Ruptured and recovering, I think

Hi, my name is Lisa, I am a 44 year old mom of 2, from Cape Town, South Africa. On 13 January 2026, on what I now recall being a particularly hot day in Cape Town, at about 4pm my mother and 18 year old daughter found me unresponsive on the kitchen floor, the toast I had been making was half buttered and still warm - this is how they know whatever had happened was recent, they know I didn’t fall to the ground because they would have heard that and I also had no injuries which would indicate a fall. I was flat in my back, unresponsive. I now recall buttering my toast and feeling a sudden strange sensation at the back and top of my head, it felt like liquid being poured inside my head, I recall kneeling down to the ground, and then nothing. I don’t know if it was painful, just that it was strange, could this have been the thunderclap headache? I don’t know. I already had a headache, I have always suffered from chronic headaches and that day was no different.

In retrospect, I can now say some of the headaches had been bothering me, they were different, my left eye would get painful, I’d wake up with headaches which was I usual, the headaches were more stubborn, I had an occasional ache in my left ear and jaw that was strange and felt odd, and my one eye seemed smaller. Were any of these warning signs? I’ll never know.

My daughter called an ambulance, I sort of regained consciousness, my mother says it’s like I was awake but wasn’t there, the paramedics indicated they thought something neurological in nature had happened because everything else seemed alright, but I was vomiting, slurring, not making any sense and was not responding to questions. I dont know what else they saw that made them think Neuro.

I was transported to the nearest hospital, 5 minutes away. I’m angry that I was not immediately taken to the bigger hospital but that’s a story for another time. Here is realised I had the worst headache, but I’ve experienced migraines before and this felt possibly the same. I was poked and prodded, lights shone in my eyes, I was drifting in and out of consciousness, I recall opening my eyes and seeing my brother but not being able to speak.

At some point they told me they thought I may have had a seizure but they weren’t sure and would keep me for observation. At some point a doctor used a fetal sonogram machine to scan my eyes, apparently to check if my optical nerve was swollen. I have no idea why, if they could actually see anything and what on earth they thought they were doing at this point. I was then admitted to one of their wards where they continued pumping my full of morphine for the headache I was still complaining about. They also said my BP was high.

Here is stayed, for a full four days until eventually somebody decided on the Friday after my admission on the Tuesday, because I was still complaining of a terrible headaches, to send me for a CT scan. This day, as with the others, are a blur, they all blend in with each other and I know only what day it was because of messages exchanged with my family.

My family now tells me that visits we’re short because I drifted in and out of consciousness. I have no memory of this. On the Saturday afternoon I was told my family should come and collect my belongings because I was being transferred to Groote Schuur, the only state hospital with the infrastructure and capacity to deal with what I was there and then informed was a severe brain bleed visible on the 'CT results.

Our public health situation is a waiting game - that’s all I will say. At Groote Schuur I was left, once again started drifting in and out of consciousness, woke to see my brother standing there, and I know from my records I was eventually admitted at 4.20am on the Sunday morning. From there everything is a blur, I have fragmented memories of High Care, doctors telling me I had a basilar aneurysm rupture, blood in places there shouldn’t be blood. I recall a form being presented and asked to sign. A needle in my groin, warm sensation, then nothing.

Over the next few days I don’t remember much at all - about a week is missing besides fragmented memories of nurses, family visits and a terrible headache. At some point I was told that the aneurysm was either difficult to reach or difficult to treat and that a professor had to complete the coiling procedure, and that I was lucky. I remember a lot of people telling me I was very lucky.

I was eventually transferred to a general ward, and I remember a bit more from this time, visits with my children, still the constant headache, constantly feeling dizzy. I was eventually discharged about 2 weeks post procedure, 3 weeks post rupture.

I’ve been home recovering now for about 2 weeks I think. I’m suffering from extreme fatigue. Headaches come and go, much milder than before. I feel slow, unsteady on my feet, sometimes I walk like I’m drunk.

Of concern is I have episodes where my right side goes completely lame, face included, my speech becomes slurred and sometimes my right limbs jerk, they’re happening less frequently now, and don’t last as long as they did initially. I am always fully conscious, even laughing at myself when it happens, and the lameness and slurred speech fully resolve every time. Had anybody else experienced this and what causes it?

I’m trying to take one day at a time, but even though I now look normal I dont feel normal at all. I don’t know if I will ever fully recover, or what that recovery looks like.

Any similar experiences? I’m so sorry for the long post - I didn’t know what to say or what not to.

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Hello @Leeh,

How wonderful it is to have you here with us! I am so happy you reached out and told us your story. What a journey you have been on!

Lucky for you, I only have a little bit of time this morning, so I will be more brief than I typically am :rofl: - but don’t you worry about the length as you need to process what you have been through with those of us who can relate to your experience!

Like you, I too, ruptured a couple of years ago. Around here, one thing we say is that recovering from a brain injury is not in days and weeks, but in months and years. Your beautiful brain does so much for you, but right now it needs to rest and recover as it has been through A LOT.

