding this weekend; she's still so active...maintains her home, drives, has her theater, bridge lunches/whatever...If nothing else, prayers you maintain your health and enjoy every step you can take...
I love reading/hearing from members who have done, are doing so well...and, have tremendous compassion for those who are struggling thru so much...Those of us who struggle would never want to take a day or an hour from those who have been so blessed...
Thank you, Michele, for your thoughtful response...
P.S....I have so promoted the youtube of Kennedy Kirsch..on her clipping...and, I hope, pray...expect...she will have far far more than 40 years...I even forwarded her email to family/friends...
Dear Patioplans,
Thanks very much for your response and analogy of life as a BLT. There is a lot there. The bottom line is that we all need to live our lives to the best of our own potential, since one day we all face the same end. I now realize that my message could have been insensitive. I know I'll be more thoughtful in the future.
Best wishes,
Michele
patioplans said:Michele...such a question... w/all have varied reasons for life and death...so many times are things/causes we never anticipated...sometime back, I told a friend " our sandwich in life is a BLT...birth, life, and termination...It is how the filling is cut, sliced, seasoned and blended that counts"...some agree and some get repulsed...Long before my aneurysm developed...I had an advance directive...I had observed some treatments/procedures of loved ones (unrelated to aneurysm)...that I knew I'd never want to do...
I was coiled...and, I have for sometime questioned how metal can relieve the pressure of an aneurysm when it replaces the initial blood/clots in the aneurysm...
it is also one of those issues some of us have not been able to find in our research... on how the weight of platinum compares to the weight of our blood/clots...in the aneurysms...
The next part...those of us w/coils...have so much more f/u (radiation/contrast materials) sometimes, more coils and/or stents added....than the majority of those who have had clips...
I hope I have not offended you or other members...by what I have pursued research for some time...
and, now Ms Campanile has opened more questions... w/her ref to the FDA site she notes...
Michele said:
Does anyone have comments on clipping? My doctor told me I have a good 40 years ahead of me, which at 54 years old, sounds good to me! I do wonder, though, what is the life expectancy of people like me with a clipping of a non-ruptured aneurysm, on top of the radiation exposure. While I do wonder about this question, I am thankful to have peace of mind that my aneurysm is no longer a threat to my life.
Regards,
Michele