Mike, fatigue is actually normal. Your body has gone through a real and large ordeal. It needs time to recover for it. In the first year I was sleeping 12hours at night and taking at least an hour nap every afternoon. I wasn't even back to work!!! The more rest you get,the better the process will be. Whatever you do(walk,run,swim etc) start out doing it for short periods of time. Gradually increase your time. The truth be told it is usually the mental fatigue that gets us down. Even to this day, if my life is crazy busy I have to build in some down time or else my brain just tunes things out. Okay I get a little weepy. I wish I could give you a time table but I cannot. I can almost promise that your least favorite phrase will become "Give it time". But that is the honest truth....time. Time to grow,again. Enjoy this new life!!!!
Hi Mike,
not much more advice I can offer you that hasn't already been said. The only thing I found different was that researching online actually HELPED me, not hindered. This is because I didn't know there could be so many successful outcomes from these operations - I was opened up to a whole new world!
It has not been very long since your operation so you just need to take it slowly. Stay in touch with us all on here - I would love to hear your story of continued success.
Mike:
It is true that fatigue is huge. I work out 2 hours a day but do not work and I still take naps and sleep 10 hours a night, I felt guilty about it until I began reading these posts from others stating fatigue is huge. Keep up the good work and you will be fine.
My son had a grade five SAH three years ago and a coiling. He was in ICU for five months in a coma. He was given only one percent chance to live and was told if he did survive he would be in a veg. state. He got everything imaginable while in ICU, from infections like ecoli, MIRSA. to saratonin syndrome. He came home blind, no speech, no movement, feeding peg. We aggressively sought out research from across the globe, attended medical seminars, and worked with him aggressively every day. When every gave up after six months we did not. I am saying this to tell you we have been there and experienced a lot and we are here to help you with any question you may have. This group is also a fantastic resource. Today after surgeries, has 20 percent vision back, talks now, relearning everything, moves his arms, etc.. He is becoming more self sufficient, and is relearning to do simple math etc. That is a 200 percent improvement. Do not believe there is a peak and stopping point. Keep your brain active. Let me know if you have any questions or need advise. We are happy to help. Ernie
Hey! My name is Neil ad had a coiling on Thanksgiving 2014 on an emergency basis after a 5 day Migraine (or so I thought). Fortunately I didn't have much time to worry but things turned out OK. Although my 3 year career in commercial banking came to an end. Things will work out just ty and be positive. very tired tonght but wanted to wish you well
Neil (phia)
Campanile said:
You might think this is out there, but you might want to consider meditation. Right now I am trying a 21 day free meditation with Deepak Chopra and Oprah, which started today. I have delayed my coiling until my health improved, but living with the anxiety while waiting is probably not helping me, so I am doing gentle yoga and trying to calm myself.
Has your doctor suggested anything to help you?
Passing a message along from Mike:
I also wanted to thank everyone for replying to my first post. I was so surprised at how many people responded.
Hey there, Mike, how are things with you? We'd love to hear about the progress you are making.
Mike I hope all is well~
Mike, the first thing is to take a deep breath and exale. I have met people that have had bleeds then others that have coilings done. I suffer from 8 brain anuresyms…the biggest is in the MRCA. IT IS 9.5 mm in height, 7.6 mm in depth and 23mm in length.
There is 2 in the mrca, 2 in the left, 2 in the front lobe, and 2 in the brain stem. When i gwt scared (for me) thw Lord puts someone across. My path to remind me… i am not nor never will be alone… for he loves me and he will carry me… hang in there and you will make it,
Mike just an FYI - after my aneurysm and clipping, my BP stayed in the 145-160/85-100 range depending on what I was doing. It would drop down into more normal ranges if I sat for a while but first measurement was always high. I was incredibly worried about this and then thought my heart was failing.
My BP is back to normal now (115/70 or so) but it took 9 months post surgery to see it slowly come back to normal. I think it was post traumatic stress and anxiety from the entire event. Hopefully yours will come down too - in a similar way to what you told me on another post, focus on what you can control (i.e. good diet, exercise, etc).
Mike said:
Does anyone know what would be too high a blood pressure? I did an experiment yesterday. I had to deal with my employer and there was some things that were agreed to then denied so I wasn't happy to speak to them. Anyway before and after the phone call my BP was 131/69 then 169/89.
I know I should speak to my doctor but I really cant seem to make that happen. I have been trying to just get my appointment dates as I have to travel a long way and am being pushed around the system speaking to several people every day but getting nowhere. Anyway I value all f your input as I think this is only feedback at the moment
My rupture was a year ago. My blood pressure is around 130 over 80 consistently. My aneurysm was on the madula. It is now forming a new one about 2 mm. I also researched constantly. But now I just try to focus on each day. I reccomend the book rebooting my brain by maria Ross. It has helped me so much. Everyday is a new one. We are lucky each day to be here. I worry too but try to focus on my family and how I am so happy to be with them!
I can understand why you feel the way you do. The doctors are important in dealing with this, but the fact that you are alive and doing reasonably well now is very encouraging. We were told by a health professional that my wife's situation was not decided on earth. She was not supposed to make it through that first night, and eight days later they told us she would live. She still had a long way to go, but today, four plus years later, is doing very well. The health systems can be frustrating--we experienced some of that too, but look outside yourself for support.
Hi Lyn, I know it’s a late reply but I’m only new to this site. I’m in Australia too would love to know about the fb group or other groups as there seems to be very little out there. I need information.
Mine ruptured on the 12th of March 2016 & was clipped the next evening. I have been very fortunate & have come through with little deficit. Although cannot tolerate noise at all which is ironic as I was a a music festival when it happened. Fatigue & headaches & just weird stuff. I discovered yesterday after trying to play a game of hopscotch I can’t hop on my left leg!
Cynthia
IrisD, thank you for that little bit of wisdom. I wasn't reading this discussion specifically for that answer, I was going to aks a quesztion after I has read all the discussions. All everyone would tell me is that the recovery was a "day by day" process.
IrisD said:
A physical therapist told my husband, when he realized he could not stand up or walk, that for every week that you are out, you need to give yourself a month to recover. It put things in perspective for us. Give yourself a break. You deserve the rest.Mike said:
I honestly didn't expect anyone to reply so I just wanted to say thank you.
I think the fatigue is the most confusing thing. I was so busy before that I find myself constantly asking myself if I feel tired because I am not doing anything or am I being lazy. I also have a little bit of a fit every time I get a slight headache. I stop and wait thinking "is this it?"