We take on monent at a time and celebrate the small steps and hold on to them dearly to get through the rough times. I thank you for all of your support. I am glad to know that what Sean is going through is pretty " common". That has helped me the most, just knowing what to expect. We have alot of supportive friends and family. Sean’s Coast Guard family has been wonderful.
Continued prayersfor Sean and all of you…
I Believe that not only am I a "Survivor" but that my husband who was wonderful and continues to be wonderful through this "annie journey" is a survivor too...that being said...you too...must take care of "YOU"...along the way...because it takes time...but already you are seeing that sometimes the smallest things are improvements...the brain is truly unbelievable...and makes us rest alot until it is ready to move to the next steps...
Please know that you and your son are so in my thoughts and prayers...everyday I come to see how he is doing...like so many here at BAF...he too...has touched our lives...Healing thoughts your way...Colleen
I see his eyes open and he looks around some, I want to know if he hears me .. I talk to him all the time.
Thank you for all of your support!
Noel, are you holding hands when you talk w/him, ask him? Ask him if hears you, ask him if he can squeeze your finger...or blink at you...
Have you asked the mds if you can massage his arms/shoulders/feet while you are talking with him? You may have done all this already...no indepth massage...just feel/touch... you likely may be doing any/all of this...be sure to ask the md specialists... to do he right thing....Can you cleanse his face, etc? The stuff that gives the mom touch...No matter how great a nurse is...she's never our mommy...or daddy...
Hugs and prayers...
I touch him and his response is intermitten. His has run a fever and he doesn’t look like he feels good. we got him up in a cardiac chair today and worked on his arms and legs , talked to him and showed him pictures.
Noel...I thought you'd likely be doing any/all that was posssible...there are limitations at times...you are doing a lot which has got to be a positive factor...
Hugs and prayers...
Thank you I just wonder what a person remembers after having a brain aneurysm ?
Noel...that is a tough one...we all have same, similar, different... Depends on which artery(ies) have the aneurysm(s) (location and access to it); size of the aneurysm; size/volume of subarachnoid hemorrhage, how far the blood migrates...which cranial nerves are affected and which lobes/connections (i.e. thalamus, hippocampus, pituitary) the expertise of the neuros and if the procedure was S/I. You are likely blessed to have Mayo; I was impressed seeing the CEO on PBS a year or so ago...no memory of what he addressed; just that I felt so postiive about him...
The temporal lobe relates to memory (and far more) I have damage to my temporal; short-term, learning memory, and some parts of long-term... learning relates to the hippocampus. Family showed me pics/talked functions from childhood; many I remembered on my own; some triggered memory; others are gone.
All our lobes (and nerves) have some cross-over/connection with one another.
For me, learning (any subject/page) is a challenge...I began w/vision therapy, regained reading/comprehension; yet, so slow...I outline/type multiple times for memory; yet still fail on some; surprise myself when I find an outline on a subject/word which I do not remember wanting/needing to learn...many things that were so easy for me, are so frustrating.
Please ask Sean's neuros if they have any way to test his hearing now...there is some "non-invasive ear pulse" (Rev Code 460...if accurate) that was done twice while I was hospitalized...hearing loss was on the referral record for home health care...if any other test(s) were done, they are not of record...Since, I have had three full hearing tests; one was recent and will see ENT next week due to changes in my right ear this past year. I am slow at making decisions, too.
I also had/have receptive aphasia which is hearing/comprehension related...
Balance also relates to hearing (forgot words) altho I regained balance thru my vision therapy...
Please remember, this is from my personal experience...I do trip on words... tho read/write better than hear/converse...
Minor clarification... easy to go thru a social connection; or one subject; and can be totally blanked by an interruption as basic as my phone beeping an incoming call; yet, I can sleep thru the phone/doorbell; I have ADT for security. We have been blessed to have a few with excellent recovery on this site; one, with no interruptions, many others who have achieved good to great recovery. I hope so many will respond to you.
Many more hugs and prayers...
Aye, it varies from person to person greatly, I remember bits and pieces of the day my aneurysm ruptured, the on-set pain, fractured vision, struggling and failing to dial 911, some parts of the ambulance ride, almost none of the hospital.
I was coiled. Initially I remembered none of the procedure but now a little over a month later, sometimes when I close my eyes at night, the procedure come back to me in bits and pieces and I can not sleep.
In the ICU the funny thing is the time my wife was there, and that was most of the time, I only remember a little. I think her presence made me feel safe and secure so my memory banks did not file that time. I remember struggling times like IV changes, student doctors crowded into my room asking questions, some nurses. I remember when people touched me and bathed me. That was important. I remember some visitors but not others. When I realized this I put the word out that if anyone felt guilty about not visiting me in the hospital they should stop feeling that way. They could just say they came by and I would believe them.
I was in ICU a couple of weeks. I am missing whole days from the memory banks. A kind touch, a foot rub, cleaning me, I remember these things and felt overwhelming love as they happened. I remember noise, lights,TV annoyed me.
Today my memory plays tricks on me. I get flash backs and things that happened in the hospital are remembered for the first time. I do not know how reliable these memories are. I have some gaps in memory of things that have happened since I have been home. Everyone is different on the memory front.Bottom line for me is, if you want me to remember you, rub my feet, put a cool towel on my head, and then let me sleep.
thank you ! this is what I wanted to know. I am here to reassure my son that he is safe and we are taking care of him. I spend time moving his arms and legs. showing him pictures and then leting him rest and heal.
Thank you for sharing, I will ask about hearing loss. I know Sean will have his own story to tell , but it helps me to know that what he is experiencing is not out of the ordinary. We will explore all avenues to help Sean reach his full potential.
Sean having the support of his family ... will so help him along...
Prayers continue to be with Sean and all of You...! Cyber ~ Healing thoughts your way...Colleen
Thank you !