Hi Marcii!
I’m afraid my story doesnt have a happy ending at THIS time. My ruptured annie and 2 others were were found on 9/11/10, two clipped, including initial bleed, and mirror in February of 2011, final one clipped in August of 2011.
It was the February clipping that took my sense of smell and gave me a constant and severe headache that stays in the back of that side of my brain just about 2.5 inches behind my ear in the soft tissue below my skull and next to my spine (but not from it according to the team of doctors and pain specialists.
My sense of smell is gone, the upside is I can eat spicier food! The headache is what is keeping me depressed and addicted to vicodin. I miss the smell of Thanksgiving dinner, roses, lilacs and much more, but I lived and once we can figure out the headache I will be happy again, I hope! Try and stay wil the positive, I have heard of that nerve regrowing over time. Doctors are even talking about stem cell research using your own cells from the hip bone to make it grow faster! Peace to you and yours. Melissa C
You are correct those nerves do sometimes regrow. About a mm per year. I will never forget the day I got the feeling back in my fingers. Only because I was complaining about the tingling in my index finger and wife started crying. It took me a while to connect that I hadn't felt ANYTHING in that finger in years.
I admire your fight and appreciation of the "what is" not "what was" We deal with "is" not "was" through our whole life. I'm not being trite.
I had similar issues, funny smells and dizziness, loss of taste and I would have little floaters in my vision. I don't want to scare you but I was having mini strokes and seizures. The funny smells, were aura's of a seizure. I would get some imaging done and press for answers. If your doctor will not pursue it find one that will. Best wishes!!
Hi everyone,
My aneurism burst in Jan.2014. It was 4" long and in the middle of my forehead. They coiled it and I was in the ICU for two weeks. Then I went to re-Hab for three weeks.
I lost my taste for all sweets would you believe (including chocolate)! I usually LOVE chocolate! I gave it all away to people who came to visit me. I’m figuring there’s an alien in my body giving away all my chocolate! What is this that’s happening! I didn’t even want to look at it. Me! Who hoardes chocolate! I told my surgeon that all my friends were wondering what the heck he did up there in my brain and that they were very interested in losing their taste for sweets and losing weight. I told him he could make a fortune! I don’t think he’s interested however… Ha ha! Anyway I’m back to loving sweets and chocolate so it wasn’t long lasting with me anyway (2-3 months tops). And of course I’ve gained the weight back.
That is funny you mentioned something you used to love and now you don’t. I used to love to drink wine. My husband used to tell everyone he was just going to hook me up to an IV. Now I do not like wine and if I have a glass it give me a headache. I did not have a drinking problem, I just loved my glass or two of wine almost daily. Now NOTHING! I will drink an occasional glass at a social gathering, but it always give me a headache. What a bummer!
My rupture was in August 2012. I had a heightened sense of smell for a couple of weeks then I couldn’t smell or taste anything. Now 2 years later I cant smell some things and food still tastes different. My doctor said my olfactory nerve had been damaged and my never come back fully. I miss some smells and miss the flavours.
My problem is different. I can still smell things but I now hallucinate smells. And they're usually bad. Like I smell the hospital. I was in ICU for 3 weeks, and then a step down unit for another 10 days. So the hospital smells are deeply engrained. I was drugged heavily, helpless, lonely, cold, and had a trache so I couldn't even speak untll it was removed about 2 days before I got out. So when I say I smell the hospital it's extremely unpleasant and I have panic attacks.
As for sinuses, mine drain all the time. I have tissues in every room. I thought that wasn't related until this thread, but now maybe it is.
I do have headaches still, but they don't seem to be weather related.
Good luck all of you in dealing with your stuff. Breathe deeply.