One thing you mentioned that is very common with brain injury patients is fatigue. One of my favorite resources on this topic comes from a group in the UK.

What I like about it is - although everyone is different - it identifies possible triggers for fatigue AND ways to help manage it. For example, while recovering, when I was told to rest, I might read a book or watch tv/look at a phone. WRONG! All of those (yes, anything with a screen) are mentally taxing to the brain, and so I was not giving my brain the break it needed.

Regarding your lameness and slurred speech, have you reached out to your doctors about that? I would definitely want to get their input on what they think might be happening! Please keep us posted as to what they say!!

Before seeing your message, I literally just started a book called The Brain that Changes Itself: Stories of Personal Triumph from the Frontiers of Brain Science. (Haven’t even made it to page 1 yet!) It is a smidge dated (2007), but it supposedly will talk about our brain’s amazing ability to recover. So don’t give up. Your journey may just be beginning, but you have a beautiful family who believes in you …and now you have all of us here to support you too!

Fin Whale Fan :whale:

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Good morning Lisa! You’ve done a wonderful first topic, kudos! Never worry about how long or short a post or reply you make. Your story is important and impressive, very impressive. I’m glad you survived your rupture and found your way here! We’ve several active members who’ve ruptured and several who get to be in the unruptured group, but we’re all a family of sorts.

When we bought our first home here in NC, the population of our town was around 2,000 in the late ‘90’s, I think. When I ruptured it had grown to about 8500. It was the county’s fastest growing town and I worked for the county. When I called our emergency number, the dispatcher thought I had a migraine is what she would tell me a few months later. I feel fortunate she agreed to stay on the phone with me until the first responder got to the house. When I eventually made it to the ER, I did get a CT and was transferred to a big teaching hospital and then coiling procedure the next day. What amazes me is so many different countries having an entirely different procedure for admitting a patient to the E.R. Hospitals here follow the B.E.F.A.S.T. when a patient comes in I’m truly amazed South Africa does not. It makes me wonder if you and your surgeon can get the ball rolling for the Emergency Rooms in your country. Might be something for you to think about, education and sharing experiences can help. No one in our Communication Center had ever heard of a ruptured aneurysm, they know now. I also remember when the BAF pushed for rural training of aneurysms here in the States, I wonder if they can help with your area, wouldn’t hurt to send an email to Christine Buckley and ask. Maybe they know someone they can connect you with in South Africa. It’s kind of cool to think of how many lives you can help save by educating the ER folks.

Now on to your question of side effects following a rupture…although we all have some differences in side effects, there’s a lot of the same ones. Fatigue is easily at the top, in my opinion. The thing that has helped me with my plethora of side effects is following my neurosurgeon’s mantra of hydrate, eat protein, hydrate some more, rest and repeat. We really do need to stay hydrated, our brains need both the hydration and protein to heal as well as electrolytes in my experience. The WHO suggested last I looked, 120 mg of protein a day. The USA says 90 mg daily. I follow the WHO each time I’ve had a procedure for several months. I have to have a sports drink (Gatorade 32 ounce) 3 times a day and at least double that amount in water, per my neurosurgeon.

I’m definitely not in medicine and I highly recommend you reach out to your surgeon. Do you have a patient portal? I find that’s the fastest way to get answers. Usually someone under my neurosurgeon responds but they’ve talked to my neurosurgeon or will let her know and come back with what she’s said. Always let your neurosurgeon know what’s going on that’s different then what you’ve experienced prior to having a rupture.

One of the downsides to having an endovascular (coiling) procedure is coils can compact. Mine continued to compact so I eventually had a stent installed. It’s helped but my aneurysm has not fully occluded. I ruptured in November 2013 and still have off days but not as many as I did in the beginning.

Seemed like back then it was one step forward and several backwards. Each time she went into my brain, it set me back much farther and I’d have to work hard, very hard to just get back to where I was prior to any procedure. Where I was sent is different from some other hospitals. I’d have an MRI/A the day I had an office visit scheduled, then a diagnostic angiogram followed by an office visit and then a week or two later a procedure for more coils to be placed. Some of our members don’t have to have the extra angiogram, their surgeons go ahead and add the coils while they’re in there. I wish mine did.

Your brain is trying to develop new neural pathways for your neurotransmitters to send their messages and that takes a lot of energy. I liken it to going the same direction in a vehicle say to work and all of a sudden without warning there are roadblocks all over the place forcing us to find a new route. We end up on unfamiliar roads which is frustrating and tiring. We can help our brain out a lot with keeping hydrated, proper protein intake and resting. Most of all follow your discharge instructions!

We all experience issues with folks not seeing our brain is healing and most don’t understand what a rupture entails. It’s understandable since we don’t have casts or sutures (craniotomy procedures are different) and they can’t see through our skulls. Most understand vaguely at least what an ischemic stroke is and can do so there tends to be more empathy I think because they’re more common. I used to explain the differences and I also said I popped my pipe and would use an old garden hose we had when we were kids that would develop a bubble and pop. But how long is recovery for you? Got no clue, sorry. I’m still experiencing off days so am still in recovery in my opinion and that of my wonderful NP at the neurology place I go to. He is more prone to order an MRI/A faster than my neurosurgeon wants. She ends up seeing them anyways as both facilities are under the same big umbrella and I let the team know I’ve had one requesting her to look the images over. Merl, one of the folks @ModSupport has had several craniotomy procedures and explains it a different way using a length of string as an example. Give him time to respond, he’s in Australia and helps moderate on all of the Ben’s Friends support groups along with Sharon and Mr. Richard.

I hope I’ve answered some of your questions and not confused the heck out of you. Remember to contact your surgeon sooner rather than later. If for no other reason than to let him know and let his team tell you it’s all good. When do you get to see him? Your discharge papers should have set up an appointment.

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Lisa,

You’ve already done the hard part, survived. I think all of us that had brain bleeds or ruptures and survived can tell you roughly the same story. The first 6-12 months can be a grueling experience with headaches and dizziness, among other things. But eventually, the fog starts to fade and you become more of your old self. You may or may not get back 100%, but each day you improve is a win.

You cant rush these things, but you can make it easier by keeping your mind busy and trying to accomplish small tasks as you can without overdoing it. Of course you need a good medical and support team around you.

I wish you the best. You’ll do great!!!

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Hi Lisa. Welcome to the group. I hope you continue to recover. I have found the information from both pre- and post-rupture stories to be very helpful in relieving my anxiety.

My aneurysm is on the internal carotid artery at the left ophthalmic artery, so your left eye pain caught my attention. I am doing Watch & Wait (I’m 69) on my still ~4mm annie (found in December 2022). Your description of your pre-rupture feelings I will add to my list of symptoms to watch out for, as it seems different things can indicate impending rupture in different people. I already have sometimes double vision and pulsatile tinnitus.

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Hi Lisa, I’m not a very active member of this group but for some reason your post caught my attention.

My basilar tip aneurysm ruptured when I was 34 with 2 small kids. You are still fresh from yours so I’m just gonna give you a few suggestions and a little knowledge.

Sleep when you feel tired. Your brain is healing. All the residual blood will slowly be absorbed and with that you will notice differences. Don’t be afraid if your memory is terrible or if you start the same conversation multiple times. And warn your family! It’s all a part of healing. Slow and steady wins the race.

Ask for help, don’t try to do too much. A very short walk to get some air is enough.

After 6 months you get an idea of where you are, after a year you will know how your memory and state of mind is and can build from there.

keep in touch, there’s a lot of knowledge in this group.

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Hi Lisa, good to see you found us! I am also a ruptured aneurysm survivor, it’s a whole new world and experience that not many can relate to nor offer any helpful insight or solutions so that makes finding this group so amazing. One of the things that I realized after spending enough time here was that symptoms and recovery really are not the same at all even when you find someone who seems to have had a very similar experience to your own. I was a little disappointed as I really was hoping to have the journey to recovery explained and some estimated time lines for milestones to be found, not that simple as it turns out. It does help to make note of things you are experiencing and any difficulties you might be having to look back on (for me near Annie-versary time) and realize you did indeed make huge strides from where you started. This is a way better comparison than simply falling into the “before” Annie trap. You are still early in recovery and I think someone mentioned to give your body time to absorb the blood that is still in places it was not intended to be, that really is the first noticeable milestone, it just happens ever so gradually. You mention the right side episodes though and these seem like something you should probably discuss with your neuro doc just to be certain it is par for the course. That first year I experienced headaches, major vertigo and other odd things just not exactly what you describe is all.

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Thank you for sharing your story, and welcome to our community! Having this resource is such a gift, at least it is for me. I too had a ruptured aneurysm in the left frontal lobe with zero warning indicators. Lost consciousness, was aircared to UC for emergency surgery. I spent a month in ICU completely unaware of what had happened, and was unable to form any memories of the current situation. As my healing progressed. I was transferred to a rehab unit for my 2nd month. I was given a journal that people would write in to try to keep me oriented. Sent home with 24hr supervision as I slowly regained my facilities. Exhausted and easily overwhelmed for first several mos for sure. This is a long rehab for sure, about 2 years until I was back to my new ‘Normal’. Residual effects are a decreased ability to tolerate frustration, and my filters on what I can say are at times compromised. I ended up not being able to continue my vocation, RN, as the stresses were to great for me handle. I am now on disability after neuro psych testing could show the deficits. Be patient with yourself, we are the fortunate ones to have survived this journey without major disability. I would definitely explore that one sided weakness with a neurologist. Appreciate your post and best wishes for your continued recovery :folded_hands: :heart:

